The Sandcastle Trust
@sandcastletrust
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http://www.sandcastletrust.org/ 19-06-2016 20:07:33
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Contact
@contactfamilies
UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change!
Arnold Clark
@arnoldclark
We're the UK's largest independent car dealer. Follow for Group and industry news. Need advice? Visit @ACHelpTeam or contact our CS team bit.ly/3DuSKWC
Jeans for Genes UK
@jeansforgenes
Wear your jeans, donate & transform the lives of people living with genetic disorders. Find out more about us and all the ways to get involved!
Unique
@unique_charity
Unique supports & informs anyone born w/a rare chromosome or gene disorder, their families & carers. Eurordis Patient Organisation Award winner.
M&S
@marksandspencer
Welcome to the official M&S Twitter page. Follow us here for news on our newest food, latest fashion and home inspiration. We’re here daily, 8am-8pm.
CoppaFeel!
@coppafeelpeople
Leaving no chest unchecked 🍒
Andrew Orchard
@qiew
ex Charity Trustee, Data Analyst, Investor, Thinks Differently
Hospice UK
@hospiceuk
Hospice UK fights for hospice care for all who need it, for now and forever. We champion the 200+ hospices across the UK. Follow our campaign @dyingmatters.
Ross Lannon
@rosslannon
Lifestyle & Disability Blogger - “A Life on Wheels” 🎧 Presenter at @chaosradiouk
Mina Holland
@minaholland
Editor of @Guardiancook. Author of 'The Edible Atlas', and 'Mamma: Reflections on the Food That Makes Us' - out in February 2017.
BBC Surrey
@bbcsurrey
Celebrating people and stories from the amazing place we call home. 🎧 Listen to BBC Radio Surrey on @BBCSounds 👇Tap the link for more stories
Sibs
@sibs_uk
UK charity for brothers and sisters of disabled children and adults.
Guide Dogs
@guidedogs
Guide Dogs is one of the UK’s leading disability charities. We’re here to help people with sight loss live the life they choose. Enquiries: 0118 983 5555
Chestnut Tree House
@chestnutsussex
Chestnut Tree House is celebrating 21 years of caring for children and families with life-limiting conditions in Sussex and South East Hampshire.
Alice Rath
@alice_rath
Paid Media Specialist Consultant for Charities 💚 Humanitarianism, Global Health & International Development 🌎 Working with: @350 & @GOSHCharity
Young Epilepsy
@youngepilepsy
Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.
AKU Society
@akusociety
Alkaptonuria (AKU) or Black Bone Disease, causes severe osteoarthritis, heart disease & other serious health problems. Help us find a cure.
SOFT UK
@soft_uk
SOFT UK provides information and support for those affected by Trisomy 13, Trisomy 18 (Patau's and Edwards' syndrome) and related disorders
Emma Pears (she/her)
@selfa_emma
Founder & CEO @SELFA_Charity || #SDMNetwork Spokesperson || @WYPartnership Health Equity Fellow || Mum of Hannah & Aidan || #ChildrensMentalHealth
MeathEpilepsyCharity
@meathcharity
If you or someone you care for is living with complex #Epilepsy, then we are here to help. We also fundraise through not to be missed charity events!
The 3H Foundation
@the3hfoundation
We provide opportunities and funding for people with disabilities and their families to have a period of respite or a UK break away.
Louise Gascoine
@lou_gascoine
Associate Professor in Education | Psychotherapist | metacognition | mental health | systematic reviewing | sibling experiences | she/her | 🌊 🚲 🥾
True Colours Trust
@truecolourstrus
We make grants which are designed to make a difference to the lives of disabled children and their families and to improve access to good palliative care.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
The Boobettes
@theboobettes
The Boobettes are a group of young people who have been affected by breast cancer and are ambassadors for the breast cancer awareness charity @coppafeelpeople
Chailey Heritage Foundation
@chaileyheritage
A pioneering charity which educates and cares for children and young people with complex physical disabilities. #pursuingpotential
MedicsforRareDisease
@medicsforrare
Excellence in rare disease medical training
Ring20UK
@ring20uk
Non-profit organisation supporting families, individuals and professionals who are affected by or who come into contact with Ring chromosome 20 syndrome - r(20)
Smile with Shiv
@svt_mands
Our mission, to raise awareness & funds to find a treatment/cure for Duchenne Muscular Dystrophy (DMD). Sadly, we lost our Shiv on 20 Mar 23. Go fly our angel!
