Participatory Medicine
@s4pm
Our mission is to catalyze collaborative partnerships across the continuum of care. Vision: Patients, providers & caregivers as equal partners. #s4pm
ID: 51502583
http://Participatorymedicine.org 27-06-2009 17:47:29
8,8K Tweet
7,7K Followers
2,2K Following
John Lynn
@techguy
Community Organizer, Entrepreneur, Writer, Conference Organizer, Keynote Speaker. See also @healthcarescene @EXPOdotHealth #HITsm #HITMC #hcldr etc etc etc.
Halle Tecco MBA, MPH
@halletecco
✨Healthcare optimist✨
Dave deBronkart
@epatientdave
@ePatientDave.bsky.social Participatory Med. Past: OpenNotes adv bd, HL7 #PatientsOnFHIR co-chair, Mayo visiting prof. #HeForShe, #AntiRacist
Mighty #HeathenSlut Casey🇺🇦🌟
@mightycasey
Snarky #HealthData journo/wonk/activist. This gets loud. Avatar story: bit.ly/QRtat #MetsParty #BeLikeLight #bcsm med-mastodon.com/@mightycasey
Chrys Bader
@chrysb
Co-founder of @joinrosebud. Compulsively curious. Recovering perfectionist. YC S08. 🍊🎹⚽️🧑🏻💻🎮🌹
Jennifer Brea🦒
@jenbrea
Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Jan Oldenburg ☮️
@janoldenburg
Focused on digital & participatory health. Editor of Participatory Healthcare & Engage! janoldenburg.com
@drgnayyar.bsky.social — Geeta Nayyar, MD MBA
@drgnayyar
Chief medical officer, technologist, @WSJ bestselling author, “Dead Wrong" Helping healthcare humanize innovation. @RadiantGraph. @Salesforce, @ATT alum.
Susannah Fox
@susannahfox
Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her. SusannahRFox on bluesky &🧵& insta & gmail
Ziyad Al-Aly, MD
@zalaly
Physician-Scientist | TIME100 Health time.com/6966812/ziyad-… Profile: outlook.wustl.edu/real-world-ref…
Alyssa Jaffee
@alyssajoyjaffee
VC Partner @7wireventures empowering consumers to be better stewards of their health. Digital health enthusiast. Storyteller. Boy mom x 3!
Victor Montori, MD 💙
@vmontori
Mayo Clinic diabetes doc + researcher + care activist working for careful + kind care for all. Wrote Why We Revolt 🇵🇪 @[email protected]
Liz Salmi
@thelizarmy
Be one, do one, teach one. Co-Investigator for @myopennotes. Bringing punk rock to health care. @thelizarmy.bsky.social
Teladoc Health
@teladochealth
As the global leader in #virtualcare, we're transforming how people access healthcare. (NYSE: $TDOC). For member questions, follow @TeladocSupport.
Oracle Health
@oraclehealth
Oracle Health is harnessing data to create a more transparent, human-centric health experience.
Abner Mason
@abnermason
📍| Newyork US 🇺🇸 🌎| Empower & Enrich People Daily 💎| Creating a Legacy ⚜️| Platinum Leader and Crypto miner 🎓I DM to learn how to Mine Crypto⬇️
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
RisingMS
@risingms
Delivering medical care and cost optimization solutions to the workers’ comp, auto, liability and group health markets.
Nicole Grubner
@nicolegrubner
Sustainability and ClimateTech, Healthcare and HealthTech, #Marketing and #PR. Harry Potter enthusiast.
Stacy Hurt (she/her)🌻
@stacy_hurt
Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
David Leavitt 🎲🎮🧙♂️🌈 🔜 #PaxEast
@david_leavitt
Award-Winning Multimedia Journalist. Bylines: CBS, AXS, Yahoo, Examiner, etc. I love #Games. Casual #MTG & #Boardgames player. Work w/me: [email protected]
Ian Kremer
@lead_coalition
Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw bsky.app/profile/leadco… instagram.com/ian.kremer mastodon.world/@LEAD_Coalition
Thomas M. Lee
@tmlfox
Cofounder of @ErudioHealth. Former co-founder of @symplur and The Healthcare Hashtag Project. Curious by nature.
Eric Topol
@erictopol
physician-scientist, author of SUPER AGERS tinyurl.com/3w76us9a and Ground Truths: erictopol.substack.com
Tatiana Prowell, MD
@tmprowell
Oncologist serving people w/ #cancer in #MedEd, #SciComm, & #bcsm. Past ASCO Ed Chair. Cofounder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high 🦋
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dana Parish
@danaparish
The Dana Parish Podcast 🎙️ : tinyurl.com/3r865p2r Bestselling Author 📖: rb.gy/9p0sj2 📰: DanaParish.substack.com
ISMPP
@ismpp
ISMPP is a not-for-profit society for medical publication and communication professionals, with over 2,500 members worldwide.
