Nurown já por favor autoridades

Simpósio recente

HELP.We have a death sentence over our head: it feels like been buried alive.We die a day after another, and nothing is done to stop this outrage.Are we invisibile?EU Medicines Agency European Commission Ursula von der Leyen Stella Kyriakides BrainStorm C Lebovits WORLD FIGHT AGAINST ALS Rob Burrow CBE #nurown #ENDALS

Por favor Nurown já piety piety

Neste fim de ano, #CompreDoPequeno. Assim, você fica por perto de casa e fortalece o comércio do seu bairro. bit.ly/3h2vLp7

This is our reality, true fighters despite everything. It's time for treatments for #ALS to be approved URGENTLY #NUROWN #amx0035 BrainStorm Amylyx U.S. FDA EU Medicines Agency Dr. Stephen M. Hahn Dr. Janet Woodcock Stella Kyriakides Ursula von der Leyen C Lebovits Mary Kay Turner Pascal Canfin President Donald J. Trump Joe Biden

My wish: the cure for ALS. But until we get it, we need the approval of treatments that help us continue a little longer!!!We need time to live and the slow bureaucracy takes it away. #NUROWN #AMX0035 BrainStorm Amylyx U.S. FDA EU Medicines Agency Dr. Stephen M. Hahn Dr. Janet Woodcock President Donald J. Trump

We need treatments for #ALS NOW!!! We need help NOW!!! NOW!!! NOW!!! Approval #NUROWN & #AMX0035 NOW!!! BrainStorm Amylyx U.S. FDA EU Medicines Agency Dr. Stephen M. Hahn Dr. Janet Woodcock Stella Kyriakides Ursula von der Leyen European Commission C Lebovits Mary Kay Turner President Donald J. Trump Joe Biden Pascal Canfin

I lit this candle in the hope of access to #als treatments. 150 years without treatments, ENOUGH NOW! #nurown #amx0035 Please join! BrainStorm Amylyx U.S. FDA EU Medicines Agency Dr. Stephen M. Hahn Dr. Janet Woodcock Stella Kyriakides Joe Biden C Lebovits Mary Kay Turner

I lit this candle in the hope of access to #als treatments. 150 years without treatments, ENOUGH NOW! #nurown #amx0035 Please join! BrainStorm Amylyx U.S. FDA EU Medicines Agency Dr. Stephen M. Hahn Dr. Janet Woodcock Stella Kyriakides President Donald J. Trump Joe Biden C Lebovits Mary Kay Turner Human Rights Watch

Soften your hearts and give us the opportunity to get treatments for ALS NOW. We need help NOW. Approval #NUROWN & #AMX0035 NOW. BrainStorm Amylyx U.S. FDA EU Medicines Agency Stella Kyriakides Dr. Stephen M. Hahn Dr. Janet Woodcock Ursula von der Leyen C Lebovits Mary Kay Turner President Donald J. Trump Joe Biden Pascal Canfin

Soften your hearts and give us the opportunity to get treatments for ALS NOW. We need help NOW. Approval #NUROWN & #AMX0035 NOW. BrainStorm Amylyx U.S. FDA EU Medicines Agency Stella Kyriakides Dr. Stephen M. Hahn Dr. Janet Woodcock Ursula von der Leyen C Lebovits Mary Kay Turner President Donald J. Trump Joe Biden Pascal Canfin