Long Covid Kids - #LongCovidKids
@LongCovidKids
UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
ID:1304036484920606720
https://www.longcovidkids.org 10-09-2020 12:38:37
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Looking forward to this event in June & meeting new parents & patients.
Am honoured to be hosting a 1.5hr workshop (in my role as Irish rep for Long Covid Kids - #LongCovidKids charity).
June 8th Mater Dublin
Virtual & in person
25 euro (Note: patient groups are not being paid to present etc).
Latest UK data for self-reported #LongCovid for England and Scotland
A rise in cases, despite the removal of access to testing and vaccination.
Long COVID is damaging public health!!
We need urgent investment to continue our response to a pandemic that is not over!!!
#LongCovid is a chronic illness. It’s relentless and unforgiving. One day - all #LongCovid kids will realise how hard it’s been and how brave they are. Last night though - Neath Port Talbot Council honoured this young lady for just that - overcoming adversity and not letting it define her
People with Long Covid regularly ask 'how will reinfection with Covid affect me?'
We & Long Covid Kids - #LongCovidKids addressed this in our 2022 reinfection survey but we need new data to understand it as SARS-CoV-2 evolves
We welcome Visible new reinfection study, take part if you can
I just nominated Long Covid Kids - #LongCovidKids it would be awesome 😎 if you did too.
£5000 could help the team support more families in crisis or create new resources.
One click 🤞 🙏 👏 #LongCovid Kids
#LongCovid
health.movementforgood.com/index.php?cn=1…
What an amazing session we had today! Join us next week for more choir fun! Long Covid Kids - #LongCovidKids Lorna Glasgow Katie #LongCovidKids
Thank you Frankie Morland for popping by to show us how our song is coming along. It sounds amazing! Sarah Field
Long Covid Kids Founder Sammie McFarland asks researchers where is the child’s voice in your research. #LongcovidKids
Report on Airborne pathogens - such as SARS-Cov-2 that causes Covid-19 that can go on to cause #LongCovid . More support for the call for #CleanAir and #LayeredMitigations
Listening to the brilliant Jessica DeMars at the Rehabilitation Science Research Network for COVID in Toronto!!
Setting out the science & the facts that #longcovid is NOT deconditioning nor is it psychomatic or kinesiophobia.
Great insight & recommendations on how to recognise LC in practice!
Inspirational 🙏🏼
LCAI Co-founder and Irish rep for Long Covid Kids - #LongCovidKids, Sarah O'Connell speaking about how #LongCovid is impacting children in #Ireland and the urgent need for specialised care at yesterday’s Health Committee hearing
Published today 🚨
Barriers to healthcare access and experiences of stigma: Findings from a coproduced #LongCOVID case-finding study
onlinelibrary.wiley.com/doi/10.1111/he…
Prof Nisreen Alwan 🌻 Mark Faghy Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Dr Claire Taylor Claire Hastie 💙 Geraint Jones Prof Amitava Banerjee💙 Long Covid Kids - #LongCovidKids
A NEW & important study aiming to determine how UK #media articles characterise #LongCovid in CYP. #LongCovid Kids #MindYourLanguage
The UK Covid-19 Inquiry has the job of identifying, listening & relying the experiences of children & young people.
Children living with #LongCovid come under all categories identified. #LongCovid is a pandemic injury.
I hope enough CYP with LC are heard
Jane Ryan #LongCovid Kids
Save the date!
Live Wednesday 17 April 6pm BST
Fireside chat
Dr Binita Kane & Helen Oakleigh present 'The Long Covid Clinic - What You CAN Do'. In partnership with Long Covid Support.
Micro-pacing for recovery, Binita Kane talks to Robin McNelis Robin McNelis Physiotherapy
#LongCovid
5.8 million children now have #Longcovid in the US alone. So many children are suffering, in the UK 62,000 children are known to have long covid. We must #StoptheSpread
#covidisairborne
Here is the heartbreaking story of one brave 12 year old.