Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up

It's never easy. But there's an urgent need for these doctors to admit they got it wrong - completely and utterly wrong. That would encourage the medical profession and governments to give ME/CFS/Long Covid the serious attention they deserve.

Please help- urgent

Please sign ⬇️

To mark our second birthday as a charity we launched the LCK Discord Server to connect young people around the world living with Long Covid.
Learn more here
#LongCovid Kids #LongCovid
Long Covid Families Long COVID Europe (LCE) ApresJ20 - Association Covid Long France Long Covid SOS Long Covid Support 🌍
longcovidkids.org/so/1eOj47yS4?l…

It's LCK Educational Toolkit launch day!

1 An Introduction to Long Covid in Children 
2 Returning to Education with #LongCovid
3 The Impact of Long Covid on Education and the Family
4 Supporting Children with Long Covid in the classroom
bit.ly/46vfJx8
#LCKToolkit

We implore the UK Covid-19 Inquiry to make clear #PublicHealth messaging a priority in current and future pandemics. Alert families to risk and preventable disease.

It isn’t a job for patients.

#CovidIsAirborne
#ListenLearnHope
#LongCovidRuinsLives
#GiveUsHope

Taxi came at 4.50 am.
I had only a couple of hours' sleep. One of the problems for #LongCovidKids is chronic insomnia. Rosie has not slept even a single minute since the day before yesterday.
#giveushope
#listenlearnhope
#WeNeedAnswers

Cheering on Long Covid SOS today at the UK Covid-19 Inquiry Thanks for representing us all and giving us a chance to be heard.

Proud dad moment.

Love to all my colleagues at Long Covid Kids - #LongCovidKids at #CovidInquiry in #London today🥰
And to the families who so are bravely attending also
You're all amazing!
We're sending you strength & love from all the families in #Ireland effected by #LongCovidKids

#GiveUsHope #ListenLearnHope

#GiveUsHope #ListenLearnHope

📢 Join us in making a difference! The Long Covid Groups are taking center stage at the Covid Inquiry Hearings today. We refuse to be forgotten, unheard, disbelieved, isolated, unemployed, disabled, or immobile.
#LongCovidLivesRuined #LongCovidRuinsLives #WeNeedAnswers

My children want a safe place to learn & play They understand #CovidIsAirborne .

I am asking the UK Covid-19 Inquiry to listen + learn from the evidence @longcovidkids present today & make clear recommendations to protect their health from #COVID & future pandemics.

#ListenLearnHope

“We are still here and we must not be forgotten just because we can’t do the things we did before. We need someone who understands Long Covid to fight our corner” Rosie.

Rosie outside UK Covid-19 Inquiry representing 62,000 children in the U.K living with #LongCovid

#GiveUsHope

Children of all ages have been ignored, unsupported and left without treatment.

Please support all the Long Covid groups at the UK Covid-19 Inquiry today by sharing our posts on social media.

#GiveUsHope
#ListenLearnHope
#LongCovidKids
#LongCovidRuinsLives

Left Belfast behind. Just touched down in London.
Rosie is going to show UK Covid-19 Inquiry that #LongCovidKids is real.
#weneedanswers

I am asking the UK Covid-19 Inquiry to understand that #LongCovid has changed my child's life and our advocacy was ignored. That is why I support @longcovidkids and want the inquiry to give us answers. #ListenLearnHope #GIveUsHope #LongCovid Kids

🙌New UK Clinical Trial
🌟£1.2 million
🌟Derby
🌟Remdesivir
Led by Mark Faghy
👋 Mark - would you be able to answer anyone's questions in comments?
bbc.co.uk/news/uk-englan…

Live from the UK Covid-19 Inquiry

#GiveUsHope
#ListenLearnHope
#LongCovidKids

PIMS_Hub Long Covid SOS Long Covid Support 🌍