22Q11 Ireland
@22q11_ireland
Parent group raising awareness of #22q
Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
ID: 1566409892
http://www.22q11ireland.org 03-07-2013 18:30:17
71,71K Tweet
4,4K Followers
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Senator Mark Daly
@senatormarkdaly
Senator in Senate of Ireland - 26th Chair of the Senate of Ireland 🇮🇪 American Irish State Legislators Caucus 🇺🇸 @AmericanIrishSL
Niall Harbison
@niallharbison
On a mission to save 10,000 dogs a month. Living in Thailand. Read more about the dogs and help out on the link below
Catherine Ardagh TD
@cardagh
TD, Solicitor, Irish Mammy and likes to use twitter to amplify amazing women in all walks of life x x (shares are not always endorsements but mostly)
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Tom O'Dowd
@todowd
GP West Dublin. Past President Irish College of General Practitioners. Emeritus Prof of GP, Trinity College Dublin. All views are my own.
RCSI
@rcsi_irl
RCSI University of Medicine and Health Sciences. Ranked #5 in the world for SDG3 'Good Health and Well-being' in the THE Impact Rankings 2024.
Inclusion Ireland
@inclusionire
The National Association for People with an Intellectual Disability. A RT/Fav is not necessarily an endorsement. Acc operated Mon-Fri 9am-5pm. CHY No. 7709.
Kim Ozano
@kim_ozano
Public health researcher, passionate about participatory research & co-production. Director of @SclAgency and host of @podcast_CCS. Find me on Bluesky @kimozano
Vincent McDarby
@vincentmcdarby
Chartered Clinical Psychologist, Chartered Health Psychologist, 2022 President @PsychSocIreland
Munster Technological University
@mtu_ie
Munster Technological University is a multi-campus technological university, with six campuses across the South-West region in Cork and Kerry. RCN: 20206029
Damien Tiernan
@damienwlr
“Hello there and a very good morning to you…” 5 outta 6 Local Station of the Year! Award winning prog!#deisetoday on #wlr
EUPHA
@euphacts
The European Public Health Association, or EUPHA in short, is an umbrella organisation for public health associations and institutes in Europe.
Jennifer Carroll MacNeill TD
@carrolljennifer
Minister for Health. Fine Gael TD for Dún Laoghaire.
Dr Sanil Rege FRANZCP | MRCPsych
@sanilrege
Psychiatrist blending neuroscience with real-world practice. Insights beyond the textbooks, made actionable. Follow for clear, practical takes.
Health Research Charities Ireland - HRCI
@hrcireland
National umbrella org supporting 45+ charities active in health, medical & social care research. Also run the Irish Health Research Forum. Charity No. 20052973
Irwin Gill
@irwingill
Dubliner and double Dada. Paediatrician: Disability & Rehabilitation. Much less grumpy IRL. ❤: family, travel, wildlife, music,films, books,food,fairness.
Brainworx
@brainworx_irl
Brainworx was formed to supply psychometric tests to Psychologists, Occupational Therapists, Speech and Language Therapists and those in Education.
HealthResearchBoard
@hrbireland
Supporting research to improve people’s health and to enhance healthcare delivery. #ResearchEvidenceAction
Dr Amanda (Tivnan) O’Sullivan
@tivnana
Wife. Mammy. Doctor in genetics. Home school educator. Neurodivergent advocate. Belief in transparency, accountability, knowledge and research-led medical care.
Rare Diseases Ireland
@rarediseasesie
Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Lorraine Dempsey
@lordempsey
Family Carer, Ex CEO @Inclusionire, Facilitator, RGN. 50/50 Irish Moroccan. Widowed too soon #UNCRPD #Advocacy
Chris Palmer, MD
@chrispalmermd
Harvard psychiatrist working at the interface of metabolism and mental health. Author of Brain Energy. brainenergy.com.
Claire McCarrick
@clairemccarrick
Mental health nurse (RANP Consultation Liaison Psychiatry) who likes to downward dog on occasion 🧘 Views are solely my own!
Emily Farran
@ekfarran
Professor of Psychology- spatial cognition in typical & atypical development, STEM. UKRN Institutional Lead. Advocate of transparent & open research.
Dr Suja Somanadhan
@sujas15
Associate Dean for Global Engagement | Associate Professor I Researcher| #UCD #FulbrightScholar |Paediatrics I PhD I RCN|#RareDiseases #RAIN Views are my own
Laura Durcan
@rheum2improve
Rheumatologist, lupus doc. Always on a crusade! Tweets personal, medicine and life. @rcsi_irl. @beaumont_dublin @ihca
Olivia Wall
@olivia_wall_
HSCP Regional PEC, Occupational Therapist, Quality Improver, #QCommunity, Public Health advocate & lifelong Waterford hurling fan! Only my own views here.
Una Martin
@unamart63837989
Advanced nurse practitioner. Passionate about caring for patients living with arthritis. Happy in the garden. Views are my own.
BendyBrain: Dr Jessica Eccles
@bendybrain
hypermobility + related conditions brain-body neuro research @bsmsmedschool | Chair RCPSYCH NDPSIG | Linktr.ee/bendybrain | @bendybrain.bsky.social
Dr Colm Henry, CCO HSE Ireland
@ccohse
Chief Clinical Officer, Health Service Executive, Ireland Views my own. Follow @hselive for official comment
Sally Ann Lynch
@annnlynch
Geneticist Cyclist Baile Átha Cliath views my own
Senator Aubrey McCarthy
@carthy_aubrey
Senator in Seanad Éireann | 🤝 Advocate for Homelessness, Rehabilitation, Education & Sustainability | 🌍 Founder @TiglinIreland
Sarah Wynn
@swynn_unique
CEO @unique_charity. All views my own.
