shelley-lee waller
@shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD
ID: 246033568
02-02-2011 00:12:29
5,5K Tweet
932 Takipçi
642 Takip Edilen
Carrie Kellenberger - SpA & Fibro Advocate
@globetrotteri
👩🦼 9 biologics later 🎨 Artist & Author 🦋 I write about #Disability #Arthritis #axSpA #Fibromyalgia #ME #ChronicPain 🤝 @spondylitis @teamfibro
Hayley Gleeson
@hayley_gleeson
journalist at @ABCNews. cat lady. likes words, food, bikes, books. hayleygleeson.bsky.social
Dr. Phillip Alvelda
@alvelda
NASA I DARPA | MIT AI Lab | Venture Capital | Biosecurity | Media (founded Brainworks, Infinite Entertainment, Medio Labs, MobiTV, WiseTeachers & MicroDisplay)
Dr. Alice 💕
@calirunnerdoc
Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Danielle Beckman
@danibeckman
Neuroscientist into Virology & Microscopy. PharmD, MSc in Biophysics, PhD in Biochemistry. Also a nerd that loves history, books & movies! Cure #LongCovid
Scott Daniska
@scott_scientist
Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
Eric Topol
@erictopol
physician-scientist, author of SUPER AGERS tinyurl.com/3w76us9a and Ground Truths: erictopol.substack.com
Vipin M. Vashishtha
@vipintukur
Pediatrician, ‘rational’ vaccine thinker, Editor Covid Vaccines, TB on Vaccines & many others, Past-Convener IAP COI, Member-WHO-VSN vaccinesafetynet.org
Tatiana Prowell, MD
@tmprowell
Oncologist serving people w/ #cancer in #MedEd, #SciComm, & #bcsm. Past ASCO Ed Chair. Cofounder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high 🦋
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Kelly
@broadwaybabyto
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. When you know better - do better. 😷
Litsa Dremousis On Blue Sky now w/ my same name
@litsadremousis
ALTITUDE SICKNESS (Future Tense Books). Upcoming: FIRE IN THE HOLE: A EULOGY FOR THE LIVING. Left WaPo. Longtime essayist. Now co-host of PEM Pod. #pwME #MCAS
Laura Miers
@lauramiers
Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
Prof Kerryn Phelps AM
@drkerrynphelps
Doctor, author, fmr independent MP for Wentworth, fmr Sydney Deputy Lord Mayor, health & civil rights advocate,Past President AMA,past pres @AIMA_Au @realOzSAGE
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Claire 🧠🔥 #pwME♿
@naylor007
ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Harry Spoelstra
@harryspoelstra
CardioVascular Surgeon, international clinical research, spin-offs, peer-Reviewer, globetrotter, #covididiots/insults =instant block, KIWI
Eve Holt
@evefrancisholt
Head of Policy & Implementation @GreaterMcr @MayorofGM 🐝 Navigating, connecting & galvanising systems. Public policy, service & participation. #SocialJustice🌍
💎 diamond 💎 @diamondqc.bsky.social
@diamond_qc
She/her・Optimistic Leftie・Meat Free Diet・GenX 80s Goth・Indie Music Tragic・Tech Geek・♿・auDHD・cPTSD・ME・OCD・CSA survivor・too many letters!
Emily Limey Bell
@flippy_me
migrating to Blue Sky justice•netball•disability/chronic illness•family history research
KC Martin-Stone
@kcmartinstone
Archaeologist. Comedian. Occasionally competent MF. Leaky bag of brain juice. GoFundMe for medical / survival. She/her
Susan Kandarian
@susan_mecfs
Professor-scientist disabled due to worsening #MECFS. Ally for ppl with infection-associated chronic conditions. #longcovid 🏳️🌈
Dr Michelle Scoullar (she/her)
@mjlscoullar
Paediatrician.👶🏽👧🏻🧒🏽 Researcher. Global health specialist. Health equity | Preg, newborn, child. Stop stunting | Stop LongCovid.
Dr Sarah Myhill
@myhillnews
Pls do not use to report health concerns. Detailed questions about Dr Myhill's protocols not answered.
maude
@sheisartmoney
abstract painter • collage artist Be-bop • Dada • Pyramids • Fela #TransRights #LongCovidRuins
Dr.Erin-a coffee appreciation account🇨🇦
@macdoin
Mom, wife,escaped OB/GYN, scientific editor, and aspiring righter of wrongs. T1Dmom, Pinterest project starter. 🇨🇦🏳️🌈and 🏳️⚧️safe, she/her
Raina MacIntyre
@globalbiosec
Physician. Field Epidemiologist🔎 Expert in prevention, detection and response 2 epidemics and pandemics. Founder of @Epiwatch_BSP 🇦🇺
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
David Puder M.D.
