lisa
@sweney59
Sharing my lived experience - husband & daughter who have severe ME/ PoTS/Autonomic dysfunction/Non-24 hr ( sighted) Long Covid/FND. Just trying my best !
ID:422152464
26-11-2011 21:53:40
476 Tweets
67 Followers
118 Following
Call to action #ChronicIllness community! There are currently several patients in hospital in the UK at risk of severe harm & even death, because there's no NHS Protocol in place to treat them. Whatever illness you have please sign & share widely. #NEISvoid
organise.network/actions/petiti…
. Ella Pickover Hi Ella,
You covered a critical review of the NICE Guideline on ME/CFS back in July last year and it was featured in the Independent, Standard and Herald. Could you please consider writing about the rebuttal of this review by NICE which was published last week?…
Isn’t it time we stopped measuring the burden of C19 solely by deaths & hospitalisations? What about:
Brain damage
Blood vessel damage
Heart disease
Stroke
Dementia
Autoimmune disease
Long Covid
Death isn’t the only way to destroy a life.
#COVIDisAirborne #CleanAirNow
General Practice is under tremendous pressure
Kent LMC survey shows 82% GPs & managers reporting significant stress levels!
57% plan to retire, leave or reduce hours in 5 years!
Now worse with further catastrophic income cut by NHS England
Gaurav Gupta
Please highlight this 🥲💔BBC News (UK) ITV This Morning Good Morning Britain Sky News Channel 4 News Daniel Hewitt LBC We desperately need your help 🙏🏻 #ME
Legal + media attention needed on Royal Lancaster Hospital where a severely ill, young #MECFS patient is being abused by staff refusing to follow NICE guidelines. Isn't this exactly what Martha's Rule was designed for? Department of Health and Social Care GMC Channel 4 News twitter.com/JulesAHouston/…
Almost 3000 people have signed this petition in the first 24 hours. Let's keep it going and let MorecambeBayNHSTrust know we're still watching. #MECFS #MyalgicEncephalomyelitis #LongCovid #chronicillness
I was wary about reading this, but Hannah Devlin does an excellent job of concentrating on the neurological and immunological abnormalities detected in #MECFS patients in the #NIHstudy that was published in Nature Communications yesterday.
theguardian.com/society/2024/f…
#NeuroTwitter and my #Neurology colleagues in every subspecialty: Please read this paper! #Brainfog is associated with blood-brain-barrier disruption and neuroinflammation in #LongCovid . You can't fix that with antidepressants, CBT or treating a comorbid sleep disorder.