EMA-Workshop on generating evidence for #LongCovid and #PASC treatment

LCE will attend the panel discussion at the upcoming EU Medicines Agency workshop on 17.11.2023, along representatives from industry, academia and policy U.S. FDA.
Info & link for live broadcast: ema.europa.eu/en/events/work…

Representatives of Long COVID Europe (LCE) will be taking part in the International Conference, which aims to explore diagnostics, treatments and support for patients with #LongCovid . The hybrid meeting will take place from Dec. 7-9 in Madrid, Spain.

Wow!
Long COVID Europe (LCE) hat für die Spiele Minecraft, The Witcher 3 & Elden Ring einen ' #LongCovid Mode' entwickelt, bei dem die Spielcharaktere die Symptome von #LongCovid und #MECFS erfahren:
• Fatigue und Muskelschwäche
• Belastungsintoleranz
• Schwindel etc
Probiert es aus!

What a brilliant way to spread awareness of Long COVID and how it can change the lives of those affected by it! If you play The Witcher 3, Elden Ring, or Minecraft, check out the mods to see how Long COVID can change your life experience through gaming characters.

“I feel annoyed and sad because I can't do all the things I used to be able to... and the doctors simply don’t understand my condition.”

Jay expresses the frustrations of living with #LongCOVID , aged just 12.
👇
who.int/europe/news-ro…

#LongCOVID Mode : We're thankful for all the support we’ve received. Every retweet, every download, every scroll through our website gets us a step closer to our goal: more awareness for #LongCOVID #MECFS . There were also some questions raised which we are addressing in this QnA.

#COVID19 is no longer a Public Health Emergency of International Concern.

But the virus has not gone away.

People get infected each day.

And for millions the impacts continue long after recovery from the acute infection.

#LongCovid must be better understood by all of us.

A big thank you to the wonderful team, Garden Of Eyes (Garden of Eyes) for helping us bring this idea to life in the world of Elden Ring. Watch their full video at youtu.be/WvzjgRzOQPk #LongCOVIDMode   #mecfsawareness #MEAwarenessDay

Campaigning for #LongCOVID #awareness #MEawareness has been tough with the condition leaving us isolated from the world. #LongCOVID Mode is our attempt to safely give others a glimpse of what our life is like, while spreading awareness about Long COVID. longcovideurope.org/lcm/

In a world that is steadily forgetting about #COVID19 , it is important to remember those still suffering from its long-term effects.
#LongCOVIDMode , releasing tomorrow.
#LongCovid #MECFS #Awareness #Recognition

In a world that is steadily forgetting about #COVID19 , it is important to remember those still suffering from its long-term effects. #LongCOVIDMode , releasing tomorrow. #LongCovid #MECFS
youtu.be/K7fepqHTnIY via YouTube

The impacts of #COVID19 continue long after recovery from the acute infection for some people. Our report offers insights for policy-makers on how to ensure health systems are equipped to provide care for #longCOVID ➡️ bit.ly/3LtSWdd

#LongCOVID can affect several body systems and cause a range of symptoms. These are the most common ⬇️

More info: who.int/teams/health-c…

Following recovery from #COVID19 , it is estimated that 1 in 8 people still suffer from #LongCovid .

Together, we must step up research into its causes, consequences and treatment, with a coordinated 🇪🇺 approach.

We owe it to millions of our citizens to deliver.

#EPSCO

People are dying from #COVID19 every day, people are suffering from Post-COVID-19 ( #LongCOVID ) condition, health systems are strained, workforce is exhausted…

Over 3 years into the #COVID19 emergency, too many lives have been lost. Too many people are still suffering, including from #LongCOVID . We'll never stop demanding equitable access to life-saving tools.

We know so much more about this virus and #COVID19 , but not everything. The risk and extent of Post COVID-19 condition, e.g., is significant. When we talk about burden we must also talk about and address #LongCOVID , in addition to hospitalisation & deaths
who.int/teams/health-c…

'3 years in, more is needed to recognise, treat, and support patients with long COVID.'

On a global scale, long COVID has not received the attention or resources it deserves. Our latest Editorial addresses this: hubs.li/Q01Gbl_30

Key demands presented by LCE at today's #LongCovid workshop at European Parliament:

▪️Large-scale awareness campaigns
▪️Collection of national health data
▪️€500 mln emergency funding for biomedical research and clinical treatment trials
▪️Meaningful, high-quality patient involvement

Now live: #LongCovid workshop at European Parliament

Join the live stream: multimedia.europarl.europa.eu/en/webstreamin…

LCE presentation coming up at 11:50 am CET.