Ben H
@benh_mecfs
ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.
ID: 754295920548802560
16-07-2016 12:45:36
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Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Yong Li
@fugapku
Associate Director Bioinformatics and Software @ Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
Welshcollie
@welshcollie7
Health, disability, environment, science, current affairs, politics, social justice, CFS/ME, & LFC. Likes & RTs not necessarily endorsement.
Rachel Colson
@rlcolson
chronic napper. rare disease patient. disability & chronic illness advocate. writer. #nlrp3/#caps #nlrp12/#fcas2
LongCovidCollective-ATX
@atxrealestatetm
Formerly active, optimistic folks, now trudging the road of #longcovid, #mecfs, #dysautonomia, #chronicillness 🤕🙏🩵 #atxlonghauler, #longcovidcollective ✌️
Dubrail Emilie 🌺
@emidub
Photographe Atteinte d’#encéphalomyélitemyalgique #paem Membre de #MillionsMissingFrance
Agy Lena 🏳️🌈🇵🇱🇬🇧
@agy_lena
Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Crunchie
@s_carinci
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Daniel Moore
@talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
дарина 🇺🇦
@lilslimer69
Ukrainian with Moderate-Severe ME/CFS, Myasthenia Gravis 🎗️
baynativ
@baynativ
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Patricia Dore
@dorepa
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
oediolog
@ianeilbacher
Former biology teacher, mountain climber...ruined by long covid or ME/CFS.
Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
KimK ... one day at a time 🇨🇦
@topazstudioscom
Grandmother 🪷 Retired due to 3 #chronic illnesses 2020 #ESKD #longCOVID #immunocompromised #pericarditis #myocarditis 💙 Volunteer @renegaderes 🥩 #carnivore
Mary
@lulupcloud
Ted Monroe
@tedmonroe91
English teacher; writer; impatient long Covid patient
@GrettaPecl
@grettapecl
#ClimateChange Prof born at 323ppm CO2, @SpeciesOnTheMov, @RedmapMarine, #SciCom, #IPCC, Director @CMS_Utas, Mum of 2 teens born at 382 & 380ppm now its 426ppm
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Martin
@pausedme
#MECFS⎮#Lawyer by profession | #Musician by passion | PERSONAL ACCOUNT |
Nikki
@liccle_princess
Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Invacare Asia
@invacareasia
The official Twitter feed for Invacare Asia. Making life's experiences possible. 🦽🦼
Sibylle Dahrendorf 💥✌️
@sibylle_berlin
Once a Filmmaker || Stop denial of #ComplexChronicIllnesses || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #ME ||
Carey
@29carey29
Here to learn and connect with others doing the same. #KeepMasksInHealthCare #LongCovid #POTS
Sa
@zaphreus
Learning // (previously) studied Electrical engineering, superficially interested in good literature, practical mathematics, languages. Now SEID
The Hippocratic Institute
@hippocraticinst
The Hippocratic Institute is dedicated to affordable, high quality naturopathic, nutritional, and herbal medicine education.
Flo
@curetfmecfs
ME/CFS Fighter #severeme *369ppm 🍉
Monica Dalby
@dalbymonica
Living with ME since 1985.
RemissionBiome MECFS/LongCovid Patient-Led Science
@remissionbiome
Community science, patient-led project of the non-profit, decentralized research org, @renegaderes. RemissionBiome.org
Renegade Research
@renegaderes
Nonprofit community science, patient-led, philanthropically funded, decentralized research org. Open source, power to & from the patients Runs @remissionbiome
cha
@charlottehvrn
life on pause because of very severe illness -24 (sometimes can’t answer, sorry) used to be a rock n roll girl
Tina Soli
@tina_soli
Linda Clement
@jameshenne31421
Always treasure the moments you have with your family ❤️ and friends ❣️
SEO Specialist
@bizcarehub
BizCare Hub provides SEO-related services for websites on various CMS such as WordPress, Wix, Shopify, Webflow, & Squarespace, including YouTube SEO.
HiAlert
@hialertapp
The app to communicate your Health Conditions and/or Disabilities so you can get help and be understood 🧡💜 📲 Available on the App Store & Google Play
Ned Balance
@nedbalance
Aiming to be respectful, with big picture thinking. Interested in talking about things that are tough to talk about.
4dc79o7p0z
@4dc79o7p0z29257
Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Jan
@jan995783030021
Daniel Anna
@danna21922
Tonneyez
@tonneyezrv6q
Ara Leonhart
@maxffrench
ChronicLivingTherapy
@chronicliving1
Directory website for counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
Bryan Wilson
@bwilson73265
I am a father that loves his daughter so much and can do anything to keep her happy because life is too short to be unhappy!
Baraa Wael 🍉
@baraasaid613254
All We Wanna Do Is Be Free 💔🍉
Hassan Fitt Vintage
@hassanfittyak99
I Was Born in 1997 From London United Kingdom I Watch a lot of 1920s and 1930s and 1940s classic movies and listen to old classic music
Romain
@32sfc46582
Was a book publisher in south of France. Had a wonderfull life until SEVERE MECFS. I want my life back (or at least 50 %) for my wife and my children... #mecfs
The Arisen Want More / 覚者たちの願い
@expanddd2
It's time to convince Capcom to make a Dragon's Dogma 2 DLC! Take up arms, Arisen, and join the fight! #TheArisenWantMore #ExpandDD2
Kate Wilson
@katewilson7267
Kid rock
@kidrock45898861
Not suffering in silence 🛌
@mecfssufferer
ME/CFS sufferer. Advocating for research on how to explain, diagnose and treat this condition. ……………………🧡 Follow me! 🧡
Mark fred
@markfred346750
###location format information #@plug#plus@formality
Rayhan Kahn
@kahn_rayha93299
Robert Chapman 💙
@rbrtchpmn
Life is for others. Existence ruined by illness. #pwME #MECFS #longCOVID #hypothyroidism
GoneSideways…Deport Musk!
@paintthatthing
Artist, New Englander, Italian-Irish, Dem since birth. We'll get through this! #HarrisWalz #VoteBlue I don't answer DMs
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
SickOfBeingSick
@dani_elle_87
We stress over everything, until we get sick. Then we realize there was only ever one thing that was really important-Our health 🫶🏻 #ME #FIBRO #POTS #MCAS
Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Entropy master
@torey_botti
Disabled (MECFS) Orthopedic surgeon. Crypto believer.