These cases of young women with severe ME are pretty devastating. Here's a bit about Millie's situation.
virology.ws/2024/04/09/tri…

We have an update from Karen's family. Karen is severely ill and being threatened with legal action if she doesn't move to a hospital unit with a strong psychiatric approach. Please sign and share her petition.

ow.ly/VRyH50RcpuG

#MyalgicEncephalomyelitis #VerySevereME

Long COVID can be debilitating, and thus, further research and support for those living with the condition are urgently needed.

Long Covid Support 🌍
bit.ly/4aSgS3K

BREAKING
'Police to investigate Angela Rayner over residency declaration'

Rishi Sunak holding a USA residency Green Card - nothing to see here!

Vote Leave's Tory Matthew Elliott who broke electoral law now in House of Lords

SINISTER TORY HYPOCRISY theguardian.com/politics/2024/…

For those who think #MyalgicEncephalomyelitis is just being 'tired'. Its like having a car where every light on the dash board is lit. It's not being believed by family, friends & doctors. It's millions of lives put on hold. It's abject poverty, food & housing insecurity. #pwME

A new appreciation of how your brain misinterprets signals from your body and the environment is helping us get a better grasp on what anxiety actually is. newscientist.com/article/mg2623…

This podcast about carers being prosecuted is a real eye opener, but it will really anger you too. What happened to George, my god it is awful. This is a huge DWP scandal that feels similar to what happened to those postmasters.

theguardian.com/news/audio/202…

Ministers face calls to abandon “cruel and nonsensical” fines levied on tens of thousands of unpaid carers for unwittingly breaching earnings rules by just a few pounds a week.

theguardian.com/society/2024/a…

“The issue is not that Starmer is interested in attracting Tory voters, it’s that he often appears uninterested in keeping Labour ones. Indeed, at times, the party seems actively keen to lose them.”

My col. in today’s The Guardian theguardian.com/commentisfree/…

Unpaid carers shocked at having to repay thousands.

One victim of this policy, Gina Price, cared for her dad and worked part-time in a petrol station. After 5 years getting Carer's Allowance DWP told her she owed them £7,600 in overpayments.

bbc.co.uk/news/uk-687743…

Carer prosecuted for fraud and forced to pay back £20,000 in carer's allowance overpayments fights to clear his name after DWP acknowledges - six years on - he likely had made an 'innocent mistake'. Utterly enraging story, brilliantly told by Helen Pidd theguardian.com/society/2024/a…

Disabled people living on the streets, yards from former DWP offices
#DWP #UniversalCredit #Adelphi
disabilitynewsservice.com/disabled-peopl…

The Government has completely turned their backs on renters,' writes Caroline Lucas

'New laws are urgently needed to rein in rogue landlords, who do nothing but line their pockets and rake in obscene profits, as their tenants live in old, cold, damp and cramped homes'

The government has denied playing any role in deciding that a high-profile 2nd inquest into a disabled woman’s suicide – linked closely to the actions of the Department for Work and Pensions – will clash with the Labour party conference.
#DeathsByWelfare
buff.ly/3PWleys

Long waits in A&E for people experiencing mental health problems are excruciating. They're a symptom of decades of underfunding and a broken mental health system.

One of our media volunteers, Emma, talks about waiting for 87 hours to be seen. That’s 3 and a half days.

Tory Minister Michelle Donelan's libel bills cost taxpayers £34,000 after she falsely accused an academic of extremism.

Libelling others is not part of part of Ministerial duties. So why are the people paying for it?

Ahh ... .the Tory magic money tree.
bbc.co.uk/news/uk-politi…

Sharing your health and care experiences can help services to improve.

You can feed back to us not only via our online form, but on the phone, British Sign Language and text relay.

To find out more, visit
orlo.uk/Hmveb

#ShareForBetterCare

In other news....

A NHS dept wants to adhere to the M.E NICE guideline and want to chat about 'evolving' their service accordingly.

These AWESOME people DO EXIST.

We need MANY more of them though!

#Cymru #pwME

'With a completely broken heart, I must announce that my firstborn, my best friend, my Son #1 Victor James Stubbe passed away from a catastrophic and sudden medical event yesterday morning at our home. The medical examiner will be giving more answers, but it appeared to be a…

healthrising.org/blog/2024/04/1…