Time Magazine honors It'sME(Jaime) and Prof. Akiko Iwasaki as among top 100 health influencers this year. Well-deserved!
virology.ws/2024/05/10/tri…

Out grateful thanks to our European ME Alliance colleague, the Irish ME Trust (IMET), for again sponsoring the cpd-accredited Invest in ME Research International ME Conference Week events in June
Thank you IMET
investinme.org/IIMEC16.shtml#…
#mecfs #research #IIMEC16 #IMECW2024 #sponsor #CPD

Saturday May 18 Caregiver Support Call (for caregivers of people with ME ( #MyalgicEncephalomyelitis ), #LongCOVID and associated conditions)

meaction.net/event/me-careg…

15:30 ET/20:30 in GB & Ireland

Find the time in your time zone here: timeanddate.com/worldclock/fix…

#MEcfs #CFS #PwME

10th March 2003. A piece about the late Shirley Conran from the Daily Telegraph. #MyalgicEncephalomyelitis #myalgice #cfs me #mecfs #cfs #chronicfatiguesyndrome .

Here comes our next Community Keynote contribution 🎬🤩

Please welcome Harry Leeming (Harry Leeming), Founder of Visible !

Harry will speak about unlocking wearable technology to measure and manage #LongCovid
#UniteToFight2024

Sneak preview World ME Alliance Breaking Borders event of film launcing #WorldMEDay 12 May by Hope 4 ME & Fibro NI Now, host Sian L remembering those w the most severe form of ME; & need 4 cross-border approach
#MyalgicEncephalomyelitis #LongCovid Action for M.E.
#GlobalVoiceforME

It's me up next sharing Action for M.E. advocacy and policy work

#MECFS #WorldMEDay #MyalgicEncephalomyelitis #LongCovid Action for M.E.
#GlobalVoiceforME

'we had a harder time in Portugal as there was virtually no knowledge of this illness' #MECFS #MyalgicEncephalomyelitis Their persistence paid off!

'It was really amazing to have you all there present'; Joan refelcting on all the contributions, presentations and videos that helped create a great conference

The formidable Joan talking about the 1st #MECFS international research conference in Portugal

#MECFS #WorldMEDay #MyalgicEncephalomyelitis #LongCovid Action for M.E.
#GlobalVoiceforME

Stand by for some news coverage from (at least) one of our local papers Cambridge Independent next week!

Mark will be taking his magnificent billboard round the city on his car to protest for research, support, medical training!
#LongCovid #MECFS #Cambridge
cambridgeme.org.uk/events/

.Sajid Javid Sean O'Neill any ideas please?

Great to hear the work of Solve ME/CFS Initiative from the new CEO, Emily Taylor and co-chair with me World ME Alliance

#MECFS #WorldMEDay #MyalgicEncephalomyelitis #LongCovid

#GlobalVoiceforME

Italy's turn - Giada talking about 'NONSOLOFATICA' (NOTJUSTFATIGUE) book launch Jan 2023, conference April 2023, 10 episode podcast March-May 2024 for World ME Alliance Breaking Borders event LIVE now

#MECFS #WorldMEDay #MyalgicEncephalomyelitis #LongCovid
#GlobalVoiceforME

If I had limited funds for #LongCovid research, I would not have wanted to spend it on studying sleep disturbance, exercise, meditation or other lifestyle measures. Instead, invest in new and repurposed therapies that target neuroinflammation, autoimmunity and mitochondrial

S Blitshteyn MD, FAAN, Dysautonomia Clinic It has been very frustrating for many of us PwME, watching billions of research dollars be wasted on lifestyle management strategies that have already failed to cure a single person with ME/CFS. Didn't LC researchers read the literature?

Mlindeni & sam from South Africa on SICK Pride event 2023 World ME Alliance Bridging Borders event live now!

#MECFS #WorldMEDay #MyalgicEncephalomyelitis #LongCovid
#GlobalVoiceforME

Next up World ME Alliance Breaking Borders event is Martin Hippe, Mirame Arts, sharing how high impact films assist with commes & advocacy

#MECFS #WorldMEDay #MyalgicEncephalomyelitis #LongCovid Action for M.E.
#GlobalVoiceforME

Open letter calling for the Royal College of Occupational Therapists to make a public response to the harmful government rhetoric, demonisation, and policy proposals targeted at disabled people and people with long term health conditions openletter.earth/open-letter-ca…

This is a full-page article in the Galway Advertiser this week. It followed our press release . Thanks to Marie Curran for once again telling her story.

Can be read for free here:
advertiser.ie/galway/article…

#MEcfs #CFS #PwME