SOFT UK (@soft_uk) 's Twitter Profile
SOFT UK

@soft_uk

SOFT UK provides information and support for those affected by Trisomy 13, Trisomy 18 (Patau's and Edwards' syndrome) and related disorders

ID: 237653154

linkhttp://www.soft.org.uk calendar_today13-01-2011 09:35:58

2,2K Tweet

606 Takipçi

228 Takip Edilen

The National Lottery Community Fund Scotland (@tnlcomfundscot) 's Twitter Profile Photo

A big congratulations to the 453 charities and community groups in Scotland sharing £11.8 million of #NationalLottery funding today! 🎉 These worthy projects are helping to connect and empower people across Scotland. We thought we'd share some of them in the thread below.👇

A big congratulations to the 453 charities and community groups in Scotland sharing £11.8 million of #NationalLottery funding today! 🎉

These worthy projects are helping to connect and empower people across Scotland. We thought we'd share some of them in the thread below.👇
SOFT UK (@soft_uk) 's Twitter Profile Photo

We are in the early stages of gathering data and need your help! soft.org.uk/news/trisomy-1… #trisomy13 #trisomy18 #trisomy

SOFT UK (@soft_uk) 's Twitter Profile Photo

We wanted to remind you that you can register directly with SOFT UK to keep up to date with our latest news. To register with SOFT UK, follow the link: soft.us6.list-manage.com/subscribe?u=57… #trisomy #trisomy13 #trisomy18

We wanted to remind you that you can register directly with SOFT UK to keep up to date with our latest news.

To register with SOFT UK, follow the link: soft.us6.list-manage.com/subscribe?u=57…

#trisomy #trisomy13 #trisomy18
SOFT UK (@soft_uk) 's Twitter Profile Photo

We will be hosting a call on Friday 13th at 19:30 during Baby Loss Awareness Week. Please get in contact if you'd like to join and speak with families and members from SOFT UK. Email [email protected] for an invite. #babylosswareness #blaw2023

We will be hosting a call on Friday 13th at 19:30 during Baby Loss Awareness Week.

Please get in contact if you'd like to join and speak with families and members from SOFT UK.

Email sonia.sankoli@soft.org.uk for an invite.

#babylosswareness #blaw2023
Baby Loss Awareness Week (@bla_campaign) 's Twitter Profile Photo

Today marks the first day of #BabyLossAwarenessWeek. This is the 21st Baby Loss Awareness Week in the UK, and whilst it has grown over time, the aims of the week remain the same. This week we join together to remember our babies, raise awareness, and drive change 💖💙

Sands - baby loss charity 💙🧡 (@sandsuk) 's Twitter Profile Photo

#BabyLossAwarenessWeek begins today & we are proud to lead over 130 charities taking part 💙💗 There are so many ways you can get involved to help us improve awareness of #BabyLoss, remember every baby & offer a safe space for support. ➡️sands.org.uk/BLAW #BLAW #BLAW2023

#BabyLossAwarenessWeek begins today & we are proud to lead over 130 charities taking part 💙💗

There are so many ways you can get involved to help us improve awareness of #BabyLoss, remember every baby & offer a safe space for support.

➡️sands.org.uk/BLAW

#BLAW #BLAW2023
SOFT UK (@soft_uk) 's Twitter Profile Photo

Our Baby Loss Awareness Week 2023 page is now live. To share a photo in one of our remembrance frames, or share a quote, saying, poem, or anything else that has helped you, please email [email protected] The page can be found here: soft.org.uk/baby-loss-awar… #blaw2023

SOFT UK (@soft_uk) 's Twitter Profile Photo

If you'd like to share a photo or message for our Baby Loss Awareness Week 2023 page, then please get in touch. You can find the page here: soft.org.uk/baby-loss-awar… #babyloss #babylossawarenessweek #blaw #trisomy #trisomy13 #trisomy18

If you'd like to share a photo or message for our Baby Loss Awareness Week 2023 page, then please get in touch.

You can find the page here: soft.org.uk/baby-loss-awar…

#babyloss #babylossawarenessweek #blaw #trisomy #trisomy13 #trisomy18
SOFT UK (@soft_uk) 's Twitter Profile Photo

Happy Halloween! We hope you're doing something exciting and would love to hear what you and your family are dressing up as this Halloween. #halloween #family #festivity

Happy Halloween! 

We hope you're doing something exciting and would love to hear what you and your family are dressing up as this Halloween.

#halloween #family #festivity
SOFT UK (@soft_uk) 's Twitter Profile Photo

Incase you missed it, our SOFT Scotland Family Day event page is live. We have presentations from the team at SOFT, partner charities, professionals, and SOFT UK families available to watch there. soft.org.uk/scotland-famil… #familyday #ukcharity #trisomy13 #trisomy18

Incase you missed it, our SOFT Scotland Family Day event page is live.

We have presentations from the team at SOFT, partner charities, professionals, and SOFT UK families available to watch there.

soft.org.uk/scotland-famil…

#familyday #ukcharity  #trisomy13 #trisomy18
SOFT UK (@soft_uk) 's Twitter Profile Photo

This December we will be hosting our Sing For SOFT event! We heard some incredible performers, and can't wait to see what's in store for this years event. Email [email protected] for details #music #trisomy #trisomy13 #trisomy18 #charityevent

This December we will be hosting our Sing For SOFT event! We heard some incredible performers, and can't wait to see what's in store for this years event.

Email shaun.dowdall@soft.org.uk for details

#music #trisomy #trisomy13 #trisomy18 #charityevent
SOFT UK (@soft_uk) 's Twitter Profile Photo

We'd like to invite you to our Living With Trisomy family call on Tuesday 14th at 19:00 The call is for families living with Trisomy 13 or Trisomy 18. For a call invite, please email [email protected] #familycall #trisomy13 #trisomy18

We'd like to invite you to our Living With Trisomy family call on Tuesday 14th at 19:00

The call is for families living with Trisomy 13 or Trisomy 18.

For a call invite, please email sarah.bowell@soft.org.uk

#familycall #trisomy13 #trisomy18
SOFT UK (@soft_uk) 's Twitter Profile Photo

A new study at the University of Oxford is trying to understand whether health-related quality-of-life measures capture the lived experience of people with rare genetic conditions and their families. Apply to take part. shorturl.at/zCMS8 #research #trisomy13 #trisomy18

A new study at the University of Oxford is trying to understand whether health-related quality-of-life measures capture the lived experience of people with rare genetic conditions and their families. 

Apply to take part.

shorturl.at/zCMS8

#research  #trisomy13 #trisomy18
SOFT UK (@soft_uk) 's Twitter Profile Photo

Last call for your SING for SOFT submissions. If you've got a song in you and you'd like to submit a video for our show on Friday, please email it to [email protected] #christmassong #music #charity

Last call for your SING for SOFT submissions. If you've got a song in you and you'd like to submit a video for our show on Friday, please email it to shaun.dowdall@soft.org.uk

#christmassong #music #charity
SOFT UK (@soft_uk) 's Twitter Profile Photo

We will be hosting our Coffee With SOFT Zoom call tonight at 19:30. If you'd like to come along and chat with other members of the community and some of the team at SOFT UK, get in touch. For an invite, email [email protected]

We will be hosting our Coffee With SOFT Zoom call tonight at 19:30. If you'd like to come along and chat with other members of the community and some of the team at SOFT UK, get in touch.

For an invite, email shaun.dowdall@soft.org.uk
SOFT UK (@soft_uk) 's Twitter Profile Photo

As February draws to a close, we usher in a month of advocacy, education, and unity in support of Trisomy Awareness Month. To find our what activities we will be hosting during TAM 2024, and how you can get involved, follow the link here: soft.org.uk/news/trisomy-a…

As February draws to a close, we usher in a month of advocacy, education, and unity in support of Trisomy Awareness Month.

To find our what activities we will be hosting during TAM 2024, and how you can get involved, follow the link here: soft.org.uk/news/trisomy-a…
SOFT UK (@soft_uk) 's Twitter Profile Photo

Today is the first day of Trisomy Awareness Month 2024! We'd love to hear from you in the comments about what Trisomy Awareness Month means to you? #trisomy #trisomyawarenessmonth #trisomyawarenessmonth2024 #tam2024

Today is the first day of Trisomy Awareness Month 2024!

We'd love to hear from you in the comments about what Trisomy Awareness Month means to you?

#trisomy #trisomyawarenessmonth #trisomyawarenessmonth2024 #tam2024
SOFT UK (@soft_uk) 's Twitter Profile Photo

We are excited to announce that SOFT UK will be working with Making Families Count on a webinar titled: Hearing the Parent Voice – Caring for a Child with Complex Needs For more details: shorturl.at/qLPQS To book: shorturl.at/yGKUW

We are excited to announce that SOFT UK will be working with Making Families Count on a webinar titled: Hearing the Parent Voice – Caring for a Child with Complex Needs

For more details: shorturl.at/qLPQS
To book: shorturl.at/yGKUW
SOFT UK (@soft_uk) 's Twitter Profile Photo

Today we are sharing a new family story on our website 'Spark of Hope: Lorelei's Story' You can find the story here: soft.org.uk/family-stories… #trisomy #trisomy13 #trisomy18 #trisomystory #tam2024

Today we are sharing a new family story on our website 'Spark of Hope: Lorelei's Story'

You can find the story here: soft.org.uk/family-stories…

#trisomy #trisomy13 #trisomy18 #trisomystory #tam2024
SOFT UK (@soft_uk) 's Twitter Profile Photo

We are pleased to announce that our upcoming webinar is now free to attend for all participants. If you'd like to attend, or know someone who this topic would benefit, then please click the link for more information. soft.org.uk/news/online-we… #trisomy #trisomy13 #trisomy18

We are pleased to announce that our upcoming webinar is now free to attend for all participants. If you'd like to attend, or know someone who this topic would benefit, then please click the link for more information.

soft.org.uk/news/online-we…

#trisomy #trisomy13 #trisomy18