With host Haylie Pomroy, MEAct’s It'sME(Jaime) discusses how infections can lead to long-term health problems.

Watch the full podcast: brnw.ch/21wJlFp

#infectionawareness

I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024 /UniteToFight2024. Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists. VU Faculteit der Gedrags- & Bewegingswetenschappen Vrije Universiteit Amsterdam

Finally... our paper on #LongCovid is out! It's based on my tweet here.

Thanks to my amazing coauthor Monica Verduzco-Gutierrez, MD
and the amazing Ziyad Al-Aly, MD for your input and encouragement!

#MedTwitter #Neurotwitter Jacobs School at University at Buffalo American Academy of Neurology

journals.lww.com/ajpmr/citation…

Prof Nisreen Alwan 🌻 An enterprising interviewer should ask him if he's ever had a headache and then ask him to prove it.

This talk about ‘objective’ vs ‘unverifiable’ in reference to the experience of illness in general & mental health in particular hurts my brain.

Let’s say it again: symptoms BY DEFINITION are self-reported.

How can we make symptoms ‘verifiable’? By believing the patient!

Good read on the longterm findings of a tick-borne, often fatal virus, where metabolic rewiring caused long term fatigue.

“The ability to generate energy was crucial: patients whose cells had to turn to alternative energy sources to fight the virus were sicker.” #longcovid

Wow ! Up to 17 CME points for #UniteToFight2024

Big fan of Dr Jarred Younger's informative YouTube channel. Short videos, simple explanations. #LongCovid #MECFS #fibromyalgia

'Here we present recent findings in ME/CFS research focussing on proposed disease pathologies shared with long COVID.' #MECFS #LongCovid
cell.com/trends/molecul…

Really helpful rundown of where we are with H5N1 from
The Sick Times

Question for U.S. #MCAS patients taking oral ketotifen--what is the best option for obtaining? My PCP will write the script, but doesn't know where to send it (not available in regular pharmacy). I know some compounding pharmacies may have it, also some online (??)
#LongCovid

#LongCovid has given me cerebral small vessel disease, reactive gliosis, endothelial damage, reduced cerebral vasomotor reactivity, & reduced cerebrovascular reserves (lack of blood flow in the brain). This is likely what the vessels in my brain look like. This does not end well.

𝙆𝙚𝙮 𝙨𝙩𝙪𝙙𝙮
'𝗟𝗼𝗻𝗴 𝗖𝗢𝗩𝗜𝗗: 𝗽𝗹𝗮𝘀𝗺𝗮 𝗹𝗲𝘃𝗲𝗹𝘀 𝗼𝗳 𝗻𝗲𝘂𝗿𝗼𝗳𝗶𝗹𝗮𝗺𝗲𝗻𝘁 𝗹𝗶𝗴𝗵𝘁 𝗰𝗵𝗮𝗶𝗻 𝗶𝗻 𝗺𝗶𝗹𝗱 𝗖𝗢𝗩𝗜𝗗-19 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝘄𝗶𝘁𝗵 𝗻𝗲𝘂𝗿𝗼𝗰𝗼𝗴𝗻𝗶𝘁𝗶𝘃𝗲 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀'

nature.com/articles/s4138…

EIFY Yes, we showed a bit about blood vessel disruption in this paper from Oct 2022.
But I have a lot more new data I will be showing at the unitetofight2024.world meeting online next month if you are interested :)
ncbi.nlm.nih.gov/pmc/articles/P…

#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it 'pain…

Another 🔥 Tweet from Putrino Lab

#mecfs #longcovid #pwme

André Saravia The Bateman Horne Center has produced a video series aimed at clinicians which summarizes the state of scientific knowledge on PEM. youtube.com/playlist?list=…

The Guardian: “We must learn the lessons of Covid before another deadly disease strikes”

‘With new Office for National Statistics datashowing 2 million people reporting long Covid, we need to wake up…’

theguardian.com/theobserver/co…