I am SO excited to share that I won the BEST ACHIEVEMENT award at The People's Book Prize!

'The Best Achievement award is given each year to the author whose book advances the human condition, benefitting their community, or the world at large in some way.'
Hashtag Press #pwME

Just released title that Dr Speight has chosen for the 5 free upcoming talks around Ireland.

More info here:
irishmecfs.org/blog/dr-speigh…

#MEcfs #PwME

“…herpesviruses … facilitate their persistence through epigenetic regulation of their own and the host genome. […] latent viruses—particularly Epstein–Barr virus—may employ in long-term epigenetic reprograming in ME/CFS”

M.E. takes away so much from those we love.

Was pleased to lead a Westminster Hall debate UK Parliament yesterday in support of this community and very much welcomed the fresh commitments from Government. Action for M.E.

So far this year we’ve raised another £380 for ME Research UK.

Please help me to raise the extra £204 needed to reach my revise target of £15,000 for my birthday tomorrow 🙏 justgiving.com/fundraising/Ro…

Open - RECRUITING: Investigating the impact of ME/CFS and Long COVID on visual perception and sustained attention using Pupil Frequency Tagging and EEG
s4me.info/threads/recrui… via Science for ME online forum

From Serbia:
Eight-Week Creatine-Glucose Supplementation Alleviates Clinical Features of #LongCOVID

Free full text:
jstage.jst.go.jp/article/jnsv/7…

#PwLC #postcovid #postcovid 19 #LC

2/

May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.

youtu.be/TGIo1v7KVJQ

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This film will give you an introduction to PEM (Post Exertional Malaise).

#MEcfs #PwME

2/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #2

#MEcfs #CFS #PwME

Berkeley's crowdfunding for Trial By Error has gotten 40 donations in its first day. Thanks! crowdfund.berkeley.edu/project/42302

With your help, #DecodeME has built the world’s largest data set on ME/CFS.

We are now welcoming data access applications from researchers who wish to use this in studies into ME/CFS and other diseases.

Find out more ➡️ shorturl.at/iBW78

Andrew Andrew Gwynne MP at yesterday's #MEdebate talking about how half of people with #LongCovid have symptoms that mirror #MECFS and his personal experience of #LongCovid . 'I was in bed for all of today, and I have only come in to give this speech.'

Thanks to Mike's EU Maras for M.E for this amazing achievement
Enabling biomedical research UK/European Centre of Excellence for ME in Norwich Research Park
and raising awareness around #Europe
Our great thanks to Mike and his family
justgiving.com/fundraising/mi…
#mecfs Quadram Institute #research #philanthropy

Thank you very much to Lee Colligan for undertaking this marathon walk as he honours his late brother Josh Colligan and raises money and awareness for M.E. 👍👏

His donation page is here idonate.ie/fundraiser/Lee… if anyone wants to support him & us

#MEcfs #CFS #SevereME

Very glad to see research on visual processing in ME. Absolutely catastrophic symptoms for me personally.

Leicester-based study looking for participants.

New from the Netherlands:

Another infection associated with long-term negative effects

Work participation, social roles, and empowerment of Q-fever fatigue syndrome patients ≥10 years after infection

journals.plos.org/plosone/articl…

#QFS #CFS #MEcfs

New Leicester (UK) #MEcfs & #PostCovid study that is recruiting

Investigating the impact of ME/CFS & #LongCOVID on visual perception & sustained attention using Pupil Frequency Tagging & EEG

dougiebarrett.github.io/Lab/pages/ME_C…
ME Research UK-funded

Not a biopsychosocial study

#CFS #PwME

David Tuller is weer op zoek naar donaties om zijn werk voor ME/cvs voort te zetten. Je kunt je gift 𝗼𝗼𝗸 overmaken op NL85 INGB 0004 2869 57 t.n.v. ME/cvs Vereniging. Vul als omschrijving ‘gift t.b.v. Tuller’ in.
Let op! 𝗩𝗢𝗢𝗥 29 𝗠𝗘𝗜 𝟮𝟬𝟮𝟰!

crowdfund.berkeley.edu/project/42302