Emily Mayberry (she/her)
@ejmayberry
Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
ID: 1129464859597443072
17-05-2019 19:13:01
495 Tweet
317 Followers
483 Following
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
LifeArc
@lifearc1
Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
Kelsie Snow
@kelsieswrites
Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Dr Ahmad Al-Khleifat
@ahmadalkhleifat
Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Ady Barkan
@adybarkan
Fighting for social justice. Co-Executive Director, @BeAHero. Husband to @rachael_scar, Abba to Carl & Willow. Paralyzed by ALS. Author: Eyes to the Wind.
Dr Allan Shaw
@smurfation
Post-Doc at Uni of Sheffield, trying to find cures for MND and FTD with @FerraiuoloLab Member of Vegan Runners. Proud parent to Mouse.
Victoria Brownworth
@vabvox
Award-winning investigative journo ▪️ 2022 Society of Professional Journalists Award/Newspaper Feature Reporting ▪️2023 NLGJA/Curve Award ▪️ Socialist ▪️Widow
CardiffandVale UHB
@cavuhb
Follow @CV_UHB
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Andrea Goodman
@andreasgoodman
CEO @iamalsorg, formerly @ccalliance, dc mama, patient & social justice advocate. opinions are my own.
Jenny Stevens
@jenny_stevens
Deputy features editor @guardian @guardiang2
Professor Matthew C. Kiernan AM Nerve Centrals
@nervecentrals
CEO & Executive Director @Neuraustralia Scientia Professor of Neuroscience @UNSW. Neurologist @SEastSydHealth. President @brainfoundoz Editor Emeritus @JNNP_BMJ
Matt Cox
@coxy3237
Respiratory Physiotherapist
Rob Burrow CBE
@rob7burrow
Legacy account of Rob Burrow CBE. Posts by the Burrow family and in support of the MND community.
West Sussex North
@mndwestsussex
West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. facebook.com/mndwestsussexn…
Dr Madeleine Pownall
@maddi_pow
Associate Professor. Keen bean. Feminism, pedagogy, reflexivity, open science. Author of ABSENT MINDS (@headlinepg, 2026) 📖 She/her 🌻
Rachel
@psychoblox
NHS Clinical Psychologist (VMO). Mum, wife, daughter, sister, aunt, cousin,niece, friend, adult human female.
NNoo
@stsapollo
MND Scotland
@mndscotland
Making time count for people with motor neuron disease (MND).
Erin M Beal
@bealerin
Senior Clinical Psychologist | she/her | Neuropsychology | NeuroRehab | Older Adults | All views my own 🇮🇪
Davina Rivers
@davinarivers
My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
Emma Patchwood
@drpatchwood
Researcher, experienced in Stroke Rehabilitation and Psychology. All opinions are my own. research.manchester.ac.uk/portal/emma.pa…
Seth Poling
@sethpoling10
Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Adam Smith
@betterresearch
#Dementia Research at @UCL - creator of Dementia Researcher and other stuff! Born in the north a long time ago.
Alys Griffiths
@alysgriffiths_
Cymraes 🏴 • psychologist • dementia, MND & care home researcher • chronic hiraeth • based at @neuroshef
Helen Ashcroft-Kelso
@helen_ashcroft
Advanced Practice Physio / passionate about MND & NIV / MSc Respiratory Practice / Researching MND & telehealth / RF & NIV Trainer @Edforhealth / Views my own
Dan Wuori
@danwuori
Dan Wuori, Ph.D. | Author, The Daycare Myth: What We Get Wrong About Early Care and Education (and What We Should Do About It) available now from @TCPress
Rosie Lesley
@rosieclesley
Live Like Lou
@livelikelou4
Leaving ALS better than we found it #ONWARD #LiveLikeLou
Brian Dickie
@drbriandickie
Chief Scientist @ MND Association
ALS/MND Alliance
@alsmndalliance
A World Free of #ALS #MND
Dr Natalie Jones #BISTRo
@natlouj
Occupational Therapist, Primary Care Leadership, NIHR, Lecturer, #Stroke #Research #Primarycare #HealthInequalities #EBCD #DigitalTransformation Views own
Pauline Callagher 💙
@pcallagher
Works in the NHS. Views all mine, retweets are not an endorsement. She/her
Charlotte Massey
@char_massey
Specialist Neuromuscular Respiratory Physiotherapist @NHNN_therapies @UCL_QS_CNMD @UCLH @SheffieldHosp and NIHR clinical doctoral fellow @neuroshef
Andrea Pauls Backman (she/her)
@andreabackman05
Follow me at AndreaALSstrategy.bsky.social. Passionate about people w ALS/MND & fighting for cures.