Fleur Anderson MP
@putneyfleur
MP for Putney, Southfields, Roehampton and Wandsworth Town. Minister for Northern Ireland. [email protected]
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Garfield Weston Foundation
@westonfdn
A family founded grant-maker supporting a wide range of charities across the UK, with grants totalling over £100 million last year.
Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
Alison Hardy
@ali_hardy9
Mummy, Wife, Teacher
BDFA
@battendiseaseuk
Our mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure.
Joanne Kellett
@kellettjoanne
Emily Clarke (she/her) 🧬🦮
@talkinggenes
Registered Genetic Counsellor @GenePeopleUK. working in the voluntary sector to support the Genetic community. @theAGNC EDI Sub-committee member.
#wouldntchangeathing
@wouldntchangea1
Making negative perceptions of Down Syndrome a thing of the past.
Breaking Down Barriers
@barriersdown
BDB is a network of organisations working together to improve the lives of people from marginalised communities and addressing health inequalities.
Tristi Rayne`
@tristirayne
-Stay fly Moon Child- •Mother of Two •My heart belongs to someone w/Autism & Special Needs. •Ichthyosis Awareness! •AES - Go Warriors!
Julia Rausing Trust
@juliartrust
Charitable fund to realise the philanthropy of Hans Rausing and honour the memory of Julia Rausing supporting Health, Welfare & The Arts. Tweets by grants team.
Katie Finch
@drkatiefinch
Rare Chromosome Condition Advocate, IVF Lab Manager and mum to a trio of tiny pirates 🧬👩🏼🔬🏝️🌈 #SpecialNeedsWin #SEN #chromosomes #raredisease #PGT
Lennie's Tunes
@tuneslennie
♿My name is Lennie and I am 11 years old. I am a disabled pianist who plays great tunes 🎼 #CerebralPalsy #Autism #Hydrocephalus #BeKind 💛💙
CoIN Study
@coinstudykcl
Investigating the impact of Covid-19 on mental health and wellbeing in families of children with rare neurodevelopmental + genetic conditions @KingsIoPPN
Little Lives UK - Children's Charity
@littlelivesuk
Little Lives UK is proud to be a children’s charity committed to empowering disadvantaged children and young people.
Running for Reggie & Friends
@runforreggie
Stephen Little & some of his friends are running to raise funds for charities and Groups who hold activities for people who have Down's Syndrome.
Black Special Needs Parents Support Network UK
@blacksenparents
For parents of Black special needs children in the UK and those who love them #BlackSpecialNeedsUK 🇬🇧🇬🇧🇬🇧🇬🇧
HMP/YOI Hindley
@hmpyoi_hindley
Official Account of HMP&YOI Hindley. This account is not monitored. If you have concerns about a loved one please call Safety Team Help Line on 01942 663294
Jess Fares
@cure_cole
Mom to Cole, diagnosed with #SYNGAP1. Working hard with @curesyngap1 to improve lives of those with #epilepsy #SIB #autism #hypotonia #ID and their families!
Prison Service Charity Fund
@officialpscf
We are the Prison Service Charity Fund formed to support local fundraisers in our Service.
Phillyb
@phillyb44313358
Retired and having fun. working with the Prison Service Charity Fund. proud to be doing good!
Cowries St Merryn
@cowriesstmerryn
Holiday Home in St Merryn, Padstow, Cornwall
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Sam's New Wheels
@samsnewwheels
Barley Mow Tandridge
@barleymowrh8
The Barley Mow is located in the middle of the historic village of #Tandridge (#Surrey). Beautiful #bar, #restaurant & pub garden. Child & dog friendly.
Dan White : Disability Campaigner & Author ♿️
@danwhite1972
Disability & care campaigns / children’s author / writer / DAD ❤️/ CARER / Ambassador / neurodivergent / Agent: thebuckmanagency / VIEWS OWN
WalesGMC
@walesgmc
The Wales Genomic Medicine Centre (GMC) is working with @GenomicsEngland to offer Welsh patients access to the pioneering 100,000 Genomes Project
Carmela Chillery-Watson BCyA
@cure4carmela
Age 10 disability #influencer #ambassador with a muscle-wasting condition, a heart condition, diabetes type 1 and Lipodystrophy, giving hope to others.
Joanna Blewett
@joannablew
Mother, work for a wonderful children’s hospice. A woman just doing her best. Thinking for myself so all views very much my own.
Kathryn Mannix
@drkathrynmannix
Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooks