Ben H
@benh_mecfs
ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.
ID: 754295920548802560
16-07-2016 12:45:36
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Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Yong Li
@fugapku
Associate Director Bioinformatics and Software @ Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
Adam Catterall
@adamcatterall
Co founder of the @fightdisciples | Multi-award winning broadcaster
Royal Hansen
@royalhansen
Vice President, Engineering, Google - Privacy, Safety, Security: Posts on InfoSec, Privacy, Data, AI, Counter Abuse and random stuff from life in CA; Tweets=own
Dan Hardy
@danhardymma
Professional reptile, amateur philosopher, part-time visionary.
Darren Parkinson 🌍💚💙
@darrenbar88
Green Party Campaigner | Living with Long Covid | Bradford | Shipley Town Councillor 2020-24 | Views own.
Andrew Gwynne MP
@gwynnemp
MP for Gorton & Denton (Burnage, Levenshulme & Longsight) | Husband/Dad/Grandad | VIC20 user🕹👾
American College of Sports Medicine
@acsmnews
ACSM | #ACSM25 | #ACSMCertified Our Mission: To educate and empower professionals to advance the science and practice of health and human performance.
Agy Lena 🏳️🌈🇵🇱🇬🇧
@agy_lena
Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
K3vin
@tr_k3vin
Unvaccinated Covid Long Hauler since 07/2020. Not anti vax. Just don't know if the vax will help or make things worse
Litsa Dremousis On Blue Sky now w/ my same name
@litsadremousis
ALTITUDE SICKNESS (Future Tense Books). Upcoming: FIRE IN THE HOLE: A EULOGY FOR THE LIVING. Left WaPo. Longtime essayist. Now co-host of PEM Pod. #pwME #MCAS
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
NickyProctor
@nickyproctor
Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
John Oliver
@iamjohnoliver
Comedian. @LastWeekTonight, @TheDailyShow, The Bugle Podcast (@hellobuglers)
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Fishupahill
@fishupahill
Formerly many things. Now missing, but not gone. #pwME, #pwLC and #Lyme.
Isabel Ramirez-Burnett | Renegade Research
@isabelramirezrd
CEO @renegaderes & Director @remissionbiome Decentralized, human-centered research. #MECFS #longcovid #IACI
Ciaran Farrell
@ciaranj_farrell
Dianna Cowern
@thephysicsgirl
Science Video Creator, Tweeting about #LongCOVID as @diannahaze, MIT Physics, Forbes 30u30 youtube.com/physicsgirl
Richie Goulding
@richiegoulding1
Assistant Professor at Vrije Universiteit Amsterdam. Interests: exercise and muscle physiology under the conditions of training, ageing, disuse and disease.
Ring Magazine
@ringmagazine
The Bible of Boxing. Since 1922 🥊 News. Interviews. In-depth analysis. Subscribe for boxing news that matters.
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Jason S
@jasons1269
Fitness Junkie & PT until #ME Jan 2012 #LongCovid Dec 2021. Blood tests normal until SARS-CoV-2 infection. Abnormal now. Unvaxxed. Bedbound. #CPTSD.
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Pam Bishop, PhD @pamelarbishop.bsky.social
@pamelarbishop
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Migrating, find me here: @pamelarbishop.bsky.social
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Maxim Artyomov
@maxim_artyomov
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
SoeMac
@soemac_
SoeMac is a wellness product that increases blood flow & tissue oxygenation for people with CFS, ME, Long Covid, COPD, Asthma, and many other conditions
Pamela PhD
@pamelaraasen
PhD psychologist, social justice and feminist activist, make good trouble, committed to creating the Beloved Community. Heartmath trainer and coach. From MN
Peter Judodihardjo
@petejudo
YouTuber (Pete Judo) | Behavioural Science Auditor at NatWestGroup | Habit Specialist | Decent Muscles
Oonagh Cousins
@oonagh_cousins
Communications and Fundraising at @long_covid #ThereForME campaign team. 'Anti-Recovery Activist' oonaghcousins.bsky.social
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Volodymyr Zelenskyy / Володимир Зеленський
@zelenskyyua
President of Ukraine / Президент України
ICanCME Research Network
@icancmeresearch
The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Martin
@pausedme
#MECFS⎮#Lawyer by profession | #Musician by passion | PERSONAL ACCOUNT |
Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
🦕littleMister_Sunshine✨
@mastcellmassacr
polyam ☆ queer 🦊 nonbinary ☆ bedridden 23,75/24 ☆ ☆ 🌈 he/they 🐛 MECFS ☆ Bo starb in der Nacht vom 27.-28.3.25 und ist endlich von seinem Leiden erlöst
Pete 😷 #COVIDisAirborne
@peteuk7
Chemistry. ChemEng. Advocate for shared air mitigations. FFP3/N95 masks, ventilation, Far UV. An extremist (apparently) as I want Public Health back #Spaceshost
Birgit Engelhardt
@birgit_1973
Journalistin / birgitengelhardt.bsky.social
LongWaiter
@longwaitme
My life disinterests you; you entertain me. Not polarized but often cynical. Typos b/c of cognitive dysfunction. #MyalgicEncephalomyelitis & #POTS since 2009.
Tjalco
@tjalcovrv
Tom Molmans, MD
@molbaas
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Mitodicure
@mitodicure
Start-up with the mission to cure ME/CFS and Fibromyalgia. Follow us on LinkedIn: linkedin.com/company/mitodi…
Alexis
@alexis___me
Come find me on instagram instagram.com/alexis___me/ and Blue Sky bsky.app/profile/alexis…
Tina Katsaros
@tinakatsaros
PhD candidate researching ME/CFS at La Trobe University
Renegade Research
@renegaderes
Nonprofit community science, patient-led, philanthropically funded, decentralized research org. Open source, power to & from the patients Runs @remissionbiome
Jenny Wilson
@jennywi04810918
#MEActionNC
@meactionnc
#MEAction state chapter for North Carolina (NC). Support Mtgs 2nd Thurs each month 1p-2p ET, AdvocacyMtgs 4th Wed noon ET. meaction.net/act-events/
500 Miles For M.E
@500miles4me
Raising money for Invest in ME Research 🏃Running the Wrexham 10k on 27/04/25 🚶Walked 500 miles in 2023 for ME research & awareness 💙 Carer & advocate
cha
@charlottehvrn
life on pause because of very severe illness -24 (sometimes can’t answer, sorry) used to be a rock n roll girl
dianna haze
@diannahaze
Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
NorseVirtue
@norsevirtue
Forge Your Own Path.
Amy DeBellis
@amykdebellis
Author of ALL OUR TOMORROWS @CLASHBooks 🖤 One of #millionsmissing ♿️ Words: @xraylitmag, @uncharted_mag_, @passagesnorth, etc Rep: Aurora Fernandez
Minghao Gong
@minghaogongd960
Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
The Arisen Want More / 覚者たちの願い
@expanddd2
It's time to convince Capcom to make a Dragon's Dogma 2 DLC! Take up arms, Arisen, and join the fight! #TheArisenWantMore #ExpandDD2
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
LC
@anonym5x5
Life on hold since 2022 due to #LongCovid #MECFS #POTS
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Tomas Paulenda
@tompaulenda
Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Michael Mindrum, MD
@michaelmindrum
Internal Medicine & obesity specialist in Nova Scotia, 🇨🇦. Interests in diabetes, behavioral psychology, consciousness, AI, & a post-polarized world.
Ali Max Erturk
@erturklab
CEO of @DeepPiction, director at Helmholtz, LMU Prof. AI-based technologies for health. We’re🇩🇪🇹🇷🇭🇷🇨🇳🇮🇹🇮🇳🇸🇮🇴🇲🇨🇱🇭🇺🇧🇬🇺🇦🇷🇴🇦🇹🇹🇼🏳🌈
Marcel M.
@rubbedidupp
Post-EBV #MECFS sufferer – we need biomedical research! @HumboldtUni & @LSEnews graduate 🏳️🌈 @rubbedidupp.bsky.social