So now the bullying tactics. Apparently, my last post looked like I was going to self-harm. Poor nurse had to ring 111 & take all my chargers off me because the manager rang him after seeing my post. She knows she's the one doing the harm. This is why I keep documenting on here.

Obs every 15 minutes. I'm not joking. BP everything. She's going to try and break me by having the nurse keep me up all night. He's so apologetic. Poor guy.

DWP cuts to PIP set to hit 'one' age group hardest claim 559 000 over 60s will lose cuts to care side of PIP, and therefore their carer's allowance £4 000 a year loss Their selling it as getting back to work, when these groups can't wash themselves, feed themselves, go to

It needs to be more widely publicised that Farage/Reform want a more insurance based health service. They need to be challenged on this in the HoC. #SaveOurNHS

‼️Hi! I'm still in need of ME advocacy in Spain or international ME advocacy. I'm severe and my health continues to decline. I'm afraid I may soon end up in the hospital and will need advocacy if that happens. If you're able to help in any way, please reach out 🙏🙏💙

Jason S Jason, they’ve breached laws & will want to justify nonsense on “MH” grounds to show they’re acting in your best interest.Don’t speak to them without a lawyer/advocate/another resident/trusted person from here. Ask to record all consultations & transcripts added to your records.

1/4 #Attention #SaveTheDate #ChronicallyIgnored #documentary From June 6th to June 20th #Online #Worldwide From June 6th (9 am, German time) to June 20th, the film "Chronically Ignored" (Original title: #ChronischKrank #ChronischIgnoriert) will be available in the English

Chillin’ at the local pub after the Invest in ME conference!

Finally watched both trailer and full video on the history of (mis)treatment of M.E. Very informative, sad and clearly demonstrates why this is called the #GreatestMedicalScandal of the 21st century #ME - thanks Adam Adam

Complex illness patients are THE most discriminated against and abandoned by the medical system, while so severely ill we should have access to at minimum palliative care. It is so inhumane that we are just left to rot and suffer with zero support like this. #Care4Complex #MAID

It was an honour to be invited to be a part of this film. Now it will be available with official English subtitles June 6 to June 20th Link below Please do watch #MECFS #LongCovid

"Margaret William's response to Prof Edwards Qeios Article With no disrespect to J Edwards structural & biochemical abnormalities & impaired muscle recovery after exercise are well-documented in #ME its difficult to understand why he doesnt recognise this" oneagleswings.me.uk/wp-content/upl…

It's really important to read Margaret Williams' response to this paper by Prof Jonathan Edwards #pwME #ME #MEcfs oneagleswings.me.uk/wp-content/upl…

Studying the blood vessels in depth seems be such a good idea for #ME research. They cover the entire body , every organ so could be responsible for the multitude of symptoms. ME Research UK any thoughts?

Last dinner after Invest in ME and OMF meetings. Wenzhong Xiao, Jonas Bergquist,, Chris Armstrong, Ron Davis, David Systrom.

Health Update. When I was admitted to hospital in April, I could walk. 2 days later, I couldn't stand or even sit in a wheelchair. The decline was profound and shocking. After 21 days in hospital, I’ve now been at home for a fortnight. While my beautiful YT community is

These MPs are voting for welfare cuts, let's tweet them

We posted an update on our petition on 4 June ‘More stress & no answers to our questions from East Sussex NHS; & update on Karen’s Hospital Stay’. To read it scroll down our petition page to UPDATES. chng.it/CGMQTDVvRb Please share. Thanks for your support. Karen & Michael

“Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest” davidtuller interviews Rob Wüst about the outcomes of this important study and it’s implications for #MECFS and #LongCOVID patient groups. #WeAreNotDeconditioned #GETIsDangerous

A maladaptive EV proteomic response to exercise in ME/cfs, is characterized by metabolic impairments, immune overactivation & ER stress response dysregulation. Provides insight into the molecular basis of PEM & suggest promising targets for improving recovery & energy metabolism