“By gaining a deeper understanding of how MND develops and progresses, we will open doors that help work towards finding a cure for MND.”

Libby Moody is 1 of over 220 researchers involved in MND Association research grants, who all play a vital role in the fight against #MND #ALS .

We’ve launched a new booklet about Inherited #MND . It gives an overview of the condition as well as guidance about genetic counselling and testing.🧬

Find this booklet and more on our website - mndassociation.org/inheritedmnd

Find the clinical trial process confusing?

Not sure what all the different terms and abbreviations mean?

Not sure where to start to find information?

You need to follow our new #ClinicalTrials 101 !

#MND #ALS #ClinicalTrials

#ResearcherSpotlight 💡

Dr Younbok Lee is developing a new potential therapy for people with #MND #ALS who have a change in the FUS gene. 🧬

It is hoped the therapy could be used just 𝐨𝐧𝐜𝐞 to help prevent further motor neuron loss.

Learn more: mndassociation.org/research/our-r…

To what extent is your quality of life affected by your neurological condition?

Having #MND affects all aspects of a person's life.

Share your own reality in order to help bring change in the current system.

Respond to the The Neurological Alliance survey here ⬇️

neurolifenow.typeform.com/Mar-Apr24?utm_…

Warning: Websites and social media are full of claims with high promises for ALS/MND treatments. Read about ten red flags you should watch for from #ALSUntangled

ow.ly/8YN850Q1rFk

Protect yourself and others from the spread of misinformation.

#ALSMNDWithoutBorders

🚨Last chance! 🚨

If you are an #ALS #MND researcher looking to apply for our grant round, be quick and submit your application today.

🔬 PhD Studentships
🩺 Healthcare projects
🧪 Non-Clinical Fellowships

Applications close today! ⬇️

mndassociation.org/research/for-r…

Want to get involved in #MND #ALS research? 🔬

On our website you can get involved in research studies which are:

💊 testing new potential treatments
🩺 aiming to improve diagnosis and care
🧪 trying to understand the causes of MND

More info: mndassociation.org/research/get-i…

Researchers from the @ventMND team are running a study looking to understanding what it’s like to live with tracheostomy ventilation.

They want to hear the experiences of people living with #MND , family members and healthcare professionals.

Take part ⬇

mndassociation.org/research/get-i…

How does DNA play a role in #MND #ALS ? 🧬

Genes are instructions for processes in our bodies. Each gene is made up of DNA.

Changes in certain genes can alter motor neuron function and increase the risk of developing MND.

#DNADay

Inside every cell in your body, two metres of DNA is carefully folded into a structure smaller than the width of a human hair. This #DNADay , explore how every fold and twist in the origami of our DNA can affect our bodies and ultimately our health:

What is a placebo? 💊

A placebo is a ‘dummy drug’ which looks and tastes the same as the treatment being tested.

Placebo groups are used in clinical trials to ensure any beneficial effects observed are entirely down to the treatment.

#ClinicalTrials101

The world of clinical trials can be a daunting place.

To help de-mystify clinical trials we will be breaking down some of the key terms and abbreviations in our new #ClinicalTrials101 series.

Make sure you follow the # to stay up to date!

The Healey & AMG Center is thrilled to announce that applications are now open for four prestigious awards that honor individuals and teams working to revolutionize ALS research and clinical care.

Read more: massgeneral.org/neurology/als/…

⏳ Time is running out! ⏳

Applications for our PhD studentships, healthcare projects and non-clinical fellowships close soon!

Come join our network of incredible researchers. 🔬

Apply by Friday 26 April ⬇️

mndassociation.org/research/for-r…

Don't miss the chance to engage with researchers and clinicians, and delve into discussions on clinical trials at this year's EnCouRage event.

Dr. Wang will be one of the speakers, sharing insights from his fellowship project.

Register now to secure your spot! 👇

Why is #MND EnCouRageUK important?

It brings the #MND #ALS community together.

It also provides an opportunity for people affected by MND to learn more about research without the scientific jargon! 🔬

Register your interest ⬇️

mndassociation.org/research/mnd-e…

Interested in #MND #ALS research? Join us at #MND EnCouRageUK!

👂Hear about the latest MND research
👋 Engage with researchers
🔬 Take part in discussions about research

Spaces are limited! Register your interest by 31 May ⬇

mndassociation.org/research/mnd-e…

Are you attending #ENCALS this year?

Members of the team will be attending and we can’t wait to hear and share the latest #MND #ALS research. 🔬

Not registered yet? Standard registration is open until 29 April ⬇️

encals.eu/meetings/stock…

We are hiring! The PataniLab is looking for a bioinformatician to work on an exciting project on RNA metabolism and DNA damage in ALS funded by My Name'5 Doddie Foundation, all detalis here: ucl.ac.uk/work-at-ucl/se… still a few days left to apply!