#C19LAP member, division lead & 4 year #Longhauler Tammy Wilshire speaks with Pfizer Inc. for their “Dear Scientist” series.

Pfizer is developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.

sponsored.bostonglobe.com/pfizer/long-co…

C19LAP believes this request should be a minimum of $3B annually for #longcovid research & that the education aspects as listed will not serve to produce or facilitate the level of public and clinician education needed.

We are calling for an increase to funding for BOTH…

#C19LAP member, division lead & 4 year #Longhauler Tammy Wilshire speaks with Pfizer Inc. for their “Dear Scientist” series.

Pfizer is developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.

sponsored.bostonglobe.com/pfizer/long-co…

PBS is asking how #CDC changes to #COVID guidelines impact those with disabilities! pbsnewshour.formstack.com/forms/covid_is…

#LongCOVID

This is great opportunity to get involved with government (OASH & Office of #LongCOVID Research & Practice) and help provide your ideas and solutions to Long COVID! Please review the following and participate! Instructions on how to do so also below!

Health+ Long COVID…

This 12-year-old boy describes his 4-year battle with the 'invisible' disease of long COVID: 'It's very unpredictable. It goes in waves. But it's always there. It never leaves.'

trib.al/s86iDcW

Earlier this week, Senator Sanders released a draft of the 'Moonshot Bill,' which would provide $1B annually to Long COVID for research. You can read the bill here: sanders.senate.gov/wp-content/upl…

The office is requesting feedback by April 23rd. You can send feedback here:…

Check out this great opportunity to get involved in government (OASH | Office of Long COVID Research & Practice) actions to better understand Long COVID by providing your ideas and solutions to #LongCOVID !
The opportunity to contribute ends soon!
longhauler-advocacy.org/so/f0Owgmut-?l…

The findings, published by a UC San Francisco/Harvard Medical School team, found that proteins created by the virus were still present for up to 14 months in a quarter of people tested. This demonstrates SARS-CoV-2 viral persistence as an urgent area of research underlying a…

TW: Cancer in Long COVID

“…all patients should be regularly screened for cancer after SARS-CoV-2 infection, as the virus has been shown not only to affect cancer progression but also to induce oncogenesis and cancer recurrence.” ncbi.nlm.nih.gov/pmc/articles/P…

New study opportunity for residents of South Florida who have recently had #Covid !

There is a new study opportunity for residents of South Florida who have recently had #LongCovid . COVID UPP, which stands for COVID-19: Understanding the Post-Viral Stage, is a research study…

This is great opportunity to get involved with government (OASH & Office of #LongCOVID Research & Practice) and help provide your ideas and solutions to Long COVID! Please review the following and participate! Instructions on how to do so also below!

Health+ Long COVID…

C19LAP is proud to partner with Solve ME for their upcoming advocacy week! This year we will be pushing collectively for an entity at NIH for Infection-Associated Chronic Conditions research!

Learn more here: solvecfs.org/advocacy/advoc…

Are you looking for a safer, collaborative, private community space for #LongCOVID ? Please consider joining our main FB group or one of our 60 chapters, all private groups with protections and moderators to ensure a safe, accurate, supportive environment.

docs.google.com/document/d/1JK…

We're proud to announce that our partners for Solve Advocacy Week 2024 are #MEAction Network Black COVID Survivors Alliance, Inc., COVID-19 Longhauler Advocacy Project Pandemic Patients Patient-Led Research Collaborative #StopTheLongHaul
Learn more about Advocacy Week 2024 here: ow.ly/ElLe50R58TV

Are you looking for a safer, collaborative, private community space for #LongCOVID ? Please consider joining our main FB group or one of our 60 chapters, all private groups with protections and moderators to ensure a safe, accurate, supportive environment.

docs.google.com/document/d/1JK…

TW: Cancer in Long COVID

“…all patients should be regularly screened for cancer after SARS-CoV-2 infection, as the virus has been shown not only to affect cancer progression but also to induce oncogenesis and cancer recurrence.” ncbi.nlm.nih.gov/pmc/articles/P…

Changes to SSI: Under this final rule, we no longer consider food expenses in our ISM calculations. Instead, we will consider only shelter expenses ( i.e., room, rent, mortgage payments, real property taxes, heating fuel, gas, electricity, water, sewerage, and garbage collection…

I also hope that other parents or guardians speak up about these issues and that the media begins to cover the impacts on our children when it comes to school absences bc of COVID and other illnesses now made worse by COVID, including the impacts to their academic profiles+ (END)