ORDIndia
@ORDIndia
National rare disease advocacy, 24/7 patients hotline, engage Hospitals, Physicians, Pharma/Biotech/Dx industry, Orphan drugs act for India, Global Alliances
ID:2927321611
http://ordindia.in 12-12-2014 02:42:09
2,3K Tweets
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Inviting you for 10th #Anivarsary and #Rarestar #Awards for #RareDisease Community for the first time and observing #DNA day
Nominate to #RareStar #India first #Awards for #RareDisease
Community
To Nominate Click: forms.gle/JLntz8a2caXck2…
Prasanna Shirol
Madhan Gopal Lalith Seetharaman Sangeeta Barde
#RareDisease : Meet Swara & Shaksi, 5mth-old twins with CCHS. Sleep means death for them, as their brains fail to signal breathing when asleep. Since birth, they've been on ventilators, a lifelong support for survival. Approx only 10 cases exist in India.
indianexpress.com/article/cities…
A big thank you for all those who participated in the #Racefor7 awareness run and made it a successful one. It was indeed a memorable event.🏃♀️🏃
Lets pledge to create more awareness on #RareDiseases !
#RareDiseaseDay #Bengaluru
ORDIndia Rakesh K Mishra Prasanna Shirol
Kudos to Kolkata Municipal Corporation Atin Ghosh Official Sir for this BIG announcement of their PILOT PROJECT for #Rarediesease screening #WorldRareDiseaseDay
Bengal leaving footprints for the nation to follow! Rare Disease Day RARE Revolution Magazine EURORDIS-Rare Diseases Europe ORDIndia 𝐇𝐞𝐚𝐥𝐭𝐡 𝐓𝐢𝐦𝐞𝐬 India Medical Times
The CLOCK is running! #RareDiseaseDay #iitgn #fshd ORDIndia IIT Gandhinagar Dept of Biological Science and Engineering @iitgn IIT Gandhinagarcompbio
Thank you CM of Karnataka CM Siddramaiah DK Shivakumar Dinesh Gundu Rao/ದಿನೇಶ್ ಗುಂಡೂರಾವ್ Dr. Sharan Prakash Patil for support to #RareDisease #patients Congratulations for being 1st state to allocate budget. But Rare disease & Health affects all people of all caste not selectively Prasanna Shirol
Thank you Orphanet for spotlight on #ORDI We have just completed satisfactory 10 years in our Vision 'A Better Life for people with Rare Diseases'
Prasanna Shirol Ministry of Health NITI Aayog Dr Mansukh Mandaviya (मोदी का परिवार) Dr L Swasticharan ICMR Madhan Gopal Lalith Seetharaman Sangeeta Barde PMO India
Thank you Ramesh Aravind fo your support to #RareDisease & Joining us for #racefor7 on 25th Feb @ St Jospeh's Indian School, Near UB City to flag our 9th edition in 15 cities. 'ONE NATION ONE DAY TOGETHER FOR RARE' #RegisterNow racefor7.com Prasanna Shirol #care
Our Director Prasanna Shirol is Panelist for a session on Patient's perspective on #clinicaltrials at the 17th Annual #conference of #ISCR in #Hyderabad Patient centricity is the future of Clinical trials #rarediseaseawareness #policymakers #racefor7 #icareforrare #orphandrugs
We need more and more such #inclusive services for the #specialchildrens #parents for #mentalhealth #Wellbeing of the family who have limited or no option in the society Smitha Sadasivan Vaishnavi Jayakumar #divyang #sightseeing
International Universal Health Coverage Day aims to raise awareness of the need for strong and resilient health systems and universal health coverage with multi-stakeholder partners. #UHC #HealthForAll #rarediseases ORDIndia
1436 duplicate #doctors found #Karnataka playing with precious life from #allopathy #Ayurveda #homeopathy #naturopathy This is tip of Iceberg in the country. But the fine is only Rs 25000 looks like a price of #Life in this country. Massive action required . Ministry of Health