We need to stop telling patients w/ health issues post-COVID there's nothing that can be done & instead provide needed medical care & tests to check for health issues we know are arising post-COVID including issues w/ heart, GI, thyroid, nervous system, diabetes, blood clots etc!

You know it'll be an interesting day when your 1st patient with #LongCovid is currently in the hospital for #orthostatic hypotension, but is diagnosed with FND by neurology because of some tremor in her hand I really could care less about. 🧐

#DysautonomiaIsNotFND

Did you know that persistent loss of smell is a common symptom in pediatric long Covid? This can have a big impact on kids' food choices and behaviors. It's easy to miss this serious symptom in kids as they may have difficulty reporting symptoms. #COVID19 #healthawareness

Severe covid-19 infections linked to increased risk of schizophrenia newscientist.com/article/241025…

We must use every tool available to address the #LongCOVID crisis.

Grateful for the work Boston Medical Center is doing with their Long COVID Clinic & honored to host Dir. Simon of HHS.gov's Office of Long COVID Research & Practice.

We'll never stop fighting for our #LongHaulers .

Worryingly, the data suggests that the number of children with Long Covid is steadily increasing with each passing month…

…from 84k in December 2023 to over 111k in March 2024!

It’s risen by A THIRD in just 3 months.

We have a few more speakers if you like ?! ☺️

Please welcome Megan Fitzgerald Megan Fitzgerald from Patient-Led Research Collaborative !

Megan will provide insights into the reinfection study. She will talk about the effect of reinfections on self-reported measures of post-exertional malaise (PEM) 👍…

🧠🔥Brains on fire...
''My daughter's personality changed overnight - every parent needs to know the cause''
*Everyone* should know about the risk of PANS/PANDAS.
So many kids going through this right now.
devonlive.com/news/devon-new…

Take action now. Clean air benefits everyone.
#CleanAir
#COVIDIsAirborne
#LongCovidKids

Tatiana Prowell, MD I would love your advice as to how I as a parent to a #pwLC and a LC advocate, can articulate that I spend a huge amount of time reading studies, listening to researcher presentations and talking to researchers for Long Covid Families. Two years+ now.

We are so exciting to present CURE ID to Long Covid Families.

Thank you for inviting us to speak about CURE and our Long COVID treatment survey. #LongCovidResearch

Excess deaths from disease among school-aged (5-17) children in the US continue at more than 10% above the pre-pandemic baseline

Don't stop telling your covid stories!!

I told my IV nurse about my son's prediabetes from cov. Her son is the same weight and age as mine and he's having similar issues. She's now getting him tested bc of my story. We have to share our stories because doctors are not helping.

zeynep tufekci That said at least for this many of these kids never had severe illness or even known COVID. we are preliminarily also seeing a vaccine effect (which is also shaping response to hepatic impact of acute infection medrxiv.org/content/10.110…)

Children deserve our full attention when it comes to long Covid research. Let's ensure an equitable amount of funding is dedicated to pediatric studies.

To see our full statement: hubs.ly/Q02tVGmc0

#LongCovid #PediatricResearch #HealthEquity '

From the Long Covid Families Art Gallery, this week's featured artist is Gabriella, age 13.

Check out other artists in our art gallery: hubs.ly/Q02t2mNV0
#LongCovid Kids #LongCovid #Art AsAdvocacy #Art

Register to attend live or receive early access to a recording of the event. Learn more about CURE ID here.
Register for webinar here: hubs.ly/Q02ty2nV0
Learn more about CURE ID here: hubs.ly/Q02ty3_B0

Our medically vulnerable child is transitioning back to school for 1 hr a day. Her Dr. recommends anyone working with her wear a mask. Not one EPA at her school will agree to this for 15 the minutes a day they are scheduled with her! Not one! 1/

COVID’S EFFECT ON THE IMMUNE SYSTEM

🔥 This is an excellent series of graphics from Yale School of Public Health explaining what we do (and don’t) know about Covid’s effect on the immune system.

Much of this is informed by the work of Dr. Akiko Iwasaki (@VirusesImmunity).

🧵

H/t AJ Leonardi, MBBS, PhD

Register to attend live or receive early access to a recording of the event. Learn more about CURE ID here.
Register for webinar here: hubs.ly/Q02ty22z0
Learn more about CURE ID here: hubs.ly/Q02ty2ss0