#DisabilityTwitter , please boost.

Mohammed’s father is newly disabled from the bombing on their home months ago. He needs to evacuate ASAP. He cannot access surgery he needs to remove the shrapnel in his feet in Gaza.

#DisabledCrowdFund
#MedicalCareCrowdFund #EmergencyCrowdFund

Looking forward to sharing a panel w/ Maria Hudspith, Kate Nicholson & Diane Hoffmann to discuss pain advocacy at the US Association for the Study of Pain Annual Scientific Meeting

📢Improving pain demands not only advancements in research and clinical practice but also getting pain on the policy agenda!

I so enjoyed talking with UVA Darden School of Business Prof Ed Freeman about pain, healing, health rights and why including people with lived experience is critical in stakeholder engagement.
He's quickly become one of my favorite people to talk with.
stakeholdermedia.libsyn.com/kate-nicholson

I enjoyed talking with Alissa Quart about inequities & what she calls grey diseases like #LongCovid and #ChronicPain -poorly diagnosed and addressed in healthcare. It pivots from her wrenching personal story.
🔥🔥🔥

Join #HEALConnections at the 4/19 Sharing Session on getting your research in the media, featuring the founder of NC Health News, executive director of communications for Duke University, and founder of the National Pain Advocacy Center Advocacy Center. Register at bit.ly/research-in-th…

This will be a memorable and important presentation.

Chad D. Kollas (he/him), will there be any access, either live or posted later? We really want to hear you in action.

Thank you!

Beautiful essay by the one and only Alice Wong 王美華 for TIME on mortality and turning 50 with Muscular Dystrophy. #DisVisibility #Disability

time.com/6960765/alice-…

Extremely powerful The New York Times op-ed on the devestating impact of shortages of essential medication like #opioids for people with severe pain.

The D.E.A. Needs to Stay Out of Medicine nytimes.com/2024/03/22/opi…

Very excited to be part of the research panel for #Pharmacoequity2024 Conference! See you soon Center for Pharmaceutical Policy and Prescribing Utibe R. Essien, MD MPH!

Kate Nicholson Stefan Kertesz, MD, MSc Chad D. Kollas (he/him) Lynn Webster, MD PBS NewsHour NBC News The Hill Dr. Nabarun Dasgupta CNN Breaking News Time to debunk the nonsense on opioid pain relievers being spouted by CDC and DEA! Please RT.

kevinmd.com/2024/03/opioid…

🧵1/The CDC's 2016 Opioid guideline appears to have adversely affected persons with sickle cell disease while not reducing overdoses
The📉 in Rx accelerated after Guideline release, in JAMA

Pain-related hospitalizations ⬆️ 7% absolute
jamanetwork.com/journals/jamai…

Could an artificial muscle help your low back pain? A NIH study will soon find out. Learn more! heal.nih.gov/news/stories/b… #nihHEALinitiative

Big breakthoughs in a small study on post-infectious #MECFS

NIH study offers new clues into the causes of post-infectious ME/CFS
In-depth study finds brain, immune, and metabolic abnormalities linked to debilitating chronic disease.

nih.gov/news-events/ne…

For anyone interested, I am sharing this #GoFundMe for superstar National Pain Advocacy Center advocate Quána Madison who is facing multiple surgeries. Quana is a bright light who I and all of us at NPAC value so much.

gofund.me/d9169562

The cause of low back pain is rarely simple. Check out this new NIH tool in development that will help health care practitioners look across the full spectrum of potential contributors to personalize treatment plans. heal.nih.gov/news/stories/b… #nihHEALinitiative

Congrats to you, Burel! Hooray! US Association for the Study of Pain's President-elect.

Delighted to testify today on the danger of 'quality' metrics that end up doing harm.

Delighted to testify to day and see this measure - another 90 MME quality standard, removed due to harm from unilateral tapers, patient abandonment & the lack of individualized care!

Very educational Ola Ojewumi!