Bill Clayton(@clanman3) 's Twitter Profileg
Bill Clayton

@clanman3

@Clanman@mastodonapp. Running The York ME Community & York Access Hub.

ID:215568975

calendar_today14-11-2010 09:19:50

16,0K Tweets

1,2K Followers

687 Following

Nicola Jeffery(@NicolaCJeffery) 's Twitter Profile Photo

We are currently getting issues with X not allowing us to read @TheChronicCollaboration's posts or seeing all posts related to . Apologies if this is happening to anyone right now...πŸ‘‡πŸ˜‘

We are currently getting issues with X not allowing us to read @TheChronicColab's posts or seeing all posts related to #SaveCarlasLife. Apologies if this is happening to anyone right now...πŸ‘‡πŸ˜‘
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Clare Daly(@clarejdaly) 's Twitter Profile Photo

ME is classified as a neurological condition. It’s vital Neurology are part of Carla’s care team.

β€œNHS to update classification system to reflect that M.E. is neurological disease | 06 August 2018”

meassociation.org.uk/2018/08/nhs-to…

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@TheChronicCollaboration(@TheChronicColab) 's Twitter Profile Photo

ANNOUNCEMENT

As always with these actions we just facilitate YOU the community protesting & as such we want YOU involved tomorrow.

We want YOUR messages of support for Carla to read out on the livestream. So PLEASE reply to this tweet with them

ANNOUNCEMENT #SaveCarlasLife #MEAwarenessHour As always with these actions we just facilitate YOU the community protesting & as such we want YOU involved tomorrow. We want YOUR messages of support for Carla to read out on the livestream. So PLEASE reply to this tweet with them
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Caroline Keep(@Ka81) 's Twitter Profile Photo

FYI... I have zero issue calling out anything that is ableist ....if it is really awful it is going to Rachel Charlton-Dailey πŸ’–πŸ’œπŸ’™ for her weekly ableist bullshit list. Which you can find here ⬇️ thecanary.co/opinion/2024/0…

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Carole Bruce(@CaroleBruce17) 's Twitter Profile Photo

Channel 4 News BBC News (UK) ITV News can you please πŸ™πŸ» cover this case. A young woman experiencing what it is like for patients in an NHS hospital who have no idea how to treat her.

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Kirstie Sivapalan(@KirstieSivaP) 's Twitter Profile Photo

Tomorrow can we get this trending around the globe?
What is happening to Carla could happen & is likely happening in any country, not just the UK

So everywhere please retweet, quote tweet or add your own tweet to the Twitterstorm belowπŸ™πŸ’™πŸ‘‡


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RTHM(@RTHM_Health) 's Twitter Profile Photo

What are and what role do they play in & ?

RTHM Co-Founder and Chief Medical Officer, Dr. Jennifer Curtin explores how certain treatments, such as triple therapy, can impact symptoms for and .πŸ“½οΈπŸ”½

youtu.be/DT0z8s3wiQo

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@TheChronicCollaboration(@TheChronicColab) 's Twitter Profile Photo

As of 2pm on 16 April, Carla was unconscious for 24 hours. Yet doctors have done nothing. They don't believe she is having seizures. They have not got other specialisms such as neurology or cardiology involved Full story below:
thecanary.co/uk/analysis/20…

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@TheChronicCollaboration(@TheChronicColab) 's Twitter Profile Photo

If you're looking for all the details of online and on the ground protest on Thurs 18 April at 11am, then Twitter's algorithms seem receptive to what our community is doing - as it's already turned it into an Explore news item:
twitter.com/i/trending/177…

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@TheChronicCollaboration(@TheChronicColab) 's Twitter Profile Photo



If the NHS had a protocol on severe Myalgic Encephalomyelitis we wouldn't have to fight for Millie and Carla.

Please sign this open letter by ME Foggy Dog πŸ’™...πŸ‘‡

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Julie Houston(@JulesAHouston) 's Twitter Profile Photo

Great to see ME Association promoting this open letter by ME Foggy Dog πŸ’™. What is happening to patients in hospital is horrifying. Can we please see a more collaborative approach with both main charities and our trusted advocates going forward.

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Naomi Harvey PhD #WearAMask(@Naomi_D_Harvey) 's Twitter Profile Photo

Are you able to attend a protest in West London this Thursday April 18th?

Most of us who would do so are unable to travel. We need healthy people to help us fight this.

Carla is suffering in a hospital that is not following National guidelines for proper care

πŸ™πŸ»

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Cal(@tweetercal) 's Twitter Profile Photo

Doctors ignoring NICE best practice guidelines?

In another NHS England hospital?

Yes.
And it’s been going on for decades.
The biggest health scandal you ever heard of.
MSM β€œturn the other way…” The News Agents

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Tracey Burgess(@TraceyABurgess) 's Twitter Profile Photo



Updates:
Hopefully there may be updates on Millie's situation, by the end of the day.
Nicola & Steve going to see Carla's family today, to try & get to grips with that situation. Will hopefully let everyone know more solid information later today.

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chiller β˜…(@chiller) 's Twitter Profile Photo

So carers are officially EXCLUDED from receiving the jab this year.

I'd like to thank @rishisunak personally for making β˜…meβ˜… the thing most likely to kill my mother.

And I'm sure everyone living in a family with a frail/CEV person in it feels the same.

cc tern

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