CBS Sunday Morning 🌞 FDA must listen to stem cell expert, Dr. Tony Windebank of MAYO re #NurOwn He saw #ALS patients & BrainStorm's data the FDA said is not "enough" When you have a 💯fatal heterogeneous disease w no disease modifying treatments, #SomeisEnough #NurOwnWorks @LeeCowanCBS

CBS Sunday Morning 🌞 This is a story that needs to be told repeatedly and the #FDA held accountable. @LeeCowanCBS ALS IS NOT RARE! The lifetime risk of horrific & 100% fatal #ALS is ONLY 1 in 300 & increasing. The U.S. FDA archaic regulatory process is killing #ALS patients & devastating families.

CBS Sunday Morning 🌞 Even as a physician with #ALS, I was unable to access investigational treatments for 8 years. Now I'm on a ventilator, wheelchair bound & require 24 hour caregivers. The suffering is EXTREME, the diagnosis 100% fatal, but we're denied treatment access. The #FDA system is broken

CBS Sunday Morning 🌞 People who've lost a loved one to #ALS understand horrific & unparalleled burdens of this disease. Pete Najarian Jon Najarian pls help us raise awareness to get #NurOwn approved. People have regained function for the 1st time in 150 yr history of ALS #NurOwnWorks #LivingProof

"Efficiency" is a cruel joke to those of us with #ALS Marty Makary MD, MPH, the NurOwn Citizens Petition is 90+ days past the FDA deadline. If you won't pressure Vinay Prasad MD MPH to act, you aren't a reformer—you’re just the latest FDA leader choosing bureaucracy over lives. Stop

If you are a doctor/other medical professional, and you believe there is any amount of any placebo that will make ALS patients "think our motor neurons into functioning", YOU ARE A FOOL! If there was benefit, it was NurOwn! Now, cut the shit and approve NurOwn now! Dr. Marty Makary

The face of ALS. The face of Alzheimer’s. Can you tell which is which… and who is who? You can’t. Because these diseases don’t announce themselves. They quietly take, piece by piece, until the person you love is still here… but slipping. Only difference? Alzheimer’s has

Craig Reagan Secretary Kennedy Dr. Marty Makary Shah Minokadeh, M.D. juan Just a girl w/#ALS Christy A. gina Gibson Rain Consulting Group Hooman M. Melamed MD FAAOS Mark Defund The ALSA ALS isn’t killing us, you guys are. Approve NurOwn

Clean up the #NurOwn mess and approve it. It literally took patients dying of ALS to write a citizens petition to get FDA to look at it. Trumps first candidate for Right to Try was someone dying of ALS and that was for NurOwn. It helped him walk again, so why in the world is

Thank you Secretary Kennedy now please get to work on approving #NurOwn for our Vets! “Studies have shown that U.S. Veterans are about 1.5 times more likely to get ALS compared to people who were never in the service. For that reason, ALS became a 100% service-connected condition

President Donald J. Trump Donald J. Trump Vice President JD Vance A fucking disgrace facebook.com/share/r/1E5K5w… facebook.com/share/v/1AwxLf… facebook.com/share/v/1GgNMH… facebook.com/share/v/1CecfE… facebook.com/share/r/1KsnPh…

President Donald J. Trump how do u feel that ur 2016 & 2024 party doesn’t back ur “Right to Try Bill, signed in 2017. Both Dr. Marty Makary & Secretary Kennedy r refusing treatments 2 terminally ill patients.A total disgrace!There’s NurOwn & other treatments sitting in the FDA with no access, that’s bullshit

This is evil but is how the FDA works, no wonder some drugs are delayed or just ignored #Anktiva # NurOwn Dr. Marty Makary

What about ALS? 100% fatal every. single. time!!

ACT for ALS has built and supports a robust ALS research infrastructure. Join me in helping to reauthorize it! iamals.org/reauthorize-th…

I appreciate the speed here. However #NurOwn has been sitting in review for 288+ days. This is based on a 300+ page citizens petition created by patients themsleves and showcasing robust data. Arguably one of the worst diseases to hit humanity and with some of the highest rates

President Donald J. Trump Donald J. Trump please approve and help get this medication for all of the ALS patients. You promised your first term the right to try, but that hasn’t happened and now your second term you just approved the psychedelic drugs because Joe Rogan texted you But #Nurown was

When making the decision on #NurOwn, Dr. Marty Makary please consider two things. 1. Consider the full totality of data w/expressed flexibility and plausible MOA. Obviously in the citizens petition. 2. You consider, read via the FDA docket, or talk directly to the patients,

Rain Consulting Group Craig Reagan There is 6000 people diagnosed every year with ALS. every year!

I am completely missing me!! The old me. The me before #ALS decided to take over!! As much as I try and stay strong some days im just mentally, physically and emotionally drained.. 😪 #EndALS