Sheena Chew, MD
@sheenachew
Dedicated to taking care of and developing treatments for people with ALS | @MGHneurology and @Harvardmed | Tweets my own
ID: 20807976
13-02-2009 21:21:51
179 Tweet
342 Followers
401 Following
Phil Green
@pjgreen
Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
Muscular Dystrophy UK
@mduk_news
We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
CureDuchenne
@cureduchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Parent Project Muscular Dystrophy (PPMD)
@parentprojectmd
Let's advance the research evolution. #EndDuchenne
Myotonic Dystrophy Foundation
@myotonicstrong
The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.
Muscular Dystrophy Canada
@md_canada
MDC's mission is to help people with neuromuscular disorders live life on their own terms. #WalkRollMDC #MuscularDystrophy FR: @Action_Musclee
Dr Ahmad Al-Khleifat
@ahmadalkhleifat
Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Action Duchenne
@actionduchenne
Our vision: a world where lives are no longer limited by Duchenne muscular dystrophy. Our objectives: research for all, science education, world-class support.
PhRMA
@phrma
We represent America's innovative biopharmaceutical research & biotechnology companies. @SteveUbl CEO
Tucker Olson
@tuckerolson
Learn about my family's fight against SOD1 familial ALS at my website linked on my profile.
Crane Beach - The Trustees
@cranebeachmass
Crane Beach is one of 125 special places protected forever by @thetrustees, featuring miles of sandy beach, hiking trails, wildlife, & the wide blue ocean.
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Professor Matthew C. Kiernan AM Nerve Centrals
@nervecentrals
CEO & Executive Director @Neuraustralia Scientia Professor of Neuroscience @UNSW. Neurologist @SEastSydHealth. President @brainfoundoz Editor Emeritus @JNNP_BMJ
derek guy
@dieworkwear
Menswear writer. Editor at @putthison. Creator of @RLGoesHard. Bylines at The New York Times, The Financial Times, Politico, Esquire, and Mr. Porter
TREAT-NMD®
@treat_nmd
Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Lucy Huber
@clhubes
editor @mcsweeneys Mother of: 👦🏼👶🏼🐈⬛🐈🐠🐌 Writer? Hungry. Tired.
Tyler Olson, EA
@olsonplanner
The physician's financial planner and tax pro.
BigSimmon
@bigsimmon
Defeat Duchenne Canada
@defeatduchenne
Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Duchenne UK
@duchenneuk
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.
Critical Path Institute (C-Path)
@cpathinstitute
C-Path leads collaborations that accelerate drug development, advancing better treatment for people worldwide.
Terri Ellsworth
@terriellsworth
Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
Fernando G Vieira
@fgvoneforty
Dad. CEO & CSO at ALS TDI. Talk less, work more. Opinions expressed on this account are my own.
Filippo Buccella
@filippobuccella
Father, Founder Parent Project Italy, Founder Eupati Italy, Pharmacist, guitar, bass & drums player 😏
Brian Dickie
@drbriandickie
Chief Scientist @ MND Association
Jen DiMartino
@jennydimar
Executive Director ALS ONE @alsone_official My tweets • My thoughts
ALS/MND Alliance
@alsmndalliance
A World Free of #ALS #MND
Sarepta Therapeutics
@sarepta
Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. bit.ly/3XgXshH
Andrea Pauls Backman (she/her)
@andreabackman05
Follow me at AndreaALSstrategy.bsky.social. Passionate about people w ALS/MND & fighting for cures.
Oliver Ziff
@ojziff
Dad to 3 princesses, Neurology SpR by day, ALS data scientist by night. Leeds United fan in between.
Hande Ozdinler
@drozdinler
Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
M W
@michael_e_ward_
Lee Millard
@onein300
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
MND Research Australia
@mnd_ria
Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
World Muscle Society
@worldmusclesoc
The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
Ammar Al-Chalabi
@ammaralchalabi
Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Kuldip Dave
@thekuldipdave
Neuroscientist / Researcher
I AM ALS
@iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Dyne Therapeutics
@dyne_tx
Advancing life-transforming therapies for serious neuromuscular diseases. Community guidelines: bit.ly/3BYPnpK
Duchenne Data Foundation
@duchennedf
Bringing data to life to improve the world of dystrophinopathies
Keith Mayl
@drmayl
MD, PhD. Expertise in neurodegeneration with a focus on ALS-FTD. Medical Director at Servier.
Muscular Dystrophy News Today
@mdnewstoday_
We are dedicated to sharing the latest news, research, and muscular dystrophy patient perspectives.
New Zealand MND Research Network
@nzmndresearch
We are a not for profit organization that promotes motor neurone disease #research in NZ and facilitates collaboration between #MND researchers
Dr. Nadia Sethi
@nadia_sethi
ALS we are coming for you. Widowed by ALS and still fighting it.
EverythingALS
@everything_als
We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
Jean C9orf72
@jeanc9orf72
C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
ALS ONE
@alsone_official
Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
CoreID x @KizzyPhD
@coreidxkizzyphd
“CoreID - Coronaviruses & other Relevant Emerging Infectious Diseases” | Led x @KizzyPhD | Views are whatever the data say.
MND-SMART
@mndsmart
Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
David Taylor
@vpresearch_als
ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
Doomscrolling Reminder Bot
@doomscroll_bot
telling you to drink water, sit up straight, and stop doomscrolling. (bot-in-progress by @karenkho) (current avi: Frog from Meika gafu by Matsumoto Hoji, 1814)
Edgewise Therapeutics
@edgewisetx
On a mission to improve the lives of people facing serious muscle disease.
Brooke Eby
@limpbroozkit
just a gal with ALS
Rothstein Lab
@rothstein_lab
Dr. Jeffrey Rothstein is a professor of neurology and neuroscience @HopkinsMedicine and is the founding director of @packardcenter. (trainee run)
MND Research
@mndresearch
We fund cutting-edge #MND #ALS research in the UK and worldwide. 🔬 Join us at the largest international conference dedicated to ALS/MND #alsmndsymp
AnnemiekeAartsma-Rus
@oligogirl
Translating science from bench to bedside and from jargon to lay language
Solid Biosciences
@solid_bio
Solid’s mandate is to improve the lives of patients living with devastating neuromuscular and cardiac diseases. #TogetherWeAreSolid
SOD1 EndALS
@cehaddadnp
#ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Lyle Ostrow MD PhD
@lyleostrow
Neuromuscular doc/researcher @TempleNeurology @ALSHF. Director, ALS Postmortem Core collab w CDC ALS Registry. Chair, DoD ALS Res. Prog Panel. Views my own.
World Duchenne Organization
@worldduchenne
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
AcuraStem
@acurastem
AcuraStem is a patient-based therapeutics company advancing treatments for ALS, FTD and additional neurodegenerative indications.
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Ruben van Eijk
@rpavaneijk
MND researcher interested in clinical trial methodology | MD | PhD | MSc | Parttime cyclist