#GreatestMEdicalScandal

Today is #DisabledAceDay . There’s a repeated “nothings wrong with us!” when it comes to asexuality. And nothing is wrong with BEING ace. But disabled aces, including those who feel their sexuality is tied to their disability, still deserve inclusion in ace spaces.

This is ridiculous. Not only are they subjecting trial participants to harm, they risk polluting their own data and rendering it useless.

gfm isn’t gonna pay out in time and I have to make up the difference and I just… I’ve had 1 donation in the last day so… I’m not feeling hopeful. I need some time not staring at my phone and feeling like the world is falling out from under me. idk. anything helps. see ya soon.

URGENT, do NOT scroll without giving at least 5 USD or engaging: Need just a bit more funds for Syd . Not just for this (80 from their goal) but also for transportation to an appointment. Thank you for sharing!

🚨Patient advocate for #severeME desperately needed!! #saveKatiana #DontLetMEDie #GreatestMEdicalScandal

Lately I’ve been thinking of butter vs margarine in the 80s / 90s as a kind of analogy for covid. Margarine was always bad for us, but it was marketed as healthier. I had a good friend whose family stuck with butter and knew back then that margarine was unhealthy.

thanks to a miracle worker at the pharmacy I can get my Venlafaxine refill with a discount card!! I hate to ask today of all days but I need to raise funds for that, and cat food, so $40 total. I’m secretladyspider on v*nmo and c*shapp, anything helps.💛 pls share! #MutualAid

🚨🚨🚨 Yet another terrible story about Metrodora, PLEASE DO NOT GO THERE!!! 🚨🚨🚨

Any type of help is often out of reach for the very sickest ME patients, because they are bedbound and often have intense sensory sensitivity to light and sound, plus cognitive challenges. It’s truly a human rights violation how bad these pts suffer. #GreatestMEdicalScandal

okay #MutualAid 🧵 for everyone non-white, disabled, queer, trans, nonbinary, woman, Palestinian… everyone in danger rn who is also in need. share your links. Allies, now’s the time to show ally is a verb that you earn. you’re up. open your wallets & share every post below.

Yea I’m not really worried about being mistaken for a trump supporter 🙄😷

Have any #pwLC or #pwME started taking anti depressants after becoming sick & tolerated them? Are there any in particular that would theoretically or anecdotally be more tolerable for us? Considering starting one bc I’ve been struggling a ton with my mental health lately, but

A random addition to the discourse: I can’t read hard copy library books bc my allergies are that severe.

Today marks a year since I first shared my fundraiser, hoping for support in my battle with #severeme, #longcovid , and multiple other conditions. Thanks to your generosity, I’ve been able to pay for essentials like specialist appointments abroad, medical supplies, and sometimes

Hi, guys! My colonoscopy and endoscopy are scheduled for the 18th. My copay for both are $150 each. My MRI is also unfortunately $150. I’ve only gotten one donation so far, but I’m so grateful. If you could please keep sharing this, I’d be forever thankful.

For my #MECFS and #LongCovid friends trying to manage HR and energy, an interesting fact: My HR is 5-10 bpm lower on the other app where the skies are blue compared to here. I can spend more time there and spend fewer pace points.

I cannot stress enough what you're signing onto by staying on this site after tomorrow. This is just one piece of the new Terms of Service. You've agreed to let Musk SUE YOU FOR MONEY for violating the terms of service no one reads.