ESHT Young People's Healthcare Transition Service
@esht_rsgh
A small team working to support empowering positive transfers from Paediatric to Adult Services ([email protected] )
Dr Sinéad Mullally
@sineadmullally4
Academic Researcher with special interests in neuropsychology, neurodivergence, and the impact of trauma on development.
GenomeArc
@genomearc
Accelerating #Genomic Medicine for Healthier Future!
CHI at Crumlin
@chiatcrumlin
Children's Health Ireland at Crumlin official account. This account has now moved to one Children's Health Ireland account: @CHI_Ireland
Emily Hotez, Ph.D.
@emilyhotezphd
Assistant Professor and Developmental Psychologist-Researcher @AIRPNetwork @UCLA_GIMHSR @UCLAHealth @UCLA | Neurodiversity, HigherEd, Health and Well-Being
EPIC Think Learn
@epicthinklearn
Providing services and resources for parents and teachers of neurodivergent children. University of Edinburgh. Free materials at epicthinklearn.com
Angela Carey
@angelacarey26
Interests: Quality patient care, improved patient experience, supporting staff, supports for young adults with intellectual disability. Opinions posted my own!
REO HSE West North West
@tony_canavanhse
Regional Executive Officer for HSE West North West division, Tony Canavan
Irish Doctors Orchestra
@irishdoctorsorc
Grupa dochtúirí éireannacha.Orchestra made up of doctors,medical students and healthcare workers from across Ireland.Signup: forms.gle/db6PTLzoc71T8X…
Doctors for Universal Healthcare
@doctorsforuhc
We are doctors who work in Ireland, who believe that we can implement universal healthcare. We cannot afford not to. #DoctorsForUHC #Slaintecare
Department Public Health HSE Dublin & South East
@publichealthdse
Providing the latest Public Health alerts and advice for the Department of Public Health HSE Dublin & South East. Not monitored 24/7 #ForUsAll
Nursing DkIT
@nursingdkit
Undergraduate and Postgraduate Programmes in Mental Health, General and Intellectual Disability Nursing
Manchester Rare Conditions Centre
@mft_imrare
Official Manchester Rare Conditions Centre account. Improving lives of people with rare conditions
General Practice Advanced Nurse Practitioners
@gpanpireland
A growing group of Advanced Nurse Practitioners in Primary Care
Autismoproject
@autismoproject
PxP
@pxphub
👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
Carlow Kilkenny ICPOP
@cwkkicpop
Carlow Kilkenny ICPOP is a community based, consultant led specialist multidisciplinary team. This account is not monitored and is not a source for referrals.
All-Island Educational Neuroscience
@island_all_neur
NDP SIG
@rcpsychndpsig
Neurodevelopmental Psychiatry Special Interest Group at the Royal College of Psychiatrists (@rcpsych).
JARDIN Joint Action
@jardin_eu_ja
JARDIN is created to improve the accessibility of the ERNs for people living with rare diseases or complex conditions in EU member states.
EQUIPS Research Network
@equipsirl
Account for the Irish Evidence-Based QUality Improvement and Patient Safety (EQUIPS) Research Network based @CIHS_Trinity Network co-funded by HRB and HSE NQPSD
Brain and Genomics Hub
@braingenhub
Advancing research to improve the lives of people living with severe mental illness. Funded by UK Research and Innovation as part of the Mental Health Platform.
Eoghan de Barra
@eoghandeb
Infectious Diseases physician Dublin, Ireland.
Eilísh Hardiman (she/her)
@ceohardiman
Strategic Programme Director CHI views are personal, RT’s not an endorsement
CHI at Temple Street
@templestreethos
Children's Health Ireland at Temple Street official account. This account has now moved to one Children's Health Ireland account: @CHI_Ireland
Róisín Egenton
@roisinqps
HSE General Manager @NationalQPS Passionate about improving quality, safety & communication in healthcare. Mom👧🏼👦🏼🐕🐕🐈Musician🎻🎙2000 Rose of Tralee🌹
Marie Smith
@maruska5678
Candidate Advanced Nurse Practitioner (Neurovascular), Tallaght University Hospital
Amanda Casey
@amandac62359371
HSE Chief Social Worker
Nicky Whiffin
@nickywhiffin
Associate Prof & Henry Dale Fellow @bdi_oxford @HumanGeneticsOx | Computational Rare Disease Genomics | Non-coding | @StAnnesCollege | @nickywhiffin.bsky.social
Sandra Broderick
@s_broderick1
Regional Executive Officer - Health Service Executive Mid West Region
Suzanne Crowe
@itsthatgirlsuzi
Doctor, mostly for children. She/Her. AssProfUCD, Med Council President. NSAC. Trustee LGBT Ire, Cheshire Ire. Opinions mine @itsthatgirlsuzi.bsky.social
RARE Ireland
@rareireland
We are a parent led charity organisation founded since 2017 providing support for families of children with rare conditions in Ireland-RCN 20206340 #rareireland
Adam McNamara
@sciencesplained
An #animation specialist working in #scicomm (science communication) #citizenscience. I'm a #neuroscientist, occasional painter and #bamboo lover.
Jane Gunn
@gunn_jane1
Clinical Nurse Specialist-Children’s Cleft Lip & Palate. Opinions my own (sorry!). 3 daughters, 1 husband. Believer that tea & chocolate cures all ailments.
Mental Health Commission Ireland
@mhcireland
Regulator of Irish inpatient #mentalhealth services. Account not monitored 24/7. If in crisis, call the Samaritans on 116 123.