Yenni Desroches 🐾🦓🏳️‍🌈(@yennidesroches) 's Twitter Profile Photo

I guess as an immunocompromized person this is basically telling me I can't serve on the state cmteea & on top of that I'm disabled & getting to physical meetings can be inconsistent for me.

Way to be ableist MA Democratic Party
Esp during Ehlers-Danlos awareness month

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Renuka Dhinakaran(@renudhinakaran) 's Twitter Profile Photo

After 12 years of back pain, I finally figured out today that I could actually tape my sacroiliac joint. What a game changer!!! folks - this is not a drill, it works!

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🏰💚House of Pharmaceutica📺⚕️(@ChronicLoaf_) 's Twitter Profile Photo
markmooch(@MarkMooch) 's Twitter Profile Photo

A little glimmer of positivity for ME (& LC, POTS) sufferers in England. My friend is a physiotherapist currently working in an NHS pain management clinic and understands the landscape that we find ourselves in. Awareness can mitigate harm.

A little glimmer of positivity for ME (& LC, POTS) sufferers in England. My friend is a physiotherapist currently working in an NHS pain management clinic and understands the landscape that we find ourselves in. Awareness can mitigate harm.

#ME #neisvoid
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Zelda MacGregor(@zeldamacgregor) 's Twitter Profile Photo

Disappointing to see our MA Democratic Party State Committee meetings made more inaccessible again despite still having a large and enthusiastic virtual attendance. It’s not hard to do hybrid meetings. 🤷🏻‍♀️

Disappointing to see our @MassDems State Committee meetings made more inaccessible again despite still having a large and enthusiastic virtual attendance. It’s not hard to do hybrid meetings. 🤷🏻‍♀️
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🦄demetria DiGrazia🥄(@demetriameow) 's Twitter Profile Photo


Ever get friends telling you once you’re ready to heal and stop believing in big pharma to go see their special non-western doctor? It’s like of course I want to try but I am barely stable. How do you respond?

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María Richardson(@_diatoma) 's Twitter Profile Photo

Hibiscus desde la Ciudad de México. (‘Twas a windy day so the pistil is a little blurry!)
Sending love to fellow flower-loving folks.

Hibiscus #FlowerReport desde la Ciudad de México. (‘Twas a windy day so the pistil is a little blurry!) 
Sending love to fellow flower-loving  #LongCovid #ME #NEISvoid folks.
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death's favorite girl 💋(@aballerinadoll) 's Twitter Profile Photo

One of my prescriptions is not going to be covered by insurance and is 63.85 even with coupon.
Can anybody help me pay for it?

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Sean O'Neill(@TimesONeill) 's Twitter Profile Photo

this petititon needs less than 1000 more signatures to require a govt response on the lack of funding for ME and Long Covid research petition.parliament.uk/petitions/6305…

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Nathalie Robin Justice Gravel(@welcomewords) 's Twitter Profile Photo

I’ll never forget how people threw literal adult tantrums because they hadn’t left the house in ONE WEEK during the first lockdown, while I’d been 100% bed bound for years. So, I’m venting about the rain. If I was healthy, I’d be dancing in it. I don’t have that luxury.

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ME Association(@MEAssociation) 's Twitter Profile Photo

Support the ME Association's campaign - please keep sharing, thank you!

A major campaign to reach people living in the UK, Channel Islands, or Isle of Man, who think they might be affected by symptoms – or who have a diagnosis – of or

Take the…

Support the ME Association's #CountMEin campaign - please keep sharing, thank you! 

A major campaign to reach people living in the UK, Channel Islands, or Isle of Man, who think they might be affected by symptoms – or who have a diagnosis – of #MECFS or #LongCovid   

Take the…
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Nicole Garofolo(@lytoriathefairy) 's Twitter Profile Photo

Hey Quest Diagnostics why tf did I get lectured about how COVID vaccines are killing people when I came in for regular bloodwork? Me wearing a mask for my own protection is not an invitation for a vitriolic rant against the science that protects disabled folx

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CarrySquad(@carrysquadcom) 's Twitter Profile Photo

⚡ Trials of Osiris⚡is live in Destiny 2!

Map: Endless Vale
Flawless Reward: Unwavering Duty (Adept) Machine Gun

Play with CarrySquad: carrysquad.com/d2/trials-of-o…

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Holz1(@Holz1_LPsoldier) 's Twitter Profile Photo

This is what I've gotta do to stop the toe cramps. They end up twisting on top of each other, which is excruciating. The bruises are from just having legs, maybe walking for 5 mins. Anyone else with do this? Any other toe cramp tips?

This is what I've gotta do to stop the toe cramps. They end up twisting on top of each other, which is excruciating. The bruises are from just having legs, maybe walking for 5 mins. Anyone else with #hEDS do this? Any other toe cramp tips? 
#NEISvoid #hypermobility #Disabled
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