liverpoolfc.com/news/lfc-acade… A fitting tribute to Rachel ❤️❤️

Anyone at Anfield today please applaud at 12 minutes in memory of an incredible boy who recently lost his battle with Duchenne. His parents said: 'Shiv won't be there but he'll hear the applause up in heaven.'
Smile with Shiv

liverpoolecho.co.uk/news/liverpool…

Thank you to Liverpool Echo for covering our story and spreading the word for Shiv’s memorial clap for 1 minute at 12 minutes into todays liverpool vs Nottingham Forest Game - please join us so Shiv can hear is from heaven #LIVNFO #YNWA #Forever12

Please join in and help spread the word by retweeting
A one minutes clap at 12 minutes in to tomorrows home game LFC v Notts Forest for our beloved son Shiv who left us one month ago.
We want him to hear us in heaven where he will be watching. Thank you
#FOREVER12 #YNWA #LIVNFO

No approved effective treatment for all….We need you to help us #fightduchenne #endduchenne #smilewithshiv #raceagainsttime

world duchenne organization!!

𝗔𝗣𝗣𝗟𝗜𝗖𝗔𝗧𝗜𝗢𝗡𝗦 𝗡𝗢𝗪 𝗢𝗣𝗘𝗡
Join the Duchenne Patient Academy, a 5-day intensive training to build a strong base for current and future global advocacy. #DPA2021
👇 Apply today!
duchennedatafoundation.org/applications-o…

Are you an adult living with Duchenne Muscular Dystrophy (DMD) aged between 20 and 30 years old? Pathfinders invites you to take part in their latest research project. You can find out more information by reading our consent form by following this link ( forms.gle/icXtMd9x7YEWND… )

Keep doing us proud, rhysporter__! 🤍

A true inspiration to everyone.

#FFC

𝗡𝗲𝘄𝗯𝗼𝗿𝗻 𝗦𝗰𝗿𝗲𝗲𝗻𝗶𝗻𝗴 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗠𝗼𝗻𝘁𝗵
👶 Families agree that early diagnosis allows for better care
👩‍⚕️ New treatments are emerging
NOW is the time to include Duchenne and Becker MD in Newborn Screening.
#2021NBS #duchenne worldduchenne.org/news/newborn-s…

Looking great Alfie!

If you or your child has #DMD and is steroid dependent, you can order your own free wristband here r1.dotmailer-surveys.com/9f8238e2cd2d55…

As part of our efforts to better understand and support #Duchenne carrier issues, we are excited to to provide a new comprehensive guide addressing the questions most often asked by carriers (available in both English and Spanish). parentprojectmd.org/new-resource-d…

Thanks to everyone who has supported me so far! They money we raise get's sent to Duchenne Family Support Group every week, so we're already making a difference. They do incredible work. justgiving.com/fundraising/p-… #JustGiving

🚨History in the making 🚨

A chance to see Powerchair Football live on TV for the very first time tomorrow morning.
10.30am with TNT Sports on multiple platforms.

Good luck ASPIRE PF(C) and WBA Powerchair in the final 🤞🏻

#DiscoverDisabilityFootball

🥳WE DID IT!🥳 The Duchenne Dash AT HOME has officially raised £30,000!

There's still 3 days left until the end of the virtual challenge so keep up the hard work everyone and make this year’s Dash AT HOME one to remember💪

Donate here: bit.ly/dahdonate

#endduchenne

uk.virginmoneygiving.com/ShivsSmilersDa…

Our team of 32 Shivs Smilers have been working so hard to complete their combined pledged miles of 4,838. For Duchenne UK
Please show your support - no matter how big or small, your contribution will go a long way to #EndDuchenne
#TogetherWeAreStronger

The #Duchenne Community Advisory Board (CAB) was created in 2018 to support optimal trials and speed up #access to effective #treatments . If you want to learn more: duchennedatafoundation.org/project/duchen…

Looking forward to working with the team of experts at Duchenne Data Foundation.
I have great respect and admiration for the contribution that is being made to the community. I will do my best to add value to all the great work -
Thank you

Pathway behind muscle breakdowns in Duchenne muscular dystrophy discovered #pathway #muscle #Duchenne #musculardystrophy #science #newspaper

Read more about this here: ow.ly/u5Bt50EM5if