Dr Sabrina Eltringham PhD
@sabrinaeltringh
Clinical Academic Speech and Language Therapist. @TheStrokeAssoc Postdoctoral Fellow interested in preventing complications post stroke. Views my own.
Longitude Prize on ALS
@longitude_prize
The Longitude Prize series from innovation prize experts @Challenge_Works. Longitude Prize on ALS launching June 25th 2025!
MNDA East Sussex
@mndaeastsussex
Welcome to the Motor Neurone Disease Association East Sussex branch! Please feel free to get in touch with us!
Jo Howe
@drjohowe
ECR at Aston Uni Manage @therealisthub Special interest #realist methodology severe mental illness #Stroke #implementation #ESD #rural [email protected]
Emily♡
@itsemilykaty
Author of GIRL UNMASKED: HOW UNCOVERING MY AUTISM SAVED MY LIFE (the Sunday Times Bestseller) 📚 FIND ME ON INSTA/LINKEDIN/TIKTOK
MNDA Soton & Winch
@mndasoton
Southampton & Winchester Group of the Motor Neurone Disease Association. Championing the amazing work of our volunteers. #MND
Lee Millard
@onein300
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Jaime Martin MD PhD
@drjaimemartin
Clin Research Med Director @Novartis, Movement Disorders Neuro @Synapticure,Telemed, #Research ❤️ #advocacy #telemedicine Tweets+views my own.
EHDN Collaborations
@ehdn_grantm
European Huntington's Disease Network ehdn.org -This account is no longer active. EHDN is now on LinkedIn and BlueSky
Ammar Al-Chalabi
@ammaralchalabi
Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
My Name'5 Doddie Foundation
@mndoddie5
Registered charity, established by Doddie Weir & friends to fund vital research into motor neuron disease (MND) & support those living with MND.
Chris McDermott
@profcjmcdermott
Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
I AM ALS
@iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra W. Marlowe
@sandrawmarlowe
Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
I’m Dying To Tell You Podcast with Lorri Carey
@lorrispodcast
Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
MND Education
@mndeducation
The Education and Information team at @mndassoc for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
EndTheLegacy
@end_the_legacy
Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Sarah Parton (she/her)
@sarahkarpar
A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Shah Minokadeh, M.D.
@minoshah
Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
UK MND Research Institute
@ukmndri
A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Kielan Arblaster
@kielankielan
Policy Manager @mndassoc. Former Senior Policy Officer @alzheimerssoc.
UK DClinPsy MutualAid
@dclinmutualaid
Support for UK DClinPsy application fees. contact: [email protected]
MND Peer Support
@mnd_peersupport
A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
Better Outcomes in MND
@mndoutcomes
NIHR funded research led by @profcjmcdermott. Contact us at: [email protected] Tweets from the research team. #MND #ALS
Dr Lauren M Hickling 💙
@lmhicklingpsych
Clinical Psychologist in Diabetes & Breast Care @NNUH. Honorary Fellow @UEAMed🧠 Previously @PsychLincoln & @KingsIOPPN. ACT, CBT, CFT, EMDR. Views my own.
Nate Methot
@a_life_derailed
Author of "A Life Derailed: My Journey with ALS", a memoir 40 y/o living with #ALS since 2011. #EndALS #empathy Memoir and blog at natemethot.com
Tim Atkinson
@timjatkinsonmnd
@mndassoc (Motor Neurone Disease Association) National Campaigns Manager Now also on Bluesky at bsky.app/profile/timjat…
Rachel
@rachel_mnd
East Midlands Community Support Coordinator for @mndassoc interested in Health Psychology, Forest Bathing, carers support & volunteering
Neuropsychology workshops for clinicians/students
@bitesizeneuro
Virtual lunchtime sessions to discuss aspects of neuropsychology in daily practice. Presented by Mark Mulrooney & Diane Gillan. Next workshop to be announced!
Patients United2EndMND
@united2endmnd
We are a group of patients, working to support the drive for a cure for MND.
MND Fylde & Wyre Group
@mndfylde_wyre
Volunteers working in support of the Motor Neurone Disease Association in the Fylde and Wyre area.
Dr Lisa Nivison-Smith
@lnivisonsmith
NHMRC Research fellow at @UNSWoptomvsci 🇦🇺 studying the retina & macular degeneration #WomeninSTEM 👩🔬 Mother 👩👧👦 #scicomm enthusiast 📣 Cake lover 😋
MND Navigate
@mndnavigate
Diagnosed with MND 2019. Sharing my journey with MND to hopefully inspire others to live strong and with positivity-Also founder of MND Elite -views are my own