MND Peer Support
@mnd_peersupport
A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
ID: 1528394764604870656
https://rb.gy/scyv6s 22-05-2022 15:19:15
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Gary McAllister
@garymcallister
CxO. Views are mine. Book: An Introduction to Digital Healthcare in the NHS. RTs are not endorsement.
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
NHS England Transformation
@nhsdigital
NHS England’s Transformation Directorate improves lives through digital, data, innovation and technology. This account is managed Monday - Friday 9-5.
Adelina ComasHerrera
@adelinacohe
This is a dormant account, I have moved to @adelinacohe.bsky.social Long-Term Care & dementia care @CPEC_LSE Global Observatory of Long-Term Care @GlobalObLTC
Gloucester Rugby 🍒
@gloucesterrugby
The official X account of Gloucester Rugby | Main Club Partner @BiGDUG
Severn Hospice
@severnhospice
Providing specialist care and emotional support for families living with an incurable illness since 1989.
Dr Ahmad Al-Khleifat
@ahmadalkhleifat
Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Jayne Halhead
@jaynes__world
In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Championing #Lancashire🌹
KCL Alumni
@kclalumni
The official King's College London alumni Twitter account. #ForeverKings🦁
Rob Burrow CBE
@rob7burrow
Legacy account of Rob Burrow CBE. Posts by the Burrow family and in support of the MND community.
Martin Knapp
@knappem
Professor @LSEHealthPolicy; Director @NIHRSSCR; Director NIHR Research Programme Social Care; Research in @CPEC_LSE; CBE; running slower & shorter than ever
David Setters
@dsetters
Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Nick Goldup
@nickgoldup1
Chair and Chief Operating Officer of the Wheelchair Alliance CIC
CCIO Network
@dhccio
The #CCIO Network is a community dedicated to bringing about greater clinical leadership & engagement in the use of informatics. Request an invite to join.
Swansea Bay NHS
@swanseabaynhs
Providing NHS care to Swansea, Neath Port Talbot & beyond. As we cannot answer clinical queries here, please speak to your doctor. Yn Gymraeg @BaeAbertaweGIG
Dr Nicola Byrom
@nicolabyrom
Find me on BlueSky - nicolabyrom.bsky.social
Nicola Waters
@aberdarenic
Valleys girl living in North Essex. Mother of two boys, age 13 and 10. Fighting MND one day at a time.
MND Scotland
@mndscotland
Making time count for people with motor neuron disease (MND).
The Walton Centre
@waltoncentre
The only official Twitter account for The Walton Centre NHS FT, UK's only dedicated neurosciences Trust. Social media guidelines tinyurl.com/TWCSocial
Jill Manthorpe
@jillmanthorpe
CBE, Emerita Prof Social Work, King's College London; visiting Prof Uni of Melbourne, Queen's Uni Belfast
Davina Rivers
@davinarivers
My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Mohammed Hussain (he/him) 💙
@digitalphamcist
Wears many hats , digital therapeutics , Fellow @RPharmS @Aptuk1, @UKFCI | NED | Trustee @pharmasupport | own views | ultra marathoner! 🍉 💙🌈🐝
Neuroprogressive and Dementia Research Network 🌐
@nrs_ndn
The Neuroprogressive & Dementia Network. Promoting clinical research into dementia and neuroprogressive diseases across Scotland.
Prof Ann-Marie Towers
@ammtowers
Professor and Deputy Director. Health and Social Care Workforce Research Unit. The Policy Institute, King’s College London. Tweets my own.
Pritesh Mistry
@mustbemistry
dig tech @ King’s Fund | Innovation Catalyst | ITU-WHO AI for Health | #healthcare #healthtech blogger (views own)
NIHR Involvement
@nihrinvolvement
We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research
Nic Hughes
@nichughes3
King's Culture
@culturalkings
Creative collaborations, exhibitions, talks and events to enhance and share King’s research, insights & impact. 📍 @SciGalleryLon & Strand Cultural Quarter.
Professor Natasha Phillips RN
@futurenurseuk
Archive account for Founder of Future Nurse and former National CNIO at NHS England. For latest and contact find me on LinkedIn.
Shyuan Ngo 🧠🔬🧫👩🏻🍳😻
@ngoshyuan
MND/ALS researcher @AIBN @UQ 🇦🇺 Group Leader. Working for a cure. Enjoys food. Cat enthusiast. [email protected]
Brian Dickie
@drbriandickie
Chief Scientist @ MND Association
ALS/MND Alliance
@alsmndalliance
A World Free of #ALS #MND
Dr Rebecca Goulding
@rgouldinguom
reh-beh-kah gold-ing (she/her). Researching health communication, access to care, patient involvement / safety for people with (multiple) long-term conditions
Sally Brown
@profsallybrown
I’m aUK-based Independent consultant &visiting professor with expertise in teaching,learning &assessment at HE level.Come for the cakes, stay for the pedagogy!
HealthSense
@healthsenseuk
HealthSense is the new name for HealthWatch. Promoting good science and integrity in healthcare since 1991. Join us. @[email protected]
Prof Sally Everett 🏳️🌈🐶
@drsallyeverett
Professor of Business Education & Vice Dean (Education), food tourist, NTF, PFHEA, CMBE, CATE & dog lover. Tweets own views. (she/her)
Andrea Pauls Backman (she/her)
@andreabackman05
Follow me at AndreaALSstrategy.bsky.social. Passionate about people w ALS/MND & fighting for cures.
