Bill Clayton
@clanman3
@Clanman@mastodonapp. Running The York ME Community & York Access Hub.
ID:215568975
14-11-2010 09:19:50
16,0K Tweets
1,2K Followers
687 Following
We are currently getting issues with X not allowing us to read @TheChronicCollaboration's posts or seeing all posts related to #SaveCarlasLife . Apologies if this is happening to anyone right now...ππ‘
ME is classified as a neurological condition. Itβs vital Neurology are part of Carlaβs care team.
βNHS to update classification system to reflect that M.E. is neurological disease | 06 August 2018β
meassociation.org.uk/2018/08/nhs-toβ¦
#SaveCarlasLife #ExposeMENow
Petition update Β· An update about Millie from her family Β· Change.org Β· Change.org #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie change.org/p/save-millie-β¦
ANNOUNCEMENT #SaveCarlasLife #MEAwarenessHour
As always with these actions we just facilitate YOU the community protesting & as such we want YOU involved tomorrow.
We want YOUR messages of support for Carla to read out on the livestream. So PLEASE reply to this tweet with them
FYI... I have zero issue calling out anything that is ableist ....if it is really awful it is going to Rachel Charlton-Dailey πππ for her weekly ableist bullshit list. Which you can find here β¬οΈ thecanary.co/opinion/2024/0β¦
β οΈ This is distressing to watch but more distressing to go through
Very severeME
#SaveCarlasLife
BBC News (UK) BBC Health News Emily Morgan Fergus Walsh Hugh Pym Channel 4 Dispatches Tonight BBC Panorama Good Morning Britain George Monbiot ITV News BBC Two @Channe4News
JANE DODGE This Morning
Channel 4 News BBC News (UK) ITV News can you please ππ» cover this case. A young woman experiencing what it is like for #SevereME patients in an NHS hospital who have no idea how to treat her. #Abuse
Tomorrow can we get this trending around the globe?
What is happening to Carla could happen & is likely happening in any country, not just the UK
So #pwME everywhere please retweet, quote tweet or add your own tweet to the Twitterstorm belowπππ
#SaveCarlasLife
#ExposeMENow
#PavementParking City of York Council Setting such a good example to other drivers βΌοΈ
What are #microclots and what role do they play in #LongCOVID & #MECFS ?
RTHM Co-Founder and Chief Medical Officer, Dr. Jennifer Curtin explores how certain treatments, such as triple therapy, can impact symptoms for #pwLC and #pwME .π½οΈπ½
youtu.be/DT0z8s3wiQo
As of 2pm on 16 April, Carla was unconscious for 24 hours. Yet doctors have done nothing. They don't believe she is having seizures. They have not got other specialisms such as neurology or cardiology involved #SaveCarlasLife #ExposeMENow Full story below:
thecanary.co/uk/analysis/20β¦
If you're looking for all the details of #SaveCarlasLife #ExposeMENow online and on the ground protest on Thurs 18 April at 11am, then Twitter's algorithms seem receptive to what our community is doing - as it's already turned it into an Explore news item:
twitter.com/i/trending/177β¦
#SaveCarlasLife #BringMillieHome
If the NHS had a protocol on severe Myalgic Encephalomyelitis we wouldn't have to fight for Millie and Carla.
Please sign this open letter by ME Foggy Dog π...π
Great to see ME Association promoting this open letter by ME Foggy Dog π. What is happening to #SevereME patients in hospital is horrifying. Can we please see a more collaborative approach with both main charities and our trusted advocates going forward.
#NHSProtocol4SevereMENow
Doctors ignoring NICE best practice guidelines?
In another NHS England hospital?
Yes.
And itβs been going on for decades.
The biggest health scandal you ever heard of.
MSM βturn the other wayβ¦β The News Agents
#BringMillieHome
#DontLetMEDie
Updates:
Hopefully there may be updates on Millie's situation, by the end of the day.
Nicola & Steve going to see Carla's family today, to try & get to grips with that situation. Will hopefully let everyone know more solid information later today.
Important to keep up this events as the Govenment seem to want to hide this situation it is up to the #MEcommunity to keep this alive and #DontLetMEDie Stacey Poole π