'Medical facilities continue to harm people of color and put hurdles in the way of getting diagnosed.'

#GlobalVoiceForME Cynthia Adinig tells her story on #WorldMEDay , highlighting the racism and ableism still rife in medicine.

#BlackHealthMatters #MECFS
buff.ly/4bx8tml

55 years since #MyalgicEncephalomyelitis was recognised by World Health Organization (WHO)….at least 55m ill today. A global health crisis happening right now.
World ME Alliance working together, calling for recognition, respect and research on #WorldMEDay .
Join us #GlobalVoiceforME

“Divestment is impossible”—it’s not. It’s already happening.

“Awareness weeks and days and months are allotted throughout the year, a point of publicity and engagement with one cause or condition or another. May seems particularly busy…It’s a crowded place of (unmet) need for awareness and understanding.”

#WorldMEDay #TeachMETreatME

EDS in the news

theguardian.com/society/articl…

The first in a series of short bite-sized events for #MEAwarenessWeek in collaboration with #MEAction Network UK #MEAction Scotland - with thanks to Denise Spreag & all the readers from Moving Mountains...more to follow.

On this #MEAwarenessDay #WorldMEDay I've written a special post & made a series of special events for #MEAction Network UK - w thanks to Denise & all the Moving Mountains readers who participated - new micro events will be published each day over the next week 👀💚
open.substack.com/pub/louisekenw…

It’s #MEAwarenessDay 💙 I got sick with a virus the summer of 2015 and had to quit everything. I’m grateful I was able to find ways to make art again, but I’m still very limited in what I can manage. Here’s some ways you can enjoy my art & help the #MECFS community

This is the first of 7 micro events for #MovingMountains in collaboration with #MEAction Network UK - readings from 6 contributors- 1 each day through #MEAwarenessWeek
Launching today #WorldMEAwarenessDay

The first in a series of short bite-sized events for #MEAwarenessWeek in collaboration with #MEAction Network UK #MEAction Scotland - with thanks to Denise Spreag & all the readers from Moving Mountains...more to follow.

On this #MEAwarenessDay #WorldMEDay I've written a special post & made a series of special events for #MEAction Network UK - w thanks to Denise & all the Moving Mountains readers who participated - new micro events will be published each day over the next week 👀💚
open.substack.com/pub/louisekenw…

Moving Mountains readings, introduced by Louise Kenward. Watch on YouTube ow.ly/ORaw50RCos2

Find the creative writing in nature workshop here: https:/ /ow.ly/rkZ150RniM7. To buy Moving Mountains use this link ow.ly/TkG650RCos1

#TeachMETreatME #MillionsMissing

Moving Mountains readings, introduced by Louise Kenward. Watch on YouTube youtu.be/LiBNwhafJzo

Find the creative writing in nature workshop here: https:/ /ow.ly/rkZ150RniM7. To buy Moving Mountains use this link ow.ly/WPK750RnivX

#TeachMETreatME #MillionsMissing

'The 12th of May Florence Nightingale's birthday... she was also a highly acclaimed statistician Few know that on returning from the Crimean War she was bed bound for many years It seems she suffered with a condition similar to ME poss as a result of an infection' #MEAction

Find out how to take part in our ‘Postcards to Doctors’ campaign as part of #TeachMETreatME for #MillionsMissing 2024. Send postcards to your doctors or local GP surgeries asking them to learn more about ME.

ow.ly/TpUJ50Rzf6i

Episode 1 coming soon…👀

#WorldMEDay #MovingMountains

How things have changed in 30 years.

(Nothing has changed in 30 years).
Grateful to Royal Free 1955 for research & reality checks. #WorldMEDay #InternationalMEDay

Revisiting #WorldMEDay blog from 2021. This year with a book platforming #pwME & new hcp chapters written, but no visible change for patients w #MECFS - new micro events from #MovingMountains w #MEAction Network UK to follow.

Still here. Still writing. Still sick.
zebrapsych.wordpress.com/2021/05/12/a-d…

Reminder we’re in a big Covid surge so if you’re ill & you haven’t been taking precautions against airborne infection, it’s probably Covid. Please be sensible & thoughtful & don’t infect others.

Many people don't know of Florence Nightingale's prolonged illness after returning from the Crimea. Her nursing contribution is celebrated often but her birthday also marks #WorldMEDay #InternationalMEDay #MECFS marking #MillionsMissing with this disabling underfunded illness.