MND Peer Support
@mnd_peersupport
A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
ID: 1528394764604870656
https://rb.gy/scyv6s 22-05-2022 15:19:15
42 Tweet
206 Followers
1,1K Following
Michael Booker
@mickbooker
Editorial Director GB News.
Jayne Halhead
@jaynes__world
In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Championing #Lancashire๐น
B is for Becky ๐ป๐ฆป
@b_the_slt
Hard of Hearing Speech & Language Therapist AAC Specialist Master of Science ๐ฉโ๐ Being a nerd is an SLT life hack! โจShe/her/they/themโจ
Seema Sharma ๐บ๐ฆ
@semcambridge
#Founder @OnyvaTheAgency, #Marketer, #Neuroscientist, Foodie, Baker,Stepmum, Crafty (in the making things not fox sense), dabbling in Software. Views are my own
Sam George
@samhirst86
Comms and engagement manager. All views and opinions my own.
David Setters
@dsetters
Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Nick Goldup
@nickgoldup1
Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Nicola Waters
@aberdarenic
Valleys girl living in North Essex. Mother of two boys, age 13 and 10. Fighting MND one day at a time.
Neuroprogressive and Dementia Research Network ๐
@nrs_ndn
The Neuroprogressive & Dementia Network. Promoting clinical research into dementia and neuroprogressive diseases across Scotland.
Paul Ridley
@paulridley5
Minnesota Vikings NFL is my passion, happily married & proud father of of my grown up children with Autism & Aspergers. Parent & Carer & campaigner
Katy Styles
@willowkaty
#UnpaidCarer to @markrstyles who lives with Kennedy's Disease #MND Created @WeAreCarers Campaign to #ValueCarers
Shyuan Ngo ๐ง ๐ฌ๐งซ๐ฉ๐ปโ๐ณ๐ป
@ngoshyuan
MND/ALS researcher @AIBN @UQ ๐ฆ๐บ Group Leader. Working for a cure. Enjoys food. Cat enthusiast. [email protected]
Jennie Starkey
@starkeyjennie
Mum of 4, educator, diagnosed with MND Sept 2021. retired through ill health, Raising MND awareness through humour (sometimes dark) with my blog.
Brian Dickie
@drbriandickie
Chief Scientist @ MND Association
Victoria Haynes
@victoriaroyle1
It's claridges way or no way!
Selina Shaw
@selinalshaw
Trainee Clinical Psychologist โจ๏ธ Manchester
Annabel Howell
@howell_annabel
Mum, Medical Director CHAS, ex GB Rowing doc and MyName5DoddieFoundation Trustee/Vice Chair, Creative Writing MA/now doing a PhD at Hull- all views my own.
Martyn Clarke
@clarkemartyn1
May 5th to 11th '25 @mnd777challenge โข 7 marathons โข 7 days across โข 7 ๐ฌ๐ง Counties The Attempt.
Nina Rzechorzek
@neurocool
MRC Clinician Scientist working on brain temperature and neural circadian rhythms. @BioClocksUK Co-Founder bioclocks.uk
Nora Markus
@norimarkus
Neuroscientist with a keen interest in glia, neurodegeneration and ageing. All views are my own.
Lee Millard
@onein300
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Vanessa Kirby-Firth
@vkirbyuk
Funding Officer at @tnlcomfund | Passionate about empowering people ๐ซ | Content design | Service design | Passionate about UCD | ex @goodthingsfdn
Rhiannon Evans
@slt_rhi
#hellomynameis Rhiannon - SLT in Bolton Trust Interests in progressive conditions, AAC & voice banking. Expert core member with MNDA. Views my own!
Simon Hoggarth
@simon_mnd
Care Information Developer. Previously Website Administrator. Helping to raise awareness of #MND. All views my own.
John Adams MND Warrior
@johnada10163823
MND Warrior fighting to find a cure @mnd lifetime WBA supporter @WBA JustGiving.com/fundraising/Joโฆ?
Stuart Thom
@stuartthom11
Ambassador of the My Name'5 Doddie Foundation.. Charity fundraiser.. Lover of all things sport..
David Taylor
@vpresearch_als
ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
Judith Newton
@jnewton_mnd
MND Nurse Consultant for Scotland, working closely with @MNDScotland & @EuansCentre. Views 100% my own.
Mandi
@runningmama0522
Ian Lev
@lev_ian
I have a rare form of MND known as PLS
Alex Ward MND Angel ๐๐งก
@alexwardfund
Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. alexwardfund.org
Dr. Nadia Sethi
@nadia_sethi
ALS we are coming for you. Widowed by ALS and still fighting it.