@davidpuder
Full time therapist and psychiatrist. Host of one of the top psychiatry and Psychotherapy podcasts: psychiatrypodcast.com
Natalia
@nataliahodgins
Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Oonagh Cousins
@oonagh_cousins
Communications and Fundraising at @long_covid #ThereForME campaign team. 'Anti-Recovery Activist' oonaghcousins.bsky.social
Harriet Carroll: Long Covid Scientific Consultancy
@angryhacademic
#LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Jonas R. Kunst (@kunstjonas.bsky.social)
@kunstjonas
Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Editor @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Erin C. Sanders, MSN, WHNP-BC (She/Her)
@erinsandersnp
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford |Catalyst | Connector | Healing |#JusticeAccomplice
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Cortney Gensemer, PhD
@cortdoesscience
Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
CURE ID
@id_cure
Treatment Registry for Repurposed Drugs. Share your treatment experiences-cure.ncats.io. This is an unofficial friends of CURE ID account. Views our own
Bookaholic Bex
@bexbookaholic
Book-obsessed, theatre-loving feminist with a liberal outlook on life. Mental health champion. Award winning blogger.
charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫
Hopeful
@hopesaxons
Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Nathan Ballantyne
@nathanballan
Prof of Philosophy, Cognition, and Culture at @ASU. Research on bias, expertise, disagreement, and open-minded thinking. Author of Knowing Our Limits (Oxford).
Patients with Power
@ptswithpower
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science🧐 Patient rights & power dynamics🦾 I like solving puzzles.
dejall
@dejall3
Covid Adverse. Wear a N95. Clean Air Advocate
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
SARSwithChars
@covidactionnow
Australian teacher resigned May 2023. Infected x 3. First waver from colleague returning from China. Developed LC/POTS/thrombosis. Education/NDIS/Social justice
Sarah Larsen
@fearless_rising
Quantum mental health. Trauma-informed coach. Nervous system educator. Tools to optimize brain health, build resilience & catalyze your self-healing journey.
Jane Bird
@lindalahughes9
Raising awareness of the paediatric conditions PANS and PANDAS
Dr Claire Taylor
@drclairetaylor
Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
covidmecfshelpus
@covidmecfshelp1
Scientist suddenly disabled by covid-triggered ME/CFS March 2020. Still mostly bedbound, desperate for treatments and advocating for help when well enough!
Breanna Weigel
@breannaweigel_
PhD Candidate at the National Centre for Neuroimmunology and Emerging Diseases | she/her
Long Covid Doc
@longcoviddoc
EM Doctor with Long Covid. Tachy since March 2020. Mostly recovered. Here to learn & support. Tweets definitely not medical advice. #LongCovid can get fucked.
Brain Inflammation Collaborative
@braininflcollab
We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
ADARC
@adarc_uoa
Researching Dysautonomias and Arrhythmias to improve patient outcomes. University of Adelaide | SAHMRI | CALHN
Kristina Lebedevaitė
@klebedevaite
Family doctor, ultrasonographer. Fields of interest: patient's complex case management; ME/CFS; POTS; dysautonomias; Long Covid. Think outside the box 🧠
Metrodora Foundation
@metrodorafdtn
Catalyzing scientific collaboration and discovery to find cures for complex chronic disorders.
Natalie
@pssd_info
Raising awareness about post-SSRI sexual dysfunction (PSSD). & interested in the connection between upper airway resistance syndrome (UARS) & ME/CFS/fibro/etc.
Hopkins ME/CFS & Related Disorder Program
@hopkinsmecfsc
Our goal is to provide outstanding clinical care to patients with ME/CFS & related disorders and improve our understanding of these illnesses through research.
Selin Lab
@selinlab
We study immune dysregulation in ME/CFS, Long Covid, and infection-associated chronic illness. Opinions are our own.
Michael R Scoma MD
@drscomame_cfs
Yale-trained Infectious Disease Immunology physician delivering proactive treatments to Long COVID and ME patients. Views are my own; no medical advice given.
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
Gemma Banham
@banhamgemma
Nephrologist. Interests vasculitis/immune mediated kidney disease, dysautonomia, mast cells. Translational medicine/therapeutics PhD. Views own
AnnaLea
@cockatoocoach
Artist, Scientist, constant gardener prefer reading to tweeting, I love conversations Block me if you like, no offence taken.
Prof. Akiko Iwasaki
@virusesimmunity
We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Dr. Deepti Gurdasani
@dgurdasani1
Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
ME Advocates Ireland
@meadvocatesire
Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland, for Severe ME in particular. [email protected]