A great example 👇 as to why any #DWP covert surveillance of people claiming #Benefits with #EnergyLimitingConditions #MECFS #LongCovid #PEM #PESE is not fit for purpose : You may see us doing something, but you won’t see us ill and doing nothing …
Long COVID Physio Long Covid Support 🌍

The problem is, as we have discovered, the charity's don't want to collaborate. Hence, @TheChronicCollaboration. Otherwise this is exactly what needs to happen...👇✊️

We saw George Monbiot's calls for an ME Inquiry. This got Hannah Sharland thinking: who could possibly stand in the way?

Well, there's one weasely person who could - & here, Hannah dissects his track record. Important read #BringMillieHome #DontLetMEDie :
thecanary.co/opinion/2024/0…

'Research into [ #MECFS ] is lagging decades behind because society doesn't take it seriously enough' Professor Chris Ponting

Highlights also include the brief introduction not available in the videos being shared.

We are thrilled to announce that we have secured funding for a research project looking at vagus nerve stimulation for people with ME 🥳

More details in our newest blog post.

This project is in early stages and not yet recruiting - updates will follow

physiosforme.com/post/funding-s…

I really admire how Jo Hunt (Jo Hunt (activism, also @JoElizaHunt for papers)) manages to produce a stream of interesting papers despite serious disability. This is her most recent.

With thanks to Alec Finlay (dailies) @alecfinlay.bsky.social Aly F & The Polyphony for this piece.

In dialogue with Alec Finlay - thank you for inviting me into gentle conversation & giving me space to reflect on themes of witness & considering the process of creating #MovingMountains Footnote Press

A delegation of disabled activists will travel to Geneva this week to help the United Nations hold the UK government to account for its continuing breaches of the UN disability convention.
buff.ly/4a7IXnL

‘An anthology to treasure and return to’ ELINOR CLEGHORN
‘Uniquely compelling, dynamic and powerful’ LUCY JONES
‘Deeply affecting’ TOM SHAKESPEARE
‘Promises to change the landscape of nature writing’ LIZZIE HUXLEY-JONES

WITH A FOREWORD BY SAMANTHA WALTON

footnotepress.com/books/moving-m…

#CRDP24
Evidence of #DWP harms to #DisabledPeople living with #LongCovid
From our joint Trades Union Congress and Long Covid Support 🌍 report :
tuc.org.uk/research-analy…
Ben Claimant 💚 Join a Union
paula peters
DPAC
DPAC Sheffield #DontVoteLabour 🏳️‍⚧️🏳️‍🌈♿️
Rachel Charlton-Dailey 💖💜💙
Chronic Illness Inclusion
PenScribbler
crr
#PIP #WCA

It is hard to overstate how despicable the UK govt's performance was just now at the #CRDP24 #CRPD24 . So, I've tried. Here's my look at what just went on in that meeting: gaslighting, lies, misrepresentation, & shame DPAC @TheChronicCollaboration READ:
thecanary.co/editorial/2024…

It's like we're almost exactly 4 years into a virus that is known to cause long term health problems or something

This is awful news. Paul’s life and his tenacity and bravery were astonishing. That one of the last polio survivors - who lived much of his life in an iron lung - was killed by covid is such a devastating symbol of how society has failed to protect disabled people in the pandemic

#CRDP24

On Monday 18th March 2024 The UK Government will be presenting its evidence to UNCRDP committee in Geneva

You can watch session here webtv.un.org/en/asset/k1s/k…
Time: 2pm to 3.30pm GMT UK Time

Use hashtag #CRDP24 DPAC activists will be there live tweeting

Great to see this University of Oxford research underlining what we know - privatisation of healthcare reduces quality of care, increases unnecessary deaths and fuels inequality. Citizen Network Research

Out now!

#EverydayCitizenship

So pleased - a big thank you from Wendy and I to

Red Press Ester Ortega Clare Tarling

and to all the people who read and reviewed it

citizen-network.org/news/out-now-e…

Great piece, but on the social politics it’s a shame George’s work has overlooked all the work by disabled women (including us #pwME ).

In my exp, there are 2 parallel processes of women’s testimonies being sidelined: one we know lots about, the other is normalised.

‘There’s a culture and attitude that M.E. doesn’t exist’, says father whose daughter died with the disease

channel4.com/news/theres-a-…

Thank you JANE DODGE and Channel 4 News for this powerful report on the need for change in the way we treat people with ME

So grateful to everyone involved in the excellent Channel 4 News piece on #ME #ME cfs #pwME , especially Clare Norton & Sean O'Neill.

#channel4