๐๏ธ Paul @ Munros 4 MND ๐๏ธ
@munros4mnd
๐ Doddie Champion ๐ Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 ๐ ยฃ110,000 & counting... #DoingItForDad ๐
Eaforwaum
@eaforwaum6827
PhoebeArthur
@4p50vqfk4ak8cer
Amanda
@randellamanda40
MNDA Yorkshire Dales
@mnda_dales
The Yorkshire Dales branch of the @MNDASSOC. We support people living with MND in the Yorkshire area. Find out more HERE ๐ mndyorkshiredales.co.uk
Serays
@serays534396
Teesmeighsm
@teesmeighsmcbs
ALSWiki.org
@alswiki
A free online guide for living with ALS.
MND Research
@mndresearch
We fund cutting-edge #MND #ALS research in the UK and worldwide. ๐ฌ Join us at the largest international conference dedicated to ALS/MND #alsmndsymp
Carmel Grant
@grantcarme64734
Original Derry Girl - now fighting the good fight to rid the world of Motor Neurone Disease
Me v MND
@me_v_mnd
The #MND #ALS related account of @edcooke. Living with MND since 2023. Trustee of @mndassoc. Views own.
North Midlands MND Care & Research Network
@northmidmnd
North Midlands MND Care & Research Centre @UHNM_NHS. Individual MDT care to people living with MND/ALS & their families. Enabling access to MND Research
Connect to Support Surrey
@supportsurrey
For anyone living in Surrey to share local community support, health & wellbeing information & find out whatโs going on, specifically around Adult Social Care.
Norma
@norma2835073526
Joan
@j_sanders26
Common man
@commonman1227
Random thoughts
Marsha Begley
@marshaswmum
A proud social worker, leading within the Disability Division @ #teamSHSCT. All views my own #Yes2SocialWork #ChooseSocialWork #SocialWorkNI #SocialCareMatters
StampOutMND
@stampoutmnd
Solo Charity Fundraiser For The Motor Neurone Disease Association since 2015, Check out FB for more detailed posts.
Arthur
@arthurbutcher44
#motorsports ๐๏ธ #gardening๐ and hopefully a cure for #MND ๐๐ฆ can be found soon ๐๐ผ
ian muir
@ianmuir65555681
Emily Mayberry (she/her)
@ejmayberry
Clinical Psychologist & Researcher | PhD, DClinPsy | ๐บ๐ธ๐ฌ๐ง๐ | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
TNia
@dr_tnia
Anatomist | Neuroscientist | Embryologist / IVF | Biologist | Anthropology | Evolution | Nature
Smeeshat
@smeeshat98655
Travel the world and see the scenery.
McResmoo
@resmoo4185
Travel the world and see the scenery.
Twitchy and scared
@drdyingtolive
32y F w/ 10 months of numbness, tingling, nerve pain, muscle twitching, weight loss, swollen glands, night sweats, petechiae. Terrified of dx.
Tatyana Shelkovnikova Lab
@ts_lab_
RNA metabolism in health and disease: mechanisms and drug discovery - Sheffield Institute of Translational Neuroscience (SITraN), University of Sheffield.
Readable Research
@readabler
Clear, simple summaries of scientific research hot off the press โ read and reviewed by those who live beyond our labs at @sheffielduni & @SheffieldBRC
Evan Campa
@evancampa
Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
Geoff
@gebinh1
MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.๐ข But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
Mind Over MND.
@mindovermnd
Bishop's Stortford (Not So) Independent
@stortfordlndie
A truly independent newspaper for Bishopโs Stortford with a former Lib Dem candidate as our news editor. Parody accountโฆ obviously.
All is Well: Lessons
@allswell333
โAll is Well: Life Lessons from a Preacherโs Fatherโ by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Dawn Harper
@dawnhar48936953
Director of Nursing @ Guys and St Thomasโ. Cancer & Surgery Clinical Group.
paul ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ฌ๐ง
@paulrpfc
Retired,husband,father,granddad.English.Never Labour. Brexit done, Diagnosed Pseudobulbar Palsys MND 03/23.#DefundtheBBC,No to WEF,WHO,Climate Scam & Ban Halal
UHSussexResearch
@uhsx_research
#Research and Innovation at @uhsussex University Hospitals Sussex Foundation NHS Trust. Supporting Clinical Research at all our hospitals #NHS #bepartofresearch
๐Sam (she / her / hers)
@samcares3
Passionate about supporting unpaid carers, mental health & end-of-life care. A huge advocate for neurodiversity inclusion. All opinions and views are my own