KCL Natural, Mathematical & Engineering Sciences
@kingsnmes
Discover the Faculty of Natural, Mathematical & Engineering Sciences @kingscollegelon Chemistry, Engineering, Informatics, Mathematics & Physics
NIHR School for Social Care Research
@nihrsscr
The NIHR School for Social Care Research, part of @NIHRresearch, aims to develop the evidence base for social care practice in England.
David Oliver (also on Blue Sky)
@mancunianmedic
NHS Dr 36 y. Covid wards++ Gov, policy, academic, officer roles. Byline: @BMJ_latest. Columns: health press, papers. @mjauk. Manc-in-South. MCFC. Craic. Schlock
David Abbott
@davidabbottbris
Peace and peonies. Also dog, views, cake, Social Policy. He/him 🏳️🌈 🏳️⚧️ 🇮🇪 🏴✊🏿
David Carless
@carlessdavid
Professor @hku_education, Head @HkuScape, Visiting Professor @SurreyIoE. PFHEA. #feedbackliteracy #assessment #feedback
Lee Millard
@onein300
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
DrDr (😊)Wendy Mitchell
@wendypmitchell
Sharing my journey, if anyone chooses to read it, of living as well as I can with dementia near Beverley. Follow my blog - whichmeamitoday.wordpress.com
Ben Carter
@drbencarter
South West London based, Prof in Biostats and part-time PT. Research interests include: mental health; mobile device use; frailty and sleep.
Ammar Al-Chalabi
@ammaralchalabi
Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
My Name'5 Doddie Foundation
@mndoddie5
Registered charity, established by Doddie Weir & friends to fund vital research into motor neuron disease (MND) & support those living with MND.
John Adams MND Warrior
@johnada10163823
MND Warrior fighting to find a cure @mnd lifetime WBA supporter @WBA JustGiving.com/fundraising/Jo…?
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Chris McDermott
@profcjmcdermott
Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Geoff Burrow
@burrow_geoff
Husband to my beautiful wife, Irene, and Proud Dad and Grandad. Fighting to find a Treatment and Cure for MND - we are SO CLOSE 👍👊🤞
University Hospitals Sussex
@uhsussex
UHSussex runs seven hospitals across five sites with additional satellite facilities and community services caring for 1.8 million people in Sussex
Royal Stoke ED UHNM
@royalstokeed
Twitter account for Royal Stoke University Hospital. Sharing team news and information. We cannot give medical advice
TNia
@dr_tnia
Anatomist | Neuroscientist | Embryologist / IVF | Biologist | Anthropology | Evolution | Nature
Neeraj Shah
@neeraj0588
Respiratory doctor 🫁 . Army Officer. PhD Fellow.
Oliver Pain
@ollie_pain
Sir Henry Wellcome Postdoctoral Fellow, Institute of Psychiatry, Psychology and Neuroscience, King's College London
Melissa Rigby
@melissarigby9
Alli Anthony
@allianthony2
Proud to be working for the Motor Neurone Disease Association
Dr. Malabika Ghosh
@malabikadr
Consulting Specialist in Neurocognition, PhD. Hon. Res Fellow. Former Senior Lecturer-Rehab. UOC. Trustee-Elizabeth Casson Trust, NIHR Research Scholar
Lane Fox Respiratory Service
@lanefoxresearch
Updates on the clinical research activities of the Lane Fox Respiratory Unit & Clinical Respiratory Physiology Research Centre
Jeong Su Lee
@jeongsulee3
Senior specialist occupational therapist- Lane Fox Unit, Polio and PPS service
Dr Nkasi Stoll
@nkasistoll
📝 Qualitative research psychologist interested in mental health and (in)equalities • 💼 @BPTwellbeing & @BlackInMH • ✨ Neurospicy
The Patient Voice of The BPS
@patientbps
We are the The Patient Voice Committee of The British Pain Society & endeavour to ensure our collective voice is heard throughout the work of the society.
NHS Digital Academy
@nhsdigacademy
Helping teams across health and care in England create and continuously improve services through education and learning programmes. An @NHSEngland service.
Sarah Hanbridge RN
@hanbridgesa
CCIO Nursing, Midwifery & AHP | Leeds Teaching Hospital | FNF Senior Digital Scholar 2020 | CHIME UK Faculty Member| CHIME UK Advisory Nurse| DH AWARD 2022
Healthtalk Australia
@healthtalkaus
Real-life multimedia health and illness experiences + evidence-based, plain language health info. @RMIT @Sydney_Uni @MCHRImonash @UNSW
David Brindle
@davidj_brindle
Ex-Guardian social policy, still agitating for social care, charities, mental health. Chair of Ambient Support. Feeling good again about Coventry City.
The Dipex charity
@dipexcharity
Disseminating public-facing outputs from health & social research (particularly qualitative) since 2001. Best known for @healthtalkorg. Work with us - DMs open.
Beth Stuart
@bethstuart97
Medical statistician and Director of PCTU, mum and reader of just about anything I can get my hands on (preferably whilst drinking tea and eating cake)