SMART Health IT
@smarthealthit
App Store for Health | Health Data -- Innovation Interface | Computational Health Informatics Program @Bos_CHIP @mandl @JoshCMandel
Ilana Yurkiewicz, MD
@ilanayurkiewicz
Doctor, journalist, researcher, mom. Oncologist, primary care physician, and professor @StanfordMed. Author of book FRAGMENTED @WWNorton
Grace Vinton
@hiteawithgrace
Healthcare Pulse + Patient Advocate + Big Data Geek + Serial Connector + New Englandah + Own Opinions 👌
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Colin Hung
@colin_hung
CMO & Editor @HealthcareScene. Healthcare Advisor @ventureLABca @Haltech_RIC Co-founder #hcldr. #HealthIT true believer #pinksocks #HITMC #TheWalkingGallery
CareEvolution
@careevolution
Digital ecosystem for healthcare innovation
DrLJ 💙
@drlaurajane
Consultant 🫁 doctor. Interested in Life, Death & some stuff in between. @drlaurajane.bsky.social 🌱she/her
Double Whammy
@double_whammied
Everything was going great until this whole breast cancer thing.
Resia Pretorius
@resiapretorius
Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
jay cowit
@jaycowit
jaycowit.com Audio Consultant/Sound Designer/Broadcaster formerly @thetakeaway @freakonomics music: jcowit.bandcamp.com (he/him).
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Rasu Shrestha MD MBA
@rasushrestha
Bridge builder & strategist. EVP, Chief Innovation & Commercialization Officer. In pursuit of person-centered value-based health & care. Tweets are my own.
Josh Mandel, MD
@joshcmandel
physician, programmer, and would-be pâtissier/poet. Chief Architect for #MicrosoftHealth and for @SMARTHealthIT. Bsky: josh.mandel.md
Mark Lewis, MD, FASCO
@marklewismd
Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Princess, The Tower
@apainprincess
Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
DirectTrust
@directtrustorg
Instilling Trust in Exchange - An alliance dedicated to supporting #Interoperability and #TrustInIdentity. We're a #TrustFramework and #StandardsDevelopment org
Heather Cox Richardson (TDPR)
@hc_richardson
Historian. Author. Professor. Budding Curmudgeon. I study the contrast between image and reality in America, especially in politics. Honorary NAFO fella.
Alice Meadows 🇺🇦
@alicejmeadows
Cofounder @morebrains_coop. Passionate about improving trust in scholcomms & addressing inequities. Views my own. She/her
GYN Cancer | #GYNCSM
@gyncsm
#gyncsm - a community for those impacted by gynecologic cancers Co-Founders: @womenofteal @btrfly12 Healthcare Moderators: @ShannonWestin @NitaKarnikLee
Ming Tai-Seale
@mtaiseale
Professor, Health economist @UCSD, specializing in patient engagement, patient-physician communication research, and research on the practice of medicine.
Prashila Dullabh
@healthitzen
Nick Adkins
@nickisnpdx
kilt wearing pink furry bike riding healthcare MBA. 🌍💖😊 the world is full of good! when u believe it, u see it. keep doing that! ✨ #pinksocks
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Janae Sharp
@coherencemed
Healthcare IT. Mom. Suicide loss survivor #ai #python #HealthIT #HIMSS #Interoperability. Healthcare as a human right. #ENTJ.
CHIP Informatics
@bos_chip
Computational Health Informatics Program | Harvard Medical School chip.org
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Enlightening Results 💡
@gracecordovano
#Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Lady Glaucomflecken (she/her)
@lglaucomflecken
Speaker. Podcaster. Writer. SCA lay responder. Co-survivor cancer/SCA/med school/marriage to @DGlaucomflecken. glaucomflecken.com/supporting-co-…
Janice Tufte
@hassanah2017
Patient Collaborator #HealthSystemsResearch #Evidence #Health #PCORIAmbassador Tweets are my own. We are all in this together 💓
JD Vance News
@jdvancenewsx
🚨Breaking News Daily! No Affiliations with @JDVance. Turn on (🔔) Notification to be the first to get Breaking News. Biggest JD Vance (News) Fanpage on X 🇺🇸.
Wall Street Apes
@wallstreetapes
We Are The Resistance. Unfiltered Breaking News | Followed By @elonmusk 𝕏 @joerogan 🎙️ @DonaldjTrumpJr 🇺🇸 @dbongino ⚖️ @RealAlexJones 🪬 @JamesOKeefeIII 🗞️
RitaT
@ritorkzadeh
In #HealthIT to advance #personcentered and personalized care for all thru equitable #digitalhealth. Pro-privacy, choice, & ☮️. Views/tweets my own. RTs FYI.
Long Covid Doc
@longcoviddoc
EM Doctor with Long Covid. Tachy since March 2020. Mostly recovered. Here to learn & support. Tweets definitely not medical advice. #LongCovid can get fucked.
micky tripathi
@mickytripathi1
former hhs/astp, views expressed or implied are my own
RemissionBiome MECFS/LongCovid Patient-Led Science
@remissionbiome
Community science, patient-led project of the non-profit, decentralized research org, @renegaderes. RemissionBiome.org
Heather Walker
@heather14199214
Passionate life-long learner, PDAvenger and Caregiver/Advocate to Matthew in his struggle with severe and progressive PD, together we @walk2roads
Civitas Networks for Health
@civitas4health
National collaborative of membership organizations working to use #HDU, #HIE, #healthdata, and multi-stakeholder, cross-sector approaches to improve health.
npj Digital Medicine
@npjdigitalmed
Open access @NaturePortfolio journal for the #DigitalMedicine community, publishing research, reviews & comments. Tag us & tweet your work with @npjDigitalMed.
Nate Fitch, PhD
@docfitch480
Writer of Horror Fiction // Biomedical Scientist // 🖋️@getfreewrite author advocate & @Inkitt published author
It'sME(Jaime)
@exceedhergrasp1
Scientific Director, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected] (really not on X anymore!)
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice