Long Covid Kids - #LongCovidKids(@LongCovidKids) 's Twitter Profileg
Long Covid Kids - #LongCovidKids

@LongCovidKids

UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI

ID:1304036484920606720

linkhttps://www.longcovidkids.org calendar_today10-09-2020 12:38:37

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Sarah O'Connell(@SarahOC_MECFS) 's Twitter Profile Photo

Looking forward to this event in June & meeting new parents & patients.
Am honoured to be hosting a 1.5hr workshop (in my role as Irish rep for Long Covid Kids - #LongCovidKids charity).

June 8th Mater Dublin

Virtual & in person

25 euro (Note: patient groups are not being paid to present etc).

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Mark Faghy(@DrMark_Faghy) 's Twitter Profile Photo

Latest UK data for self-reported for England and Scotland

A rise in cases, despite the removal of access to testing and vaccination.

Long COVID is damaging public health!!

We need urgent investment to continue our response to a pandemic that is not over!!!

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Ciara Breen(@kirrabrean) 's Twitter Profile Photo

Can’t wait to talk to PSI Neuropsychology later today about addressing cognitive changes in . I’ll be talking about recognition of cognitive changes, PEM, impact on work and school and the use of strategies and technology to support daily life. Busy week after !

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@misskaterob(@misskaterob) 's Twitter Profile Photo

is a chronic illness. It’s relentless and unforgiving. One day - all kids will realise how hard it’s been and how brave they are. Last night though - Neath Port Talbot Council honoured this young lady for just that - overcoming adversity and not letting it define her

#LongCovid is a chronic illness. It’s relentless and unforgiving. One day - all #LongCovidkids will realise how hard it’s been and how brave they are. Last night though - @NPTCouncil honoured this young lady for just that - overcoming adversity and not letting it define her
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Long Covid Support 🌍(@long_covid) 's Twitter Profile Photo

People with Long Covid regularly ask 'how will reinfection with Covid affect me?'

We & Long Covid Kids - #LongCovidKids addressed this in our 2022 reinfection survey but we need new data to understand it as SARS-CoV-2 evolves

We welcome Visible new reinfection study, take part if you can

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Sammie McFarland(@SammieFMc) 's Twitter Profile Photo

I just nominated Long Covid Kids - #LongCovidKids it would be awesome 😎 if you did too.
£5000 could help the team support more families in crisis or create new resources.
One click 🤞 🙏 👏 Kids


health.movementforgood.com/index.php?cn=1…

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Mark Faghy(@DrMark_Faghy) 's Twitter Profile Photo

Listening to the brilliant Jessica DeMars at the Rehabilitation Science Research Network for COVID in Toronto!!

Setting out the science & the facts that is NOT deconditioning nor is it psychomatic or kinesiophobia.

Great insight & recommendations on how to recognise LC in practice!

Inspirational 🙏🏼

Listening to the brilliant @BreathewellPT at the @UofTCOVIDRehab in Toronto!! Setting out the science & the facts that #longcovid is NOT deconditioning nor is it psychomatic or kinesiophobia. Great insight & recommendations on how to recognise LC in practice! Inspirational 🙏🏼
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Long Covid Advocacy Ireland(@LCAIreland) 's Twitter Profile Photo

LCAI Co-founder and Irish rep for Long Covid Kids - #LongCovidKids, Sarah O'Connell speaking about how is impacting children in and the urgent need for specialised care at yesterday’s Health Committee hearing

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Sammie McFarland(@SammieFMc) 's Twitter Profile Photo

The UK Covid-19 Inquiry has the job of identifying, listening & relying the experiences of children & young people.
Children living with come under all categories identified. is a pandemic injury.
I hope enough CYP with LC are heard
Jane Ryan Kids

The @covidinquiryuk has the job of identifying, listening & relying the experiences of children & young people. Children living with #LongCovid come under all categories identified. #LongCovid is a pandemic injury. I hope enough CYP with LC are heard @Jane_Ryan_ #LongCovidKids
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UK Covid-19 Inquiry(@covidinquiryuk) 's Twitter Profile Photo

/1 The Inquiry will begin to hear from hundreds of children and young people about how the pandemic affected them as our Children and Young People Voices project gets underway.

Find out more 👇 👇

covid19.public-inquiry.uk/news/hundreds-…

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Long Covid Support 🌍(@long_covid) 's Twitter Profile Photo

Save the date!
Live Wednesday 17 April 6pm BST
Fireside chat

Dr Binita Kane & Helen Oakleigh present 'The Long Covid Clinic - What You CAN Do'. In partnership with Long Covid Support.

Micro-pacing for recovery, Binita Kane talks to Robin McNelis Robin McNelis Physiotherapy

Save the date! Live Wednesday 17 April 6pm BST Fireside chat Dr Binita Kane & Helen Oakleigh present 'The Long Covid Clinic - What You CAN Do'. In partnership with Long Covid Support. Micro-pacing for recovery, @BinitaKane talks to Robin McNelis @robinthephysio #LongCovid
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Esther(@ELHopkins) 's Twitter Profile Photo

5.8 million children now have in the US alone. So many children are suffering, in the UK 62,000 children are known to have long covid. We must



Here is the heartbreaking story of one brave 12 year old.

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