No progress yet, unfortunately Previous FDA leadership always made ALS patients wait until the very last minute before answering. So many people would die waiting, just like they are now. I'm hoping that the new FDA leadership, Dr. Marty Makary FDA Biologics Secretary Kennedy have meant what

Secretary Kennedy Dr. Marty Makary Vinay Prasad MD MPH I challenge you to spend 24 hours as advanced ALS patient. Show you care about ALS. Retweet if you would like to see this happen. Shah Minokadeh, M.D. Rain Consulting Group No More Excuses ALS Watchdogs! Vita Kalinsky Racing for ALS Bradford G Smith (Brad)

What an unforgettable experience partnering with Alex Toussaint for this amazing event in support of I AM ALS! So much gratitude for the chance to be part of it.

Our #PushforProgress campaign kickoff has been a HUGE success so far—and while our work isn’t done yet, we couldn’t have made it this far without you. THANK YOU, Ron, Maggie, Linda, Jake, Dr. Bedlack, Tim, and everyone else for everything you do to make this work possible.

Next stop: all smiles with Sen. Tammy Baldwin! Join @realericdane to advocate for the future of federally funded ALS research. Help us reauthorize ACT for ALS. bit.ly/4mlLjo7

.FDA Biologics Secretary Kennedy Dr. Marty Makary, 90 days since our #NUROWN Citizens' Petition Eric Dane has a very public decline. He has progressed dramatically in the 90 DAYS. He is now wheelchair bound & struggling to speak Why the delay for a 100% PROGRESSIVE & FATAL disease?

It does not discriminate. It struck me at 43 and continues to take and take!! #ALS

The newest issue of Brain & Life is here! 🎉 From our cover story on social media star Brooke Eby to a spotlight on #thyroid health, there’s much to explore: hubs.la/Q03MjPYC0 #ALS #BrainHealth Brooke Eby

That's all I have to say!!! 👇🏼 #ALS

Lewis Moody There is hope Lewis Moody. As a person newly diagnosed with MND, you could benefit from an enhanced stem cell therapy called NurOwn. You can contact attorney & fellow rugby player, with ALS Nicholas Warack to learn more. accessnewswire.com/newsroom/en/he… You can read a 309 page

Today, I am 45! Thank you, thank you, thank you I AM ALS for this incredible surprise. So lucky to have you all in my life!

Thanks to you, our #PushforProgress campaign has brought a HUGE new wave of community members pushing for a cure! DONATE $4 TODAY to keep this momentum going → iamals.org/progress/

We love you, Brooke. You're a Trailblazer in every way. 💙 Support ALStogether, the Slack community Brooke built where people with ALS and their loved ones find support: give.alstogether.org #DF25

#ALS can strike ANYONE at ANY age, ethnicity, socioeconomic status, religion, gender, profession, etc Venture capitalist CEO & founder of OurCrowd, Jon Medved steps down duo to #ALS diagnosis I hope he knows that the greatest hope for ALS today is a company founded in Israel

A friend of mine shared this piece from Variety on Facebook, so I wanted to continue the sharing. For those of us who have lived with or alongside #ALS, it’s truly heartening to see Eric Dane continuing his work. His perseverance is a powerful reminder of the strength, courage,

This 3 letter word does not discriminate. Anyone, any age at anytime! It will just take and take from you. This is not the life I ever imagined! Dr. Marty Makary #NurOwn #ALS

The life with #ALS.. I am completely physically, mentally and emotionally exhausted!!!! 😪 #ALSSUCKS

Everyday thoughts living with #ALS and everyday more and more keeps coming at ya

Thank you to Melinda French Gates and the team Pivotal Ventures for believing in what’s possible. This isn't just funding. It's fuel for hope and progress to get everyone the best care.

Today is Eric Dane's birthday! You may know him from Grey's Anatomy, but he is also a tireless ally, a loving father, and a really funny, down-to-earth kinda guy. Drop a "Happy Birthday Eric!" in the comments! 👇