Prof Gemma Carey, PhD MMedSci
@gemcarey
Public admin, social policy, public health. Lots of NDIS @UNSW. PROVAX, vax injured - in severe ME recovery. (And non aca-author). Views are my own
ID:121588816
https://www.gemmacareypolicy.com/ 10-03-2010 00:07:02
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Neurologist Mom No patient should need to have a parent who is a neurologist in order to be treated for having seizures. This is beyond torture. My π for Allegra, for Millie, for Carla and the many other cases who preceded them and the ones we donβt hear about. Itβs clear medical malfeasance.
βBecause our suffering is beyond your comprehension, doesnβt mean it doesnβt existβ.
Stop psychologising #MEcfs A protocol for care of severe ME pts must be created in line with NICE guidelines #BringMillieHome #DontLetMEDie
GMC Royal College of Psychiatrists Royal College of Physicians Care Quality Commission
My message about the treatment of Severe ME patients in NHS hospitals: patients, families, carers feel stuck between a rock and a hard place.
#SaveCarlasLife #ExposeMENow
Angry Redhead - [email protected] π·ππβ© βοΈ Prof Gemma Carey, PhD MMedSci That's very unfortunateπ
These prolonged seizures, although rare, are well described. ICU admission can be very prolonged.
Long-term outcome in new onset refractory status epilepticus: a retrospective study
ccforum.biomedcentral.com/articles/10.11β¦
Daniel Moore Julie Houston @SerieveMission Sorry, I deleted my tweet by accident. Adding it for anyone looking for info on seizures/convulsions/tremors & #MECFS .