The august CDC in the US have redesigned their ME/CFS section [which contains sections for patients/general public & healthcare providers including a section from medical students].

Unclear to me how much is new material

cdc.gov/me-cfs/about/i…

#MEcfs #CFS #PwME

Adam 20/

May is M.E. Awareness Month.

You can help by sharing and/or liking
this video, a 1993 documentary, Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom Hennessy.
youtube.com/watch?v=SyB49g…

Day #20

#MyalgicE
#MyalgicE ncephalomyelitis

20/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #20

#MyalgicE
#MyalgicE ncephalomyelitis

💙 Today (May 19) is Blue Sunday 2024! 💙

Join us for the Blue Sunday Tea Party For M.E. 2024, a day of connecting, sharing, and spreading awareness for those living with ME/CFS. OMF donation link: ow.ly/ai6m50RKozv

#BlueSunday2024 #TeapartyforME2024 #mecfs #pwME

1) Interesting new study from Canada from the research team of Dr. Luis Nacul.

The authors recruited participants from ‘CanPath’: a population-based cohort that includes data from over thousands of Canadians.

Everyone, especially anyone even remotely interested in #ME , should watch this. ME can happen to anyone especially after a virus. Knowing the history of this illness is vital to see why we still have no treatments and now #LongCovid patients are joining us dialogues-mecfs.co.uk/films/the-tang…

Be great if anyone is thinking of doing #Bluesunday
for @invest_in_me (Invest in ME Research) 🇪🇺 so more #research into #myalgicencephalomyelitis can happen in the #UK at UK/European Centre of Excellence for ME where #HCPs can be trained and eventually patients can receive treatment.
🩵It really needs funding 🩵

#BlueSunday : Tea Party For M.E. was started by @theslowlane_me & is TOMORROW.

Learn more: the-slow-lane.com/blue-sunday-20…

Donate to #MEAction : meaction.funraise.org/fundraiser/ann…

@meactmaryland is having a virtual pajama party at 4 pm ET on May 19. tr.ee/qoozuYt5sv

#pwME #TeaPartyForME

M.E. is one of THE most disabling diseases and yet the support and services just aren’t there. There’s also no cure and very little in the way of actual treatments.
Please help bring about change by joining in with #BlueSunday2024

tinyurl.com/BlueSunday2024

#TeaPartyForME2024

New preprint:

Epidemiology of #MyalgicEncephalomyelitis among individuals with self-reported #ChronicFatigueSyndrome in British Columbia, Canada, and their health-related quality of life

medrxiv.org/content/10.110…

#MEcfs #CFS #PwME

Today's highlight is for the Blue Sunday Tea Party

When Anna Redshaw had a virtual party for her birthday, it was a seed of an idea that led to the Blue Sunday Tea Party.

Join us today for the Blue Sunday #TeaPartyForME2024 as we drink tea, eat cake & gather online to chat & raise funds for #MECFS charities.

Tag us in your photos & follow #BlueSunday2024 & #TeaPartyForME2024 to join the community!

To donate visit: ow.ly/hUYA50QKJ1H

#pwME

Our latest News in Brief post gives headlines and links to further reading for #MECFS , #LongCovid and related news and research from w/c 13th May.

Topics covered this week:
News, advocacy and articles
Research news
Crowdfunding
Coming events
& Research

s4me.info/threads/news-i…

Many people in medicine still consider PACE to be 'well conducted study published in Lancet' and that it 'proved CFS is psychosomatic'.

No. It was a huge piece of sh*t and a megascam.

'It's a piece of crap!' Now would be a good time to show davidtuller your appreciation following his presentation today UniteToFight2024. Please donate to his spring fundraiser, only 15 days to go.
#MyalgicEncephalomyelitis #LongCovid UniteToFight2024 crowdfund.berkeley.edu/project/42302?…

Adam 19/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by re-tweeting and/or liking this video. 'A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue Syndrome (CFS) to other people' (2 minutes)

youtu.be/G4Rijt8jtZg

Day #19