Just over 3 years ago I was discharged from a 7 month hospital stay where I was repeatedly and deliberately pushed to unconsciousness, made to faint on a tilt table several times a week, had the lights switched on and blinds opened when it caused pain #ExposeMENow #SaveCarlasLife

Rishi Sunak wants to ban our GPs from being able to sign us off when we're sick! Sign the petition now and demand these dangerous new plans are dropped. 38d.gs/ie_a

Carla’s ordeal echoes the tragic deaths of Merryn Crofts and Maeve Boothby O'Neill. The NHS must stop the maltreatment and neglect of severely ill #MyalgicEncephalomyelitis
patients. #SaveCarlasLife #MECFS #ExposeMEnow GMC Royal College of Physicians NHS England thecanary.co/uk/analysis/20…

I'm incredibly excited about our analysis of the massive omics data we've collected from #MECFS patients over the past 6 years. Just wrapping up our latest paper, about the links between immune parameters, metabolomics, & symptoms. I think it’ll make a major impact in the field😊

I’m saying this again.

Even if I got no benefits, I still couldn’t work. I will just die. Slowly, granted, but I will die. #ME #ToriesOut #NotFitForWork #Sunak

Anyone who talks about 'secondary gains' has either
a) never met a person with a long term health condition
b) has so little empathy I'd be genuinely concerned to be near them, or;
c) is just deliberately baiting people who are chronically ill - in which case, see b)

There is no such thing as “a sick note culture.” There is a record high NHS waiting list, crippling housing costs, widespread food poverty, stagnant wages and inadequate benefit rates, a broken social care system, dire mental health services, and closed Sure Start centres.

I spoke earlier today with The Guardian's George Monbiot about his recent scathing column on a 'national scandal'--the longstanding mistreatment of those with the illness (or cluster of illnesses) currently known as ME/CFS. Thanks George Monbiot!
virology.ws/2024/04/18/tri…

My apologies for not being able to do more during the twitter storm earlier, 15 minutes into it starting I had an unexpected phone call with deeply shocking upsetting news
Grateful as ever for Carole Bruce coming to the rescue💙
Shock really impacts #pwME very severely

I’m absolutely sick of the #ME charities and the APPG in Parliament treating ME advocacy as a ming vase and tiptoeing gently around the issues. Patients have died, it’s common knowledge that at least 3 young women are being mistreated in hospitals at the moment. Act now or go.

Tragically, hospitals don’t know how to treat #SevereME . Patients have died because of their stubborn, outmoded ideas. It’s time for them to learn, to follow NICE guidelines and to stop causing so much unnecessary suffering. Listen! #SaveCarlasLife #ExposeMENow

We're back #SaveCarlasLife #ExposeMENow please keep tweeting twitter.com/i/broadcasts/1…

No one should feel tortured at the hands of medical professionals. While drs debate if her condition is psychological, Carla is suffering horrifically, has repeatedly lost consciousness & had seizure-like events that the hospital is ignoring #SaveCarlasLife #ExposeMENow GMC

Carla’s drs ignore NICE guidelines & psychologise her ME This isn’t the first time NHS has failed severe ME patients. Action needed #SaveCarlasLife #ExposeMEnow GMC Patient Safety Commissioner Victoria Atkins thecanary.co/uk/analysis/20…

We need to share this as widely as possible #SaveCarlasLife

Carla has now been having seizure-like events for over FIVE DAYS yet West Middlesex University Hospital has STILL not sent a neurologist to see her, as of 10am today. She had NEVER had them before being admitted there #ExposeMENow WATCH

Carla’s ordeal echoes tragic deaths of Merryn Crofts & Maeve Boothby O'Neill. NHS STOP abusing & murdering people w/severe ME #SaveCarlasLife #ExposeMEnow GMC Royal College of Physicians @VictoriaAtkins@SeemaMalhotra1@rcpsych The Guardian The Times and The Sunday Times thecanary.co/uk/analysis/20…

Despite biological evidence of severe neuro-immune disease ME, NHS cont’ to psychologise & fail severe patients like Carla #SaveCarlasLife #ExposeMEnow Victoria Atkins Wes Streeting MP GMC Royal College of Psychiatrists @ptsafetynhs We DEMAND a protocol 4 severe ME! organise.network/actions/petiti…

#SaveCarlasLife #ExposeMENow live from West Middlesex hospital twitter.com/i/broadcasts/1…