22Q11 Ireland
@22q11_ireland
Parent group raising awareness of #22q
Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
ID: 1566409892
http://www.22q11ireland.org 03-07-2013 18:30:17
71,71K Tweet
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Paul71
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Catherine Ardagh TD
@cardagh
TD, Solicitor, Irish Mammy and likes to use twitter to amplify amazing women in all walks of life x x (shares are not always endorsements but mostly)
Rare Disease Day
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29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EURORDIS-Rare Diseases Europe
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An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
RCSI
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RCSI University of Medicine and Health Sciences. Ranked #5 in the world for SDG3 'Good Health and Well-being' in the THE Impact Rankings 2024.
Dr. Kevin Breslin|Dr. Caoimhghín Ó Breasláin
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Science is Globalism. PhD & MSci (Computer Science & Intelligent Systems), MPhil(Electronic and Electrical Engineering), MSci (Applied Maths & Physics), MInstP
Inclusion Ireland
@inclusionire
The National Association for People with an Intellectual Disability. A RT/Fav is not necessarily an endorsement. Acc operated Mon-Fri 9am-5pm. CHY No. 7709.
Mike Masterson
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Procrastinator extraordinaire! Predominantly retweets. Knows a little about disability hopefully.
🟥 Just here for the chats #IStandWithJKRowling
@elliejames13
Dubliner. Lawyer. Second wave feminist. Sex Not Gender. #IStandWithJKRowling #IStandWithMayaForstater "The Truth must dazzle gradually Or every man be blind"
Linda Doyle
@lindadoyle
Provost & President, Trinity College Dublin @tcddublin | Chair, League of European Research Universities @LERUnews | She/her
Health Research Charities Ireland - HRCI
@hrcireland
National umbrella org supporting 45+ charities active in health, medical & social care research. Also run the Irish Health Research Forum. Charity No. 20052973
Jenny Preston (Mrs D’Arcy in personal life)
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Patient & Public Involvement Policy Manager/University of Liverpool. PhD student. All views my own. Read my latest #Research rdcu.be/didTK
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50:50 Respiratory CNM 2 , Respiratory Integrated Care DNW &Connolly Hospital. London NHS 2010-2022
Rare Diseases Ireland
@rarediseasesie
Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
Beacon for Rare Diseases
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Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Joe McVeigh
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Head of Discipline of Physiotherapy @UCC. Research: MSK, Pain, FMS, VR4Rehab. Section Editor ARRCT @archivesoa. Occasional cyclist. Belfast & Cork. Opinions own
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Family Carer, Ex CEO @Inclusionire, Facilitator, RGN. 50/50 Irish Moroccan. Widowed too soon #UNCRPD #Advocacy
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MedEd research @UniofNewcastle | @ClinEdResearch | @asmeofficial | Qual research | Ex-Dr | Poetry, philosophy + theory | Disabled | Autistic
Tallaght Community School
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Balrothery, Tallaght, Dublin 24. Email:[email protected] Telephone :014515566 Learning together Everyone matters Every moment counts
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Associate Dean for Global Engagement | Associate Professor I Researcher| #UCD #FulbrightScholar |Paediatrics I PhD I RCN|#RareDiseases #RAIN Views are my own
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HSCP Regional PEC, Occupational Therapist, Quality Improver, #QCommunity, Public Health advocate & lifelong Waterford hurling fan! Only my own views here.
Atif
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Dr Colm Henry, CCO HSE Ireland
@ccohse
Chief Clinical Officer, Health Service Executive, Ireland Views my own. Follow @hselive for official comment
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RANP ARAU/ GEDI Team at TUH with a background in gerontology and emergency nursing, RNP, MSc, FFNMRCSI
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I need to know
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Parents’ Support Group, providing support, whilst advocating for our children & promoting inclusion & acceptance. “A Voice For Autism In Our Local Community”
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Presidente de ADCUM - Errores Innatos del Metabolismo. Directora General de FECROG - Federación Pediátrica de Enfermedades Crónicas y/o Genéticas Perú
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Prof of Leadership Practice, UCC. Visiting Research Prof, NCI. Newport, Mayo. The Oscars. Tuambabiesfamilygroup
Niall Moore
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Zoology tcd 2020-2024 🦭 | Genomic Medicine tcd 2024 - 2025 🧬
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Mayo Mad, Sports Crazy, Sea lovin’ Senior Registrar CAMHS. (Retweets are not necessarily my views, my views are personal and not representative of my employer)
PPI Ignite Network Ireland
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A shared voice for Public and Patient Involvement in health and social care research in Ireland. Every voice matters.
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DarkCyster Cáit 🇮🇪
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Children's Health Ireland
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Children's Health Ireland official account. Our vision: Healthier children and young people throughout Ireland.
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News Reporter @MetroUK || always happy to chat at [email protected]
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Learning to Adapt & Survive with Courage & honour
Marie Smith
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Candidate Advanced Nurse Practitioner (Neurovascular), Tallaght University Hospital
North East & Yorkshire Genomics
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You're cute jeans
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Doctor, mostly for children. She/Her. AssProfUCD, Med Council President. NSAC. Trustee LGBT Ire, Cheshire Ire. Opinions mine @itsthatgirlsuzi.bsky.social
RARE Ireland
@rareireland
We are a parent led charity organisation founded since 2017 providing support for families of children with rare conditions in Ireland-RCN 20206340 #rareireland
Paula
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I support @encephalitis International & @ocdaction @epilepsyaction volunteer & #OCDAdvocate, @cbituk, Global #EncephalitisAwareness #OCDAwareness.
Jane Gunn
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Clinical Nurse Specialist-Children’s Cleft Lip & Palate. Opinions my own (sorry!). 3 daughters, 1 husband. Believer that tea & chocolate cures all ailments.
Dr Richard Hirschson
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Physician, Intensive Care, pandemics, economics, libertarian, gambler. No financial/medical advice here. #H5N1 #BirdFlu #MPOX #DiseaseX #Stagflation #Gold
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Working at National Safeguarding Office, HSE. Views my own
Tallaght University Hospital Foundation
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