TSC Alliance
@tscalliance
The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex
ID: 15980338
http://www.tscalliance.org 25-08-2008 11:51:24
6,6K Tweet
2,2K Followers
979 Following
STLChildrensHospital
@stlchildrens
St. Louis Children's Hospital is one of U.S. News & World Reports top ranked pediatric hospitals and serves patients from around the world
UNESCO 🏛️ #Education #Sciences #Culture 🇺🇳
@unesco
Building peace where it starts - in the minds of women & men. Official Twitter account of UNESCO. #Education #Sciences #Culture #Communication #Information
Senator Amy Klobuchar
@senamyklobuchar
Senior U.S. Senator from MN | Snow enthusiast ❄️
FIU Medicine
@fiumedicine
South Florida's first public medical school ⚕️ #FIUMed #pantherdoctors
Alonzo Bodden
@alonzobodden
I'm just a comic living the dream...I think
Epilepsy Foundation of America
@epilepsyfdn
#EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
Avalon Hollywood
@avalonhollywood
One of Hollywood’s most historic landmarks and nightlife destinations redefined by Insomniac Events.
Patroski Lawson
@patroski
Husband. Father. Government Affairs & Corporate PAC Pro. Certified Specialist of 🍷Wine. Wine Educator. Foodie. wineimmersion.com
PR Newswire Health
@prnhealth
News releases on biotech, pharmaceuticals, mental health, and other health topics distributed by @PRNewswire. Some paid tweets may appear.
Marie Carlo
@pearldaily
Medical oncologist | genitourinary cancers and genetics @sloan_kettering. Used to tweet clinical pearls 🚫 current medical advice. Views my own. 🇵🇷
Mustafa Sahin
@sahin_m
developmental neurobiologist, child neurologist
TheLAMFoundation
@lamfoundation
Delivering facts about #LAM #RareDisease and The LAM Foundation. We're dedicated to funding research, advocacy and awareness to improve the QoL for all LAM pts.
Biogen
@biogen
Official global newsroom account for Biogen, a leading biotech company pioneering innovative science since 1978. Community guidelines: bit.ly/1MZocKs
Kristi Lengyel
@ktlynn1224
Epilepsy Research Institute
@epilepsyinst
Radically advancing epilepsy research. Join the #Onein100 campaign today to help raise the profile of epilepsy and drive research forward. @ResearchNetERI
Team IMPACT
@goteamimpact
Connecting kids with serious illness and disability to college athletic teams, forming lifelong bonds and life-changing outcomes. #BeTheIMPACT #AllInAllTogether
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
Practical Neurology
@practicalneuro
Practical Neurology® magazine covers neurologic advances in epilepsy, stroke, dementia, movement disorders, headache, ALS, breaking neurology news & more.
American Epilepsy Society
@amepilepsysoc
We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.
Knight School of Computing
@fiuscis
FIU Knight Foundation School of Computing & Information Sciences. #Computerscience #STEM #AI #Cybersecurity #Code #VR #MachineLearning #BigData #Robotics
Pediatric Epilepsy Surgery Alliance
@pesalliance
Enhancing the lives of children who need neurosurgery to treat medication-resistant epilepsy with research + financial aid + programs before and after surgery.
BarabanLab
@barabanlab
Translational epilepsy research in an academic setting | neuroscience, drug discovery, zebrafish, electrophysiology, cell therapy, precision medicine and more
Tracy Dixon-Salazar
@tracydixonsalaz
Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Amneal Pharmaceuticals
@amnealpharma
We are Amneal and We make healthy possible. Our family delivers more affordable access to essential generic, brand and biosimilar medicines for your family.
International SCN8A Alliance
@scn8aalliance
The International SCN8A Alliance is working collaboratively with families, clinicians and researchers to advance the understanding of and treatments for SCN8A.
FamilieSCN2A
@familiescn2a
Our vision is to find effective treatments and a cure for SCN2A disorders.
Taylor J. Abel
@taylorabelmd
Chief, Pediatric Neurosurgery @childrenspgh. Surgeon-scientist. Pediatric #epilepsy surgeon. Love my family, my dogs, history, and movies. Opinions my own.
Beckman Foundation
@beckmanfnd
Supporting Young Scientists Today for Tomorrow’s Breakthrough Discoveries $700M+ in Grants Provided to Researchers in Chemistry and Life Sciences
Wake Forest Biomedical Graduate Programs
@wfubiomedgrad
The official Twitter account for the Wake Forest Biomedical Graduate Programs
Luke Rosen
@lukebrosen
Dad of two remarkable kids. Founder of KIF1A.org & Rescue7.org. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Dr. Heather Mefford @hcmefford.bsky.social
@hcmefford
Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Brendan D. Manning
@manning_bd
Scientist at the interface of cell signaling and metabolism, with relevance to cancer, metabolic and neurologic diseases, and aging. @MET_HSPH @HarvardCellBio
SynGAP Research Fund (SRF)
@curesyngap1
#SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 syngap.fund/F78A1 syngap.fund/10 🎙
Brain Ablaze
@brainablaze
As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Demetriades Lab
@demetriadeslab
The Demetriades Group @MPIAGE. We study Cell Growth and Nutrient Sensing via the TSC/mTOR network in health and in age-related diseases. Tweets by CD.
