Nele(@NeleHelena) 's Twitter Profileg
Nele

@NeleHelena

I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity

ID:27311171

calendar_today28-03-2009 21:21:23

4,0K Tweets

3,5K Followers

989 Following

lissa(@melissabreenx) 's Twitter Profile Photo

Have any claims of mass hysteria ever NOT been proven to be something very real? I want to write about this and why doctors, especially psychiatrists, are so obsessed with labelling things hysteria

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Nele(@NeleHelena) 's Twitter Profile Photo

I was asking chatgpt about covid safety in a very specific at home situation. And it just gave me information and was like, with you being this ill, it's better to reduce the risk as much as possible.

I wish people were like this 😭

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Ina • me/cfs(@tink_ina) 's Twitter Profile Photo

⚠️ please help ⚠️ I need to find a spine doctor/specialist that can recognize this injury & muscle condition and help me. I’m completely at loss and bed bound. Information below. Symptom list (the most important ones) in pic 3.

Please RP & share for visibility🙏🏼🔁🙏🏼

⚠️#MedTwitter please help ⚠️ I need to find a spine doctor/specialist that can recognize this injury & muscle condition and help me. I’m completely at loss and bed bound. Information below. Symptom list (the most important ones) in pic 3. Please RP & share for visibility🙏🏼🔁🙏🏼
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Tweets(@ChronicMyalgicE) 's Twitter Profile Photo

RT = 💙

is weer even (in het klein) op de kaart gezet door mijn lieve zus en haar doneeractie. We zitten al ver boven het streefbedrag dus het gaat hard! Wil jij me helpen nog meer bruggen te slaan tussen de gezonde en de zieke wereld? 👇🏼

geef.nl/nl/actie/voor-…

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Nele(@NeleHelena) 's Twitter Profile Photo

From now on, I'll only make decisions on my worst days, which are pretty standard anyway. Because on a good day (still bedbound but with less physical suffering) I overestimate what I can tolerate.

Not just me of course, we all tend to do this.


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Josh(@ProperChels34) 's Twitter Profile Photo

Saying you care and showing you care are completely different things and that is a huge issue with me at the moment

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It'sME(Jaime)(@exceedhergrasp1) 's Twitter Profile Photo

I have a thread I've been asking this question about sensory sensitivity; but it does appear to be covering information on this kind of crash: (1/6) x.com/exceedhergrasp…

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Nele(@NeleHelena) 's Twitter Profile Photo

Ik deel nog eens deze petitie voor betere zorg voor etc in België.

Er zijn vooral nog handtekeningen uit België nodig.

Dus ben of ken jij een Belg, graag tekenen en de petitie verder verspreiden in je omgeving 💙
openpetition.eu/be/%21jfzqc

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Nele(@NeleHelena) 's Twitter Profile Photo

Urgent!

A very severe patient in the Netherlands needs help.

Screenshots from her friend Nina. Shared with permission.

Please read and retweet.

You can contact her friends Fran Haddock or Marcella if you know a way to help ♡♡♡

Urgent! A very severe #MEcfs patient in the Netherlands needs help. Screenshots from her friend Nina. Shared with permission. Please read and retweet. You can contact her friends @franhaddock_ or @midheavenmoon if you know a way to help ♡♡♡
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Kendra F(@SurvivingCFS) 's Twitter Profile Photo

Black peoples experience living with mecfs is vastly different, which is why you see so little of us in these communities. If you're wondering where we are? Its somewhere being discarded and gas-lit. Period.

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Nele(@NeleHelena) 's Twitter Profile Photo

Urgent!

A very severe patient in the Netherlands needs help.

Screenshots from her friend Nina. Shared with permission.

Please read and retweet.

You can contact her friends Fran Haddock or Marcella if you know a way to help ♡♡♡

Urgent! A very severe #MEcfs patient in the Netherlands needs help. Screenshots from her friend Nina. Shared with permission. Please read and retweet. You can contact her friends @franhaddock_ or @midheavenmoon if you know a way to help ♡♡♡
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Nele(@NeleHelena) 's Twitter Profile Photo

I need health to deal with being this sick. It's a bit like needing money to deal with poverty because poverty is made expensive. Managing sick life requires much energy and a mental and physical capacity that I don't have.

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katiana mekka ❤️‍🩹🦠(@katiamek) 's Twitter Profile Photo

(1) Another health/situation update:
I've found no ME specialist knowledgable of very severe me to talk to my physician in Greece. My father is being harassing and calling my psychologist all day long to ask her to convince me I have something psychosomatic

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a n n a(@annaloecher) 's Twitter Profile Photo

Remember the Black Mirror episode ‘San Junipero’? Take me there till this disease is cured
youtu.be/qdp-Gg7e2vc?fe…

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Nele(@NeleHelena) 's Twitter Profile Photo

I really hate it when people think that what I can or can't do with my is negotiable.

Do you really think that if I could do more than I do now, I would have waited for you to tell me 😅

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Nele(@NeleHelena) 's Twitter Profile Photo

Petitie van Not Recovered Belgium voor betere zorg voor etc in België.

Graag tekenen!

Nederlanders mogen dit ook steunen, tekenen en delen ♡
openpetition.eu/be/petition/on…

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Paula Knight(@Paula_JKnight) 's Twitter Profile Photo

Anyone who says patients are 'anti-recovery' is so far removed from our reality that they shouldn't be allowed anywhere near patients. To show such cruel disregard is anti-patient, self-serving and egregious.

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Sas Willems(@SasMECVS) 's Twitter Profile Photo

Binnen 2 weken is het zo ver. Dan gaat de Benefiet voor Long Covid, ME/CVS, POTS en Lyme patiënten door in Putte.
Je kan de hele namiddag vrij binnenlopen op dit tuinfeest (met overkapping). Allerlei eten en drinken wordt aangeboden. Verder worden er hand- en kunstwerkjes

Binnen 2 weken is het zo ver. Dan gaat de Benefiet voor Long Covid, ME/CVS, POTS en Lyme patiënten door in Putte. Je kan de hele namiddag vrij binnenlopen op dit tuinfeest (met overkapping). Allerlei eten en drinken wordt aangeboden. Verder worden er hand- en kunstwerkjes
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