Emily Mayberry (she/her)
@ejmayberry
Clinical Psychologist & Researcher | PhD, DClinPsy | ๐บ๐ธ๐ฌ๐ง๐ | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
ID: 1129464859597443072
17-05-2019 19:13:01
495 Tweet
317 Followers
483 Following
Phil Green
@pjgreen
Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
Stephen Naylor
@stephennaylor
Dad & Husband โข Strategic Communications @thisiswaverley โข Non-Exec & Quality Chair @CalderdaleCares @WYPartnership โข Trustee @Scouts โข Ambassador @ThePieceHall
Jayne Halhead
@jaynes__world
In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Championing #Lancashire๐น
MND Campaigns
@mndcampaigns
Campaigning with people with motor neurone disease #MND @mndassoc volunteering.mndassociation.org/vacancy/campaiโฆ
Dr Allan Shaw
@smurfation
Post-Doc at Uni of Sheffield, trying to find cures for MND and FTD with @FerraiuoloLab Member of Vegan Runners. Proud parent to Mouse.
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimerโs, Parkinsonโs and ALS. Co-founder @iamalsorg. EP @noc_film.
Aoife M
@aoifmh
Gary Parker
@garyparker83
Workshop Director. space geek :) member of the Cody Astronomical Society. F1 fan, Aviation Fan, #MND #MNDA
Matt Cox
@coxy3237
Respiratory Physiotherapist
West Sussex North
@mndwestsussex
West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. facebook.com/mndwestsussexnโฆ
David Setters
@dsetters
Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Nick Goldup
@nickgoldup1
Chair and Chief Operating Officer of the Wheelchair Alliance CIC
minna
@minnadillard
I lost my loving husband to ALS in 2016. I'm fighting for treatments that should have been available to him and NOW should be available to ALL ALS warriors.
NNoo
@stsapollo
Christine Gilmore RN
@kickenalsass
ALS Bad-Ass. Registered Nurse. MHA . Married. โฟ๏ธ. DM Scammers will be reported.
Jonny
@psy_jonny
He/him, views are my own.๐ป Clinical Psychologist, cat father, vegetarian, allotmenteer, scorpio. ๐ณ๏ธโ๐ ๐โโฌ ๐ฟ โ
ShorterLab
@shorterlab
Countering deleterious phase transitions in ALS/FTD, PD, AD, and related disorders @Penn @PennMedicine @bb_upenn @BMBGGUPENN @PGGUPenn @PennNGG @CAMBUpenn
Seth Poling
@sethpoling10
Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Helen Paterson
@helenpaterson3
SLT & PhD student, passionate about AAC & Assistive Technology. Working in London with adults with communication difficulties.Views all my own.Pronouns she/her.
Alys Griffiths
@alysgriffiths_
Cymraes ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ โข psychologist โข dementia, MND & care home researcher โข chronic hiraeth โข based at @neuroshef
Helen Ashcroft-Kelso
@helen_ashcroft
Advanced Practice Physio / passionate about MND & NIV / MSc Respiratory Practice / Researching MND & telehealth / RF & NIV Trainer @Edforhealth / Views my own
Prof Janine Kirby
@j9kirby
Researcher & Lecturer at SITraN, University of Sheffield. Tweeting on MND/ALS, Neuroscience & Genomics
Rosie Lesley
@rosieclesley
Charlotte Massey
@char_massey
Specialist Neuromuscular Respiratory Physiotherapist @NHNN_therapies @UCL_QS_CNMD @UCLH @SheffieldHosp and NIHR clinical doctoral fellow @neuroshef
Andrea Pauls Backman (she/her)
@andreabackman05
Follow me at AndreaALSstrategy.bsky.social. Passionate about people w ALS/MND & fighting for cures.
Dr Sabrina Eltringham PhD
@sabrinaeltringh
Clinical Academic Speech and Language Therapist. @TheStrokeAssoc Postdoctoral Fellow interested in preventing complications post stroke. Views my own.
Dr Helen Findlay
@helenfindlay
PhD service user involvement in palliative care (Brunel U) MSc Politics (Strathclyde U) 'Fighting for Life' play re mum (dementia), dad (MND) & older life
Jo Howe
@drjohowe
ECR at Aston Uni Manage @therealisthub Special interest #realist methodology severe mental illness #Stroke #implementation #ESD #rural [email protected]
Dr. Rebecca Poz (also on Blue Sky)
@rebeccapoz
Consultant Clinical Psychologist & Neuropsychologist CPsychol AFBPsS. NHS. Independent. Believes in the power of people & truth. I laugh therefore I am. she/her
Lee Millard
@onein300
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Jaime Martin MD PhD
@drjaimemartin
Clin Research Med Director @Novartis, Movement Disorders Neuro @Synapticure,Telemed, #Research โค๏ธ #advocacy #telemedicine Tweets+views my own.
