There’s more I wanted to post this week, but I’ve so hit my wall and beyond. I’ve planned an #AdvocacyRespite … starting tonight
See you in June, keep me posted and I’ll share when back… #LongCovid #MECFS 🫂

This looks amazing for activists & advocacy and free if you are.
WorkingAndNotWorkingWithLongCovid
JellyBabyKid
It's M.E. Linda 💙 😷
Ben Claimant 💚 Join a Union
PenScribbler
paula peters
Long Covid SOS
Long Covid Support 🌍
Key Workers Petition UK
Dr Alison Twycross RN
crr
Long Covid Advocacy 💙
@TheChronicCollaboration
#MECFS
#LongCovid

Long Covid Support Long Covid Support 🌍 has provided written evidence to the DWP Works & Pensions Committee inquiry on #disability #employment to make clear the key issues faced by people with Long Covid. Thanks to Dr Jenny Ceolta-Smith (PhD OT) crr You can read it here longcovid.org/impact/stories…

Calling UK healthcare professionals #AHP I have written an Open Letter to the Royal College of Occupational Therapists Royal College of Occupational Therapists asking for a public response to the Government's harms to #DisabledPeople Please consider signing and sharing #DWPHarmsHealth openletter.earth/open-letter-ca…

Royal College of Occupational Therapists RCOTStudents RCOT Welsh Policy Professional Adviser Gen Professional Adviser Lauren Director- Practice & Innovation Karin Karin Bishop RCOT_PLD Professional Adviser Sally Steve Tolan Dr. Blaine Robin PhD Linda Hindle OBE Suzanne Rastrick WeAHPs 💙 Chartered Society of Physiotherapy My Open Letter above is evidence based, + on personal lived experience. I will forward the citations as don't seem to appear in the Open Letter link . This is one of the citations by china mills (she/her) and Disability News Service
journals.sagepub.com/doi/full/10.11…
journals.sagepub.com/doi/full/10.11…

1/ Dear Royal College of Occupational Therapists Steve Ford Odeth Richardson: she/her/hers Dr Anita Atwal Kalimah Ibrahiim MPH FRSPH and all council members
I will formally write to you along side this Open Letter
in the coming weeks once it has been shared & considered by anyone who wants to sign it.
RCOT Campaigns, Policy & Public Affairs #ValueOfOT #OT

NEW: The DWP is rejecting more than 40% of applications for PIP disability benefit from people with multiple sclerosis, cerebral palsy and arthritis – and one in four applications from amputees

By me, for the Observer 👇theguardian.com/society/articl…

Hey #LongCovid people, I increasingly have this unpleasant symptom where my eyes water and sting so much that I have to shut them.
Does anyone else have this?

I Still Feel Free

I haven’t felt the wind on my back in 11 years.  But I still feel free.

I haven't touched a woman with love in 12 years.  But I still feel love.  

♿️ 𝘕𝘖𝘞 𝘔𝘖𝘙𝘌 𝘈𝘊𝘊𝘌𝘚𝘚𝘐𝘉𝘓𝘌 𝘖𝘕 𝘔𝘠 𝘞𝘌𝘉𝘚𝘐𝘛𝘌 𝘞𝘐𝘛𝘏 𝘈 𝘝𝘖𝘐𝘊𝘌 𝘙𝘌𝘊𝘖𝘙𝘋𝘐𝘕𝘎

Pallavi Devulapalli Larry Sanders Zack Polanski This here is the link:
gmc-uk.org/pa-and-aa-regu…

Thank you all VERY much for your advocacy and your continued support on this issue.

petition.parliament.uk/petitions/6512…
SADLY WITH JUST UNDER A MONTH TO GO I HAVE FAILED TO GET THE DESIGNATED NUMBER OF SIGNATURES REQUIRED TO HAVE THIS DEBATED IN THE COMMONS,THIS AFFECTS EVERYONE BUT PEOPLE AREN'T INTERESTED AS THEY THINK IT WILL NEVER HAPPEN TO ME UNTIL IT DOES
I HAVE TRIED

Wow. I have deteriorated massively in the 2 years since I posted this tweet💔. I’d give anything to go back to the second photo never mind the first.

#SevereME

No recognised treatments and no support from the NHS. We desperately need change.

#MEAwarenessDay

We Remember them
And Fight for the Living.

#MEAwarenessDay

I am:
A journalist
A girlfriend
A bereaved mother
A social media manager
A Taylor Swift fan
A lover of sushi
A wearer of bows
A person with ME

For me, it’s a big part of my identity. It’s changed my life. But I’m still me without ME 🤍

#WorldMEDay

‘Health workers claim Scotland is ignoring those affected by #LongCovid with gaslighting and discrimination throughout the #NHS .’
Thank you CM they/them ASD EDS MDD OA etc for speaking out, supporting so many, and all of your advocacy
Key Workers Petition UK
Scottish Healthcare Workers Coalition
sundaypost.com/fp/nhs-workers…

It's World ME Day - #MyalgicEncephalomyelitis is more common than you realise. It is EVERY health professional's duty to be aware of how to work safely with #pwME

#WorldMEDay
Chartered Society of Physiotherapy Chartered Society of Physiotherapystudents World Physiotherapy Royal College of Occupational Therapists