DEE-P Connections
@dee_pconnection
Connecting families with severe developmental & epileptic encephalopathies to information, resources and each other
Stoke Therapeutics
@stoketx
Stoke Therapeutics is addressing the underlying cause of severe diseases by upregulating protein expression with RNA-based medicines.
Leah
@leahedscn2a
Founder, Executive Director and Former President of the FamilieSCN2A Foundation. Mom and rare disease advocate of epilepsy and autism, SCN2A-related disorders.
PsychoGenics Inc.
@psychogenicsinc
PsychoGenics is a preclinical CRO with expertise in CNS and orphan disorders.
GRIN Therapeutics, Inc.
@grin_tx
Advancing a targeted approach to the treatment of GRIN-related disorders and other types of pediatric neurodevelopmental disorders.
Praxis Medicines
@praxismedicines
Praxis is translating genetic insights into the development of therapies for central nervous system disorders characterized by neuronal imbalance.
RareDiseaseDiversityCoaltion
@rarediseasediv1
Rare & Ready: A Genetic Condition Coalition
@rare_ready
Supported by BioMarin & Ultragenyx, the Coalition educates state policymakers on the impact of conditions. Social media guidelines bit.ly/3AzXLue
HDAwareness2024
@hdawareness2024
Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Wake Forest Graduate Programs in Neuroscience
@wakeneurograd
We study how the nervous system develops, functions & changes in response to environmental factors, damage, and disease. Programs: PhD, MD/PhD, MS, 4+1 BS/MS.
Rare Disease Clinical Trial Network, Ireland
@rare_trial
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
The Black Women in Computational Biology Network
@blkwomencompbio
Follow us on BlueSky and LinkedIn! (link below). A 501(c)(3) accelerating opportunity in computational biology for Black women.
Hispanic Neuropsych Society (HNS)
@hnsneuropsych
The HNS mission is to promote the competent practice of neuropsychology with Spanish-speaking populations.
UAB Department of Neurology
@uab_neurology
The official X account of the @UABHeersink Department of Neurology.
Senator Eric Schmitt
@senericschmitt
Official account of United States Senator Eric Schmitt.
WashU Medicine Neurology
@washuneurology
We strive to provide outstanding clinical care, train leading neurologists and scientists of the future and to serve as an international leader in Neurology.
WashU Medicine Epilepsy
@washuepilepsy
A multidisciplinary team dedicated to adult and pediatric patient care, treatment, and research of epilepsy.
The Rainwater Charitable Foundation
@rcfneuro
Supporting scientific progress to understand primary tauopathies in neurodegenerative disease research. Visit our website to discover all our funding programs.
Laura Enright
@lauraenrighttsc
Mary Vasseghi
@vasseghimary
PhD ing Tuberous Sclerosis Complex (TSC) Trinity College Dublin & FutureNeuro. ITHACA ePAG. Patient advocate Sudden Cardiac Death (SCD) prevention
Neurvati
@neurvati
A collaborative platform to advance innovative treatments across the neuroscience landscape to improve the lives of patients.
insitro
@insitro
Making medicines differently to bring better drugs faster to the patients who benefit most with ML and data at scale.
TSC Ireland
@tsc_ireland
TSC Ireland is an Irish support group to create awareness of Tuberous Sclerosis Complex (TSC) disorder. Check out our website to learn more. RCN 20105969
Rebecca Fleming (She/Her)
@rebeccaflem98
Genetic Counselling Student Cardiff 📚🧬QC analyst 🥼🥽Rare disease patient TSC 🏳️🌈
Silvia De Rubeis
@derubeislab
Neuroscientist & geneticist studying 🧠 development & autism | Immigrant | 2x mom | #firstgen | #Humboldtian | Views my own | (she/her)
Thatcher+Co.
@thatcherandco
The official Twitter account for Thatcher+Co., an award-winning public relations firm headquartered in NYC.
Epilepsy Alliance America
@americaepilepsy
We’re a national collective of partners with one mission: providing support, resources, and hope to those with #epilepsy. Live your best life.
Dr. Fahad Saeed
@prof_fahadsaeed
Founder & CEO NeoTech Labs | Award Winning Comp. Scientist & Assoc. Prof @FIUSCIS & @FIUMedicine. Director Saeed Lab (pcdslab.github.io)
BridgeBio Pharma
@bridgebiopharma
Hope Through Rigorous Science Our mission is to discover, create, test and deliver transformative medicines to treat patients with genetic diseases. $BBIO
Tolu Olaniyan
@precious1tolu
CEO Pretola Global health & Consulting, RNLD, Msc Epilepsy, FNF Alumni, Chair MASL, Intl Trainer & Speaker
The Ramesh & Kalpana Bhatia Family Foundation
@rk_bhatiafdn
Christa Zachariah
@christazachari3
Medical Science Liaison, Scientist, Epilepsy, Neuromodulation
NINDS Office of Research Quality
@ninds4rigor
Official account of NINDS/ORQ, part of @NIH We promote rigorous research practices and transparent reporting RTs ≠ endorsements Privacy Policy: go.usa.gov/xXnvV