Jennifer Benson
@jbslt
Independent Speech and Language Therapist with special interest in MND. RCSLT Clinical Adviser for MND,, prog neuro, AAC and dysphagia. All views my own.
Chris McDermott
@profcjmcdermott
Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
MND Education
@mndeducation
The Education and Information team at @mndassoc for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
Em (she/her)
@emilyrich3s
Supporting people affected by life-shortening illness to share their stories. ~All views are my own~
SOD1 EndALS
@cehaddadnp
#ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Evan Campa
@evancampa
Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
๐๏ธ Paul @ Munros 4 MND ๐๏ธ
@munros4mnd
๐ Doddie Champion ๐ Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 ๐ ยฃ110,000 & counting... #DoingItForDad ๐
Jean C9orf72
@jeanc9orf72
C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Edward
@bruno23444
โ๏ธ๐ง๐ฉ offshore Engineer life โณon the shore๐and at sea๐ข
Sclerosis MDPI
@sclerosismdpi
Sclerosis is an international open-access journal on sclerosis and related diseases, published quarterly by @MDPIOpenAccess.
can yaman
@infcanyaman1989
Turkish actor
Catherine Hodge
@cel_hodge
Developing evidence-informed programmes at Hospice UK. Also running, and looking at my cats. Views all mine
MND Research
@mndresearch
We fund cutting-edge #MND #ALS research in the UK and worldwide. ๐ฌ Join us at the largest international conference dedicated to ALS/MND #alsmndsymp
Caroline McHutchison
@c_mchutchison
J1 Chod
@j1chod46397
Kate Kontou
@sk_physio
Physio - Passionate about tackling health inequalities. Current LHIIP PhD Fellow. Alumni Population Health & Future Leaders Fellow. Views my own.
Luna
@allison657902
Arthur
@arthurbutcher44
#motorsports ๐๏ธ #gardening๐ and hopefully a cure for #MND ๐๐ฆ can be found soon ๐๐ผ
Sarah Parton (she/her)
@sarahkarpar
A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Kielan Arblaster
@kielankielan
Policy Manager @mndassoc. Former Senior Policy Officer @alzheimerssoc.
Isha Gulati
@ishagulati_4
Claire Lang
@clairelang1
Mum of boys. MND Specialist Nurse & Care Centre Coordinator - Leeds MND Care Centre. Proud to be NHS. All views are my own.
Ian Flatt
@ianflatttdm
โWe all have our mountains to climb, itโs just so much easier when we do it togetherโ Fighting MND my way. #WhatsYourMountain #nottodaymnd
Chris Gaskell
@chrisgaskell92
Clinical Psychologist (FND+Neuro) | Lacrosse Amateur | Rescue Dog Lover
Alli Anthony
@allianthony2
Proud to be working for the Motor Neurone Disease Association
Caroline Bidder
@carolinebi9952
Ian Lev
@lev_ian
I have a rare form of MND known as PLS
Lavada
@lavada_bloom1
Better Outcomes in MND
@mndoutcomes
NIHR funded research led by @profcjmcdermott. Contact us at: [email protected] Tweets from the research team. #MND #ALS
samsmith
@ericdonald77
VULGAR๐
Nate Methot
@a_life_derailed
Author of "A Life Derailed: My Journey with ALS", a memoir 40 y/o living with #ALS since 2011. #EndALS #empathy Memoir and blog at natemethot.com
Tim Atkinson
@timjatkinsonmnd
@mndassoc (Motor Neurone Disease Association) National Campaigns Manager Now also on Bluesky at bsky.app/profile/timjatโฆ
Pamela Guadamuz
@pamguadamuz
Estudiante de Psicologรญa Asistente de investigaciรณn Universidad de Costa Rica Deutsch lernen ๐ฉ๐ช linkedin.com/in/pamelaguadaโฆ
Sancha Brody-Stalker
@sbrodystalker
Lucy Musson
@lucysmusson
PhD student exploring the use of technology to improve outcomes for people living with motor neuron disease. Public Involvement Lead on the CONTACT-GAD trial.
Rachel
@rachel_mnd
East Midlands Community Support Coordinator for @mndassoc interested in Health Psychology, Forest Bathing, carers support & volunteering
UoM ClinPsy
@uom_clinpsy
University of Manchester Clinical Psychology Doctoral Training Programme
Robert Crawford
@robert_677889