Corey Byrd (Severe M.E - Bedbound)
@th3birdman333
V severe #MECFS; 99% bedbound. All #pwME are warriors. Warriors need sword/shield/armor. Let me be your armor with advice. Let me be sword/shield by advocacy.
ID: 1418366736118784005
23-07-2021 00:26:08
1,1K Tweet
708 Followers
730 Following
Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Natural Killer Cell Function
@nkfd_deficiency
NKCellFunctionDeficiency #CHHV6 #CCMV #CEBV #Coxsackie #Lyme #ChronicSarsCov2 #1stWaver #ItsTheVirus #Cycloferon #Artesunate #Salicinium #GcMaf #Immunotherapy
Styna Lane 🦓
@stynalane
Author | Streamer | Creator | they/them | EDS&co | Disabled Activist | 😷 | Human Rights | 🏳️🌈 | Owner of @SickAndTiredPub
JK
@j_b_kennedy
Slowly getting there
Dr. Alice 💕
@calirunnerdoc
Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Chicago Cubs
@cubs
The official Twitter home of the Chicago Cubs.
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Paula Knight
@paula_jknight
Author Artist THE FACTS OF LIFE (2017) Kidlit books x3 author. Writer, drawer, poetry, photography. Disabled. Bed-based 6+yr v severe M.E. #pwME (she/her)
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
PF (Patricia/Pat) Anderson
@pfatech
This was the livetweeting account for @pfanderson. Have been locked out & am unable to access help from @TwitterSupport Librarian, LongCOVID March 2020
Dr Rebecca Richardson
@mavisclare
Advanced Lecturer (@PWRStanford). Material Ambitions: Self-Help and Victorian Literature (@JHUPress). 19th-c lit, ecocrit, history of econ., medical humanities
Sawyer
@sawyerblatz
a tired human
@saffronandsky
disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Lara
@lara1273
Former paediatric nurse. Disabled. Cervical Myelopathy. Lhermitte’s. Longcovid. POTS. @laralongcovid.bsky.social
A 😎 Long Covid + MECFS Billboards
@aaronca11
@lcmebillboards @lcmepirates notrecovereduk.org
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Rebecca
@sumner_smith
Fellow @ICAEW and @OnPurposeUK | COO @TheFinanceLab | LC 04/22 | Views own | She/her | 🌱
Keith Siau
@drkeithsiau
GI doctor with interests in endoscopy, gut health, liver & medicine. 💜 #GITwitter #LiverTwitter #MedEd. Occasional silliness. Siau rhymes with meow 😺
Nicholas Boyd-Gibbins, MEng, PhD
@nboydgibbins
UCL | Kyoto Univ. | CSO | cell engineering, cell therapy, immunotherapy, autoimmune, long COVID, iPSCs, cancer, genetics and neuroscience @amaticahealth
Lisa McCorkell
@lisaamccorkell
on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Simmaron Research
@redefiningmecfs
Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Max Nits
@maxnits
Physics grad, programmer, entrepreneur. Life on pause due to ME/CFS.
KK
@ksannara
#ME #MECFS #LongCovid #BildungAberSicher #Petition #MECFS. ➡️SIGNforMECFS.de ⬅️
Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
roddandtobin
@roddandtobin
roddandtobin
Alison - lobby for more $ now!
@blondieroo79
#MECFS Bedbound Approve Ampligen for emergency use now FDA!
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Martin
@pausedme
#MECFS⎮#Lawyer by profession | #Musician by passion | PERSONAL ACCOUNT |
Marky Mark
@mrkstdngr
#ME #CFS #CCI #POTS #MCAS
Sibylle Dahrendorf 💥✌️
@sibylle_berlin
Once a Filmmaker || Stop denial of #ComplexChronicIllnesses || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #ME ||
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Jack | amatica health
@jackhadfield14
ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth
Amatica Health
@amaticahealth
Patient-centred chronic disease research
Emy with ME
@emywithme
BME PhD student, lover of nature. #ME, #LC, #POTS, #MCAS, #hEDS, #ToxicMold, #Bartonella. Hope to recover & help others. She/her. #Autistic & #Ace 🖤🩶🤍💜
fereshteh jahanbani
@fereshtehjahan1
PharmD/PhD in Pharmacology, Founder 4C, Co-founde RTTP at Stanford, Director of Genomics and Leader of "ME/CFS related disorders" Multi-omics study at SCGPM.
Derya Unutmaz, MD
@deryatr_
Professor, biomedical scientist, human immunologist, aging & cancer immunotherapy. Interests #longevity #robotics #AI #Scifi #space -all are my personal opinion
Max Banfield
@maxm44444
I defined a method of treating chronic fatigue in 1982 which is now called CFS and PACING, and defined the modern standing computer desk design in 1998
Himmat
@himmatb15
Writer and editor. Life derailed by Long Covid/vaccine injury. Very severe and fully bedbound. ME/CFS | hEDS | POTS
Susan Fairlie Hall
@fairliehall
Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.
Long Covid on the short
@lc_ontheshort
The most prominent research on the causes of #LongCovid in a quick and digestible manner | Understanding raises awareness | by @HerbertoDhanis
ME Group Australia (Rachel)
@megroupaust
ME Group Australia is a registered Australian charity to advance health for Myalgic Encephalomyelitis (ME). Opinion is my own. “Like & RT” are not endorsement.
Daniel Missailidis, PhD
@danmissailidis
Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: scholars.latrobe.edu.au/d2missailidi/p…
K 🌻
@misshealing7
Severely injured by C-19 Infection since 2022 (no vax) THEY 🐍 poisoned me but I will not give up, God is with me ✝️
Gaia Tempest 🦼 🛌
@gaiatempestuk
Mostly as horizontal as achalasia allows. AuDHD , M.E. over 40 yrs. POTs, Fibro. Now more degenerative autoimmunes 🙄... 😍 comedy, nature, animals
Yale Center for Infection and Immunity
@yalecii
We are the Yale Center for Infection and Immunity, dedicated to understanding how infections cause diseases and to the developing better vaccines.
elle carnitine 🍉
@elle_carnitine
immunocompromised • made & kept sick by the state • kept alive by my beloved @predi_cam_ents🪳
LongHaulSolo
@longhaulsolo
Attorney who got clobbered with #LongCovid #MECFS #POTS. Trying to find solutions. Currently trialing LDN.
War Mapper
@war_mapper
Map updates for the war in Ukraine with occasional updates for other conflicts. Official @soar_earth Ambassador 🏆 helping build the new atlas of the world 🗺
Maureen Hanson
@drmaureenhanson
I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.
Cortney Gensemer, PhD
@cortdoesscience
Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
Juliette Tempest
@juliettetempest
I💗@Pink #RIPChesterBennington💔 #pwME #MECFS #musicfanatic #art #animallover #gamer #empath #catmom #SussexSquad #FUCKRacism #FUCKHomophobia #FUCKAntisemitism
Kendra H.
@survivingcfs
31 | Disabled from #mecfs | Disability rights advocate | Formerly homeless now living in a nursing facility | Former English teacher trying to survive |
Erin M
@erinapn1
Audaciously committed to hope. Mum of severe Long Covid Kiddo. From Journo to law. bsky.app/profile/erinmg…
Mony Likes Science and Facts ✡️ ⚓⚖️
@monyro5
🇮🇱Science literacy is crucial for a competent society. Not interested in disinformation purveyors. Former Civil Servant & a few other things.
Melissa Mazur
@phillyphile215
Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Dan the LC Kiwi 🇳🇿
@longcovidkiwi
A kiwi fighting #LongCovid since 01Jun22. I am here to connect to fellow sufferers, and keep up with research/updates/news. #FBLC #MECFS
Stephen Davis
@planetearth_hd
Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid blue-sky address please add me @planetearth-hd.bsky.social
Umpire Scorecards
@umpscorecards
Umpire Scorecards posted for every game, every day. Find data and more info at the link below. Support us at umpscorecards.com/support/
Michael Livingston
@drmlivingston
Rural Generalist. Doctor. Father. Pilot. Tweets are my own and do not reflect the views and policies of Livingston Medical PTY LTD.
☘️Holy Grail☘️
@holylawler
Mechanical Contracting, investing, sports, cooking, hunting & golfing.. #TeamHumanity #LymeWarrior #LymeAwareness #AmericaFirst #MAHA 2025☘️☘️☘️ 🇺🇸🇺🇸🇺🇸
European ME Coalition (EMEC)
@emec_advocacy
Advocacy organization for ME/CFS patients and their carers in Europe
🥀
@lugaresxcomunes
we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd