
TSC Alliance
@tscalliance
The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex
ID: 15980338
http://www.tscalliance.org 25-08-2008 11:51:24
6,6K Tweet
2,2K Followers
979 Following

Epilepsy Foundation of America
@epilepsyfdn
#EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
Mauriceocrypt
@mauriceocrypt
#Crypto_enthusiast 💰#investor 📈 #trader 🤝 #NFT #Global_influencer 🌍 #Cryptoexpert 💂. DM for Promotions
Laura Buckner
@lgbtx

School Auction.net
@schoolauction
We are a fast, simple and secure platform helping schools and nonprofits plan, manage, and run successful fundraisers. Tools for all your fundraising needs!
El Duderino
@duderino199

TheLAMFoundation
@lamfoundation
Delivering facts about #LAM #RareDisease and The LAM Foundation. We're dedicated to funding research, advocacy and awareness to improve the QoL for all LAM pts.
Coalition to Cure CHD2
@curechd2
Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders. Contact us: info@curechd2org
Noella Ahn
@noellaahn
NZ Nephrology Trainee in London, building a love for renal genetics 🧬
Caitlin C. Clements
@c_c_clements
@ccclements.bsky.social Director of the BRAIN Lab @NotreDame Psych | Study autism, reward processing, & rare genetic syndromes
Bhaskar Reddy Aduri
@basibabi

Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
OKC SHAKERS
@purple_advocate
Just trying to get the word out. We need more awareness and support. Live Purple! #talkaboutit
Lorissa Kingston
@hiphopgrl2010

American Epilepsy Society
@amepilepsysoc
We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.
Pediatric Epilepsy Surgery Alliance
@pesalliance
Enhancing the lives of children who need neurosurgery to treat medication-resistant epilepsy with research + financial aid + programs before and after surgery.
Mike Knox
@mikeknoxcomedy
Not to brag but I once found a mouse in a beer bottle in Isla Vista. VNS Therapy Advocate
BarabanLab
@barabanlab
Translational epilepsy research in an academic setting | neuroscience, drug discovery, zebrafish, electrophysiology, cell therapy, precision medicine and more
Tracy Dixon-Salazar
@tracydixonsalaz
Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
KGalla
@kgalla_lk

International SCN8A Alliance
@scn8aalliance
The International SCN8A Alliance is working collaboratively with families, clinicians and researchers to advance the understanding of and treatments for SCN8A.
Alison Kukla, MPH
@alisonkukla
Public Health Professional. Person with Epilepsy and Epilepsy Advocate. Former Staff @EpilepsyFdn, @VDHgov, @ObamaWhiteHouse, @EPA. She/Her/Hers. 🏳️🌈
FamilieSCN2A
@familiescn2a
Our vision is to find effective treatments and a cure for SCN2A disorders.
翔 / SEAN
@shosean0904
アメリカでセカンドライフ・キャリア開拓中✈️|モットー:Looking Good, Feeling Gorgeous|関心:フェミニズム・ジェンダー・セクシュアリティ/社会福祉/公共人類学|仕事:Admin(製薬)・英語教育(マナリンク)|無言フォロー失礼します🙇
Luke Rosen
@lukebrosen
Dad of two remarkable kids. Founder of KIF1A.org & Rescue7.org. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Dr. Heather Mefford @hcmefford.bsky.social
@hcmefford
Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Brendan D. Manning
@manning_bd
Scientist at the interface of cell signaling and metabolism, with relevance to cancer, metabolic and neurologic diseases, and aging. @MET_HSPH @HarvardCellBio
Brain Ablaze
@brainablaze
As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Demetriades Lab
@demetriadeslab
The Demetriades Group @MPIAGE. We study Cell Growth and Nutrient Sensing via the TSC/mTOR network in health and in age-related diseases. Tweets by CD.
DEE-P Connections
@dee_pconnection
Connecting families with severe developmental & epileptic encephalopathies to information, resources and each other
Leah
@leahedscn2a
Founder, Executive Director and Former President of the FamilieSCN2A Foundation. Mom and rare disease advocate of epilepsy and autism, SCN2A-related disorders.
Nicole Zembrodt
@nicolezembrodt
@oneteampartners | Prev: @BengalsTalkSI, @bengals | @uofcincy grad | Zem•BRO•dt
Aguofar
@aguofar4704

Quualdsu
@quualdsu6233

Eloeagea
@eloeagea654

Airawat ऐरावत
@renaltubules
Paediatric Nephrologist.
Utrirrif
@utrirrif060273

Tim
@lingche35503298

الشيخ عكروت
@mjahed20595338

Houqorh
@houqorh0605

anand garbyal
@anandgarby29965

संहारक साध्वी
@drowsysaint22
Tweets from this account do not represent the official stance of @Prashant_Advait
Jo🇵🇸
@siobhainitis
She/High
Barbara Hoffman
@barbarahof24174

Britney
@britney44878379

罐罐
@sternstundehe
我是钉子,怕个锤子
Paula
@paulateamenceph
I support @encephalitis International & @ocdaction @epilepsyaction volunteer & #OCDAdvocate, @cbituk, Global #EncephalitisAwareness #OCDAwareness.
B
@inbellaland
artist. bodybuilder. audhd. book lover. free Palestine. no terfs/swerfs.
Shane Kinard
@shane58224

ECHO Epilepsy Ontario
@echoepilepsy
A virtual CME program partnering epilepsy specialists and community health care providers to enhance epilepsy care. Join a session - Submit a case.
Amine Tahiri
@aminetahirihe

Lawslau
@lawslaun28

Chris Skillin
@ctskillin

Erika Krull
@krull_erika12

Skip
@famglory1
Just here for fantasy football & insider trading
The Mark Shaparin Foundation
@markshaparinfdn
Honoring the life & legacy of Mark Shaparin through awareness, education & action to prevent Sudden Unexpected Death in Epilepsy with the goal of saving lives.
Junior Carvajal
@juniorf15c

OrphanetJournal at BMC
@ojrarediseases
Orphanet Journal of Rare Diseases is fully open access & published by @BioMedCentral (part of @SpringerNature), on behalf of @INSERM.
International Forum on Mood & Anxiety Disorders 🧠
@ifmadforum
Raise awareness of the latest international innovations in mood & anxiety disorders & Promote the exchange of ideas across the global psychiatric community
Cheyenne Contreras
@contreraschey
🧠📚👶🏻 phd psychology
Grace keys
@keys_grace2720

Audrey Vernick @audreyvernick.bsky.social
@audrey_vernick
Director of Patient & Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Find me at @audreyvernick.bsky.social
Jasi
@jasiedits
Hi I’m Jasi 🙋♀️🎞️🍿🥤Video Editor 🖥️ ASU film and media production grad. Autistic and has Tuberous Sclerosis. My demo reel is below ⏬️
Rakesh M Badami
@rakeshmbadami
Working
FX Roche
@rochebug4

Ionut Nedelcu
@ionutnedelcu5

lalaala
@chen_xinyu96522

Lei
@lei87626468

Kevin J Durkin
@durky007