Hi All! Please go 'vote up' our ideas in the Long COVID Healthathon and 'subscribe' to our ideas to give us points!

1.Enhancing the C19LAP patient developed Long COVID Model of Care longcovid.crowdicity.com/post/821861

2.Creation of a Long COVID Database & resuorce Hub…

We must use every tool available to address the #LongCOVID crisis.

Grateful for the work Boston Medical Center is doing with their Long COVID Clinic & honored to host Dir. Simon of HHS.gov's Office of Long COVID Research & Practice.

We'll never stop fighting for our #LongHaulers .

DOL and OSHA are interested in hearing about practices and policies that succeeded in your workplace during the COVID-19 pandemic, as well as the challenges and struggles you faced during its various phases.

movingforward.ideascale.com/c/home?submiss…

DOL and OSHA are interested in hearing about practices and policies that succeeded in your workplace during the COVID-19 pandemic, as well as the challenges and struggles you faced during its various phases.

movingforward.ideascale.com/c/home?submiss…

Tomorrow/ Tuesday 4/23 is the last day to provide feedback to Senator Sanders #LongCOVID Moonshot proposal. We ask that you provide feedback asap to [email protected]

C19LAP's Major Feedback to Echo:
- $1B annually for research alone is insufficient, and Long…

Tomorrow/ Tuesday 4/23 is the last day to provide feedback to Senator Sanders #LongCOVID Moonshot proposal. We ask that you provide feedback asap to [email protected]

C19LAP's Major Feedback to Echo:
- $1B annually for research alone is insufficient, and Long…

#C19LAP member, division lead & 4 year #Longhauler Tammy Wilshire speaks with Pfizer Inc. for their “Dear Scientist” series.

Pfizer is developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.

sponsored.bostonglobe.com/pfizer/long-co…

C19LAP believes this request should be a minimum of $3B annually for #longcovid research & that the education aspects as listed will not serve to produce or facilitate the level of public and clinician education needed.

We are calling for an increase to funding for BOTH…

#C19LAP member, division lead & 4 year #Longhauler Tammy Wilshire speaks with Pfizer Inc. for their “Dear Scientist” series.

Pfizer is developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.

sponsored.bostonglobe.com/pfizer/long-co…

PBS is asking how #CDC changes to #COVID guidelines impact those with disabilities! pbsnewshour.formstack.com/forms/covid_is…

#LongCOVID

This is great opportunity to get involved with government (OASH & Office of #LongCOVID Research & Practice) and help provide your ideas and solutions to Long COVID! Please review the following and participate! Instructions on how to do so also below!

Health+ Long COVID…

This 12-year-old boy describes his 4-year battle with the 'invisible' disease of long COVID: 'It's very unpredictable. It goes in waves. But it's always there. It never leaves.'

trib.al/s86iDcW

Earlier this week, Senator Sanders released a draft of the 'Moonshot Bill,' which would provide $1B annually to Long COVID for research. You can read the bill here: sanders.senate.gov/wp-content/upl…

The office is requesting feedback by April 23rd. You can send feedback here:…

Check out this great opportunity to get involved in government (OASH | Office of Long COVID Research & Practice) actions to better understand Long COVID by providing your ideas and solutions to #LongCOVID !
The opportunity to contribute ends soon!
longhauler-advocacy.org/so/f0Owgmut-?l…

The findings, published by a UC San Francisco/Harvard Medical School team, found that proteins created by the virus were still present for up to 14 months in a quarter of people tested. This demonstrates SARS-CoV-2 viral persistence as an urgent area of research underlying a…

TW: Cancer in Long COVID

“…all patients should be regularly screened for cancer after SARS-CoV-2 infection, as the virus has been shown not only to affect cancer progression but also to induce oncogenesis and cancer recurrence.” ncbi.nlm.nih.gov/pmc/articles/P…

New study opportunity for residents of South Florida who have recently had #Covid !

There is a new study opportunity for residents of South Florida who have recently had #LongCovid . COVID UPP, which stands for COVID-19: Understanding the Post-Viral Stage, is a research study…

This is great opportunity to get involved with government (OASH & Office of #LongCOVID Research & Practice) and help provide your ideas and solutions to Long COVID! Please review the following and participate! Instructions on how to do so also below!

Health+ Long COVID…

C19LAP is proud to partner with Solve ME for their upcoming advocacy week! This year we will be pushing collectively for an entity at NIH for Infection-Associated Chronic Conditions research!

Learn more here: solvecfs.org/advocacy/advoc…