A huge thank you to everyone who used their energy to travel to Manchester or Sheffield to take part in this study of #microclots in #longcovid

**Preprint, not yet peer reviewed**

Some interesting findings 🧵 1/

🧵📣 1/2 The #LongCovid Groups have come together again responding to Maria Caulfield MP’s wholly inadequate reply to our letter to Rishi Sunak in Dec last year.

“You advise that it is not usual practice to ring-fence research funding, but this is not a usual situation”

#LongCovid

We, like so many, are urging GMC @rcphysicians Royal College of Psychiatrists to please #BringMillieHome
#DontLetMEDie

Please sign the petition ⬇️

change.org/p/save-millie-…

Proud to be part of the PHOSP-COVID study Collaborative Group along with my amazing Long Covid Support buddies Claire Hastie 💙 and Natalie Rogers 😷, and also Jenny Bunker (PhD) & others! A brilliant PPI team and such vital work!
#LongCovid
#TreatLongCovid
#CureLongCovid

We just want to do a shout-out and say a huge ‘thank you’ to our fantastic Trustees & Members who were involved in this work - Ruairidh Milne, Margaret O'Hara, Jo D 💙, Mike Ormerod & Dr Ian Frayling 🇺🇦 #LongCovid.
We know when you have #LongCovid how much work like this takes out of you, so thank you all.🙏

🧵Our new macroeconomic impact report on Long Covid in the UK reveals #LongCovid could cause job losses across the UK economy, with the service sectors, women and low-income households experiencing most of the effects.➡️bit.ly/4anCzIx 1/7

“In the cut-throat world of academia… #LongCovid throws up barriers for those seeking permanent positions…
It could also squeeze diversity out of the talent pool — studies have shown that long COVID tends to disproportionately affect women and people of colour”

#CureLongCovid

In response to my written question, the govt recently admitted that over 50K ill or disabled people have had their PIP appeals upheld without the need for new evidence.

This shows conclusively that the system is unfit for purpose.

On the day the UK govt is examined by the UN…

“The neuro-immune & autonomic nervous systems are increasingly recognized in autonomic dysfunction in #LongCovid & cardiovascular autonomic disorders such as #POTS …The common associations with autoantibodies are compelling”

#ConfrontLongCovid
#TreatLongCovid

#CRDP24 We need as many people as possible tuning in and reporting about the upcoming UN hearing of the UK government's violation of Disabled people's rights!

Read Inclusion London's great thread on making our posts accessible. We won't let the gov evade scrutiny any longer!

For #LongCovid AwarenessDay , I share again mine with FC, where we describe how Covid survivors came together in early—mid 2020 to recognize, name and define #LongCovid , until World Health Organization (WHO) recognized on 21 August 2020
We made history
Loud and proud 🔥

sciencedirect.com/science/articl…

Senator Sanders Bernie Sanders announces that he will soon be introducing legislation to expand the federal effort to tackle the Long Covid crisis in the U.S.

Bernie Sanders is the Chair of the U.S. Senate Committee on Health, Education, Labor & Pensions.

#LongCovidAwarenessDay …

Asad lives with #LongCovid due to being given unsuitable PPE when working as a respiratory consultant during the pandemic. He's now unable to work. Asad has to fight for justice and support. It's time to take Long Covid seriously. #LongCovid AwarenessDay #CRDP24

What an amazing #LongCovid AwarenessDay ! We’ve worked hard not only in the run up but today from early this morning. A big THANK YOU to everyone who attended events in person, worked on social media or behind the scenes. An incredible effort. We are now shattered!!!
#LongCovid

Some amazing #LongCovid Awareness work that’s been going on in recent weeks from members of our charity, their families and friends!
Huge thank you to you all! 🙏

#LongCovid
#LongCovid Awareness Day
#ConfrontLongCovid

Delighted to share our recording for #LongCovidAwarenessDay2024 A collaboration with Long Covid Kids Choir Fen, MD - harp LongCovidPodcast - cello(s) #DanielGreenLavado - piano Claire Hastie 💙 Long Covid Support 🌍 Long Covid Kids - #LongCovidKids Jo D 💙

youtube.com/watch?v=VkK-oX…

On International #LongCovidAwarenessDay I want to offer a message of HOPE.

This is Jasmin Feb 2024, aged 13

✅One year of treatment
✅18 months of very slow self-directed increases in activity
✅ HRV tracking
✅Work on the autonomic nervous system reducing stress response 1/

🚨📹 Our peer support group has nearly 65k members from 100 different countries!

Our friends from around the world wanted to help raise awareness of #LongCovid on #LongCovid AwarenessDay … in their own words.

(We’ll do a longer version soon, as so many have wanted to help!)

Huge thanks to Dr Clare Rayner as well as to Patient Safety Learning for all their work and support for people with #LongCovid and Long Covid Support 🌍

🆕Featured on the hub to mark International Long Covid Awareness Day, a new Top Picks blog highlighting 11 recent research papers on Long Covid pslhub.org/learn/coronavi… #LongCovidAwarenessDay #pslhub