This is special ORDIndia. Thank you for the honour, but a bigger thank you to you and your team for what you do for the cause of rare diseases in the country. The rare disease community has been such an inspiration

Inviting you for 10th #Anivarsary and #Rarestar #Awards for #RareDisease Community for the first time and observing #DNA day

Nominate to #RareStar #India first #Awards for #RareDisease
Community
To Nominate Click: forms.gle/JLntz8a2caXck2…
Prasanna Shirol
Madhan Gopal Lalith Seetharaman Sangeeta Barde

Happy to speak at #concured conference for unknown and #rare #eyediseases conducted by Dr. Shroff's Charity Eye Hospital NIH #cegc #cured at #NewDelhi . It is encouraging to see activities from different specialities after #rare disease #policy in #bharat . ORDIndia

#RareDisease : Meet Swara & Shaksi, 5mth-old twins with CCHS. Sleep means death for them, as their brains fail to signal breathing when asleep. Since birth, they've been on ventilators, a lifelong support for survival. Approx only 10 cases exist in India.
indianexpress.com/article/cities…

7Km for 7000 rare diseases in India #Racefor7 ORDIndia

A big thank you for all those who participated in the #Racefor7 awareness run and made it a successful one. It was indeed a memorable event.🏃‍♀️🏃

Lets pledge to create more awareness on #RareDiseases !

#RareDiseaseDay #Bengaluru

ORDIndia Rakesh K Mishra Prasanna Shirol

Kudos to Kolkata Municipal Corporation Atin Ghosh Official Sir for this BIG announcement of their PILOT PROJECT for #Rarediesease screening #WorldRareDiseaseDay
Bengal leaving footprints for the nation to follow! Rare Disease Day RARE Revolution Magazine EURORDIS-Rare Diseases Europe ORDIndia 𝐇𝐞𝐚𝐥𝐭𝐡 𝐓𝐢𝐦𝐞𝐬 India Medical Times

The CLOCK is running! #RareDiseaseDay #iitgn #fshd ORDIndia IIT Gandhinagar Dept of Biological Science and Engineering @iitgn IIT Gandhinagarcompbio

Thank you for your participation and support to spread awareness

Thank you CM of Karnataka CM Siddramaiah DK Shivakumar Dinesh Gundu Rao/ದಿನೇಶ್ ಗುಂಡೂರಾವ್ Dr. Sharan Prakash Patil for support to #RareDisease #patients Congratulations for being 1st state to allocate budget. But Rare disease & Health affects all people of all caste not selectively Prasanna Shirol

Thank you Orphanet for spotlight on #ORDI We have just completed satisfactory 10 years in our Vision 'A Better Life for people with Rare Diseases'
Prasanna Shirol Ministry of Health NITI Aayog Dr Mansukh Mandaviya (मोदी का परिवार) Dr L Swasticharan ICMR Madhan Gopal Lalith Seetharaman Sangeeta Barde PMO India

Race for 7, the 7 km annual marathon to raise awareness for the rare disease community in India is here, and IQVIA is ready to run with purpose! 

Let's make every step count for those battling rare diseases.

ORDIndia Arman

#IQVIARunsForACause #RaceFor7

Thank you Ramesh Aravind fo your support to #RareDisease & Joining us for #racefor7 on 25th Feb @ St Jospeh's Indian School, Near UB City to flag our 9th edition in 15 cities. 'ONE NATION ONE DAY TOGETHER FOR RARE' #RegisterNow racefor7.com Prasanna Shirol #care

Our Director Prasanna Shirol is Panelist for a session on Patient's perspective on #clinicaltrials at the 17th Annual #conference of #ISCR in #Hyderabad Patient centricity is the future of Clinical trials #rarediseaseawareness #policymakers #racefor7 #icareforrare #orphandrugs

We need more and more such #inclusive services for the #specialchildrens #parents for #mentalhealth #Wellbeing of the family who have limited or no option in the society Smitha Sadasivan Vaishnavi Jayakumar #divyang #sightseeing

Many ask me why everything related to #Health #Medical #Biotech and #advocacy foccussed in #south specially in #Bengaluru Here is one of the answer ORDIndia

Application for Grand Challenges India call on Women Leadership in STEM closes soon. Be a part of the fully-funded leadership development program by GCI DBT-BIRAC and WomenLift Health.

📢Application closes on 20th December, 2023

Apply at: birac.nic.in/desc_new.php?i…

International Universal Health Coverage Day aims to raise awareness of the need for strong and resilient health systems and universal health coverage with multi-stakeholder partners.  #UHC #HealthForAll #rarediseases ORDIndia

Privileged to be speaker at 1st International Patient summit 2023 organised by Patient Academy for innovation and Research in #Delhi
#Patient #health #raredisease ORDIndia