Tanjuša
@joy_pops
Bedbound with (post)viral #severeME. Love reading. Writing poems. A friend to Nature and all her creatures. Korean and Japanese dramas/films are my happy escape
ID:3403303821
04-08-2015 22:02:45
100,8K Tweets
3,8K Followers
3,1K Following
Losing consciousness, stroke-like symptoms, seizures - Carla who has v.severe MECFS & orthostatic intolerance needs urgent help, instead Drs ignore experts, cause suffering with light & sound & cancel referrals. This MUST change NOW #SaveCarlasLife @rcphysicians Patient Safety Commissioner
The ME community is on its knees because every week we have the trauma of another young woman being medically abused at the hands of the NHS, who is supposed to protect them. Every week we have to fight for the lives of our peers. When will this end? #SaveCarlasLife #ExposeMENow
I spoke earlier today with The Guardian's George Monbiot about his recent scathing column on a 'national scandal'--the longstanding mistreatment of those with the illness (or cluster of illnesses) currently known as ME/CFS. Thanks George Monbiot!
virology.ws/2024/04/18/tri…
Read this #MedTwitter .
I remember what healthcare did to Katie. Because it's horrible. Because it's torture. And it happens. It happens a lot.
#SaveCarlasLife #ExposeMENow
This is not seizure-like; it’s an actual seizure! Clonic activity is clear, marking a neurological emergency. Simple, basic interventions can suppress this activity, which every neurologist is trained for. Where is your neurologist? West Middlesex University Hospital You’re committing a crime!
Doing harmful things to someone's body without their consent is abuse. The fact that this happens in hospitals and by healthcare professionals doesn't suddenly make it not abusive. On the contrary, it's a very specific form of abuse.
#SaveCarlasLife #ExposeMENow
Every person I know with ME is *terrified* of having to go to hospital, precisely because of what is happening to Carla right now, and what has happened to far too many others. NHS hospitals NEED to follow NICE guidelines before more people die #SaveCarlasLife #ExposeMENow
Just over 3 years ago I was discharged from a 7 month hospital stay where I was repeatedly and deliberately pushed to unconsciousness, made to faint on a tilt table several times a week, had the lights switched on and blinds opened when it caused pain #ExposeMENow #SaveCarlasLife
Psychiatry has no place in the treatment of severe ME. V.Severe pwME Carla was supposed to be referred to gastroenterology to get her feeding sorted, now she is suffering beyond belief due to exposure to stimuli after psych took over #SaveCarlasLife #ExposeMEnow GMC Royal College of Psychiatrists