📣 💐📚Happy book day to me! DISABILITY INTIMACY has been a labor of love that I worked on for the last 2 years. I hope you enjoy it.

bookshop.org/p/books/disabi…

TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 TIME
time.com/6964230/akiko-…

Today, we’re launching a new in-app research study into reinfections with Patient-Led Research Collaborative🚀

It’s been widely reported by people with #LongCovid & #MECFS that infections can have a significant impact on long-term symptoms

With your help, we can better understand this phenomenon 🧵

Attention all-exciting news! 🌟We heard your feedback! We've made some changes to make our CURE ID #LongCovid case report form faster, smoother and more user-friendly. Share your treatment experience today!
#LongCovid Awareness

In February 2024, science writer Ed Yong hosted a new birding club, just for #COVID long-haulers. He hopes to offer long-haulers community and an accessible way to enjoy nature.

Read my latest Audubon Society story, with tips on starting a local club!

audubon.org/magazine/new-b…

'We need more money to do the kind of research that is necessary to come up with a treatment.'

Bernie Sanders speaking on #LongCovid and his recent moonshot proposal.

Excited to share the first Long COVID Keystone report: Long COVID and post‐acute sequelae of SARS‐CoV‐2 pathogenesis and treatment: A Keystone Symposia report - Durstenfeld published in Annals of the New York Academy of Sciences nyaspubs.onlinelibrary.wiley.com/doi/10.1111/ny…

We are thrilled about Bernie Sanders' proposed legislation for a #LongCovid moonshot of a mandatory $10b in research funding!

Please see our joint press release with Long Covid Moonshot here: patientresearchcovid19.com/press-releases/

Truly could not be more excited for this 😭

Thank you Bernie Sanders for your leadership, thank you Michael Peluso, MD for calling for this with me in our Nature comment, and thank you Long Covid Moonshot & entire #LongCovid community for getting us to this point!

sanders.senate.gov/press-releases…

UC San Francisco #LIINC study on SCV2 protein persistence up to 14 mon post-COVID in The Lancet Infectious Diseases .

Now need to study this systematically in larger cohorts to pin down what it means. Does it have consequences? #LongCOVID ?

Thanks PolyBio NIH for support

thelancet.com/journals/lanin…

🚨 Bay Area — SFDPH will stop protecting patients in healthcare next month. Pls consider joining this action on 4/16 to protest.

Mine & millions of lives were destroyed by an infection, & anyone pretending this policy will not result in more harm, has no place in healthcare.

“There is pain in this country right now.. you know COVID itself, there are millions of people with #LongCovid .. kids are not going to school the way that [they used to]..” — Bernie Sanders with Jon Favreau on Pod Save America

Join us Tuesday April 16!

Thanks to donations, we've been able to purchase and send almost 5000 eSims for Palestinians!

I'm so grateful to be in partnership with jane shi | 皮爬高 & Leah Lakshmi Piepzna-Samarasinha

Donate: chuffed.org/project/crips-…

More about project: disabilityvisibilityproject.com/2023/12/25/cri…

Thank you nature for highlighting some of the tireless work done by pw #LongCOVID like Lisa McCorkell and LongCovidPharmD. Patient-led research enriches all aspects of clinical research and I’ll never not be grateful to my colleagues with lived experience who teach me every day

The fight against long COVID is not just a medical one. It is a moral one.

Long COVID can have devastating consequences and too many people now face debilitating symptoms as a result.

How many Americans need to suffer before Congress acts boldly to address this crisis?

Spotlighting the people with #LongCovid who became patient activists and citizen scientists, shaping the research initiatives to find effective treatments
nature.com/articles/d4158… nature Patient-Led Research Collaborative Lisa McCorkell Hannah Davis Open Medicine Foundation It'sME(Jaime)

.RemissionBiome MECFS/LongCovid Self-Experiment is in Science News!

sciencenews.org/article/patien…

'Patient-led research “moves orders of magnitude faster than traditional modes of research,” Putrino Lab says, because it focuses on the questions that are of greatest concern to patients, leading more quickly to

On #LongCOVID AwarenessDay , the global #LongCOVID community & allies came together to raise awareness & educate the public & various stakeholders about #LongCOVID & it's devastating, systemic impacts, & our community's needs.

#C19LAP Summary & Resources:
longhauler-advocacy.org/so/e9OvIUhQ9?l…