Rett UK
@rettuk
Rett UK is a national charity dedicated to supporting and empowering people with Rett syndrome and their families #SupportTodayHopeForTomorrow
[email protected]
ID: 78711712
http://www.rettuk.org 30-09-2009 21:22:27
5,5K Tweet
2,2K Followers
618 Following
Contact
@contactfamilies
UK disability charity for all families caring for a disabled child โ๏ธ support, info & advice โค๏ธ bringing families together ๐ข campaigning for change!
Rett SyndromeโฟโฟGP2C
@girlpower2cure
#gp2c raises awareness & research funds for #RettSyndrome - head to the link below to get involved. Partners with: @rettuniversity & @rettgirl
Matt Hancock
@matthancock
Former UK Cabinet Minister
Rett Dad
@rettdad
In addition to teaching my daughter about the world, I am teaching the world about my daughter and others with Rett syndrome.
Carers UK
@carersuk
Caring for a relative or friend? When caring affects you and your family Carers UK is here to provide the support and advice you need.
RSRT
@rsrt
The Rett Syndrome Research Trust: Our singular focus is a cure for Rett syndrome. DONATE: reverserett.org/donate/
UK Health Security Agency
@ukhsa
Official feed of the UK Health Security Agency (UKHSA) providing regular news updates on the work of the organisation.
RCSLT ๐
@rcslt
The Royal College of Speech and Language Therapists is the professional body for speech and language therapists and support workers.
WellChild
@wellchild
WellChild is the national charity giving children and young people with serious illness the best chance to thrive - at home with their families.
Whitbread Careers
@whitbreadcareer
Whitbread PLC is the power behind some of the UKโs most successful, much-loved hospitality brands. No barriers to entry, no limits to ambition!
Victoria Scott | Author
@toryscott
Bestselling author of THE STORYTELLER'S DAUGHTER, THE HOUSE IN THE WATER & THE WOMEN WHO WOULDN'T LEAVE. Uni lecturer, too. linktr.ee/victoria.scott
Together for Short Lives
@tog4shortlives
National charity for children's palliative care. Making a lifetime of difference to seriously ill children and their families.
Demelza Charity
@demelzacharity
Demelza is here, providing extraordinary care for extraordinary children ๐
International Rett Syndrome Foundation
@rettsyndrome
We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.
Karl Wilding
@karlwilding
Trying to work out whatโs going on in civil society & what to do next. At: @UniKentCfP @MyCakeFinance @1stCommunities @creatingtfuture. Ex-@ncvo. Volunteer.
Mel Hall ๐
@melhall10
Mum of 2 amazing boys. Proud Area fundraiser for Acorns Childrenโs Hospice. Hoping for a cure of Batten Disease one day very soon โค๏ธ (views all my own)
Jon Spiers
@yeswejon
CEO of @RoyalFreeChty. Previously CEO at @Autistica. He/him. My own views obv. RTs don't mean I agree.
Mary Engel
@marykforrest
ููุฑ ุฃุฎูุงูู_ูุฎุจูุฑ ุชููู | ููุตู ๐ธ๐ฆ
@salmhacker
ููุฑ ุฃุฎูุงูู ูุฎุจูุฑ ุชููู ูู ุฎุฏู ุชูู ู ุชุฎุตุต ูู ู ุฌุงู ุงูุชูููุงุช ุงูุญุฏูุซุฉ ูุญููู ูุถุงูุง #ุงูุงุจุชุฒุงุฒ
Autistica
@autistica
The UK's leading autism research and campaigning charity. We fund research, shape policy and work with autistic people to make more of a difference.
Gene People
@genepeopleuk
Charity supporting families affected by genetic conditions providing the UKs only free Genetic Counsellor-Led Helpline 0800 987 8985 | [email protected]
Rachel Travers
@racheltravers1
CEO of Rainforest Trust UK - safeguarding critical tropical habitats, is the most effective way to protect species and keep carbon stored.
Disabled Children's Partnership
@dcpcampaign
The DCP is a coalition of organisations campaigning to improve support for disabled children, young people & families. #SENDABetterMessage
Jo Martindale
@jomartindale
CEO @hkp_info, CVS Communities rep Peoples Scrutiny and NHS Sx ICT Board/s. Governing body WHPCN. Love Hove, living by the sea and making things happen
Isobel Mair School
@isobelmair
Isobel Mair School and Family Centre is for Children and young people aged 0-18 years with additional support needs from across East Renfrewshire
Tracey Campbell ACT
@traaceyc
A parent with a passion for AAC. Trying to get the world to believe everyone has a right to learn a full language system. So I turned pro. PGCE CCN.
Amaze Sussex
@amazesussex
Amaze is a charity that offers information, advice and support to families with disabled children and young people in Sussex.
Lydia L. Seiders
@lseiders3
#Strategist | Former #MD State Ambassador for @RareAction | #Advisor for @Liv4TheCure ReTweets โ Opinion, Endorsement, Support or View of Current Employer
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
NHS England
@nhsengland
We lead the NHS in England to deliver high quality services for all. Find out more. england.nhs.uk
๐คโญ๐ฅ๐ฏ๐ฆ๐ฐ๐ฑ๐ฌ๐ญ๐ฅ๐ข๐ฏ๐
@rettsyndrome1
#ethereum ๐ ๐ฆ๐บMelbourne
Caron Lawson
@lawsoncaron
Mum of 2 Wonderful Boys & Gorgeous Kathryn who has Rett Syndrome - When Kathryn Smiles the Whole World Smiles!
Mandaem
@amandaemkelly
Parent carer, governor, journalist and previous small charity CEO. Teacher of English.
Jane Botham
@queenieandco
We have been inspired by the beautiful girls with Rett Syndrome to design and make clothing for children with #additionalneeds #feedingtube #adaptedclothing
Rita
@ritarvross
Wife to Gavin, Mum to Cameron and Frankie and friends to so many ๐ฅ๐๐ฅฐ
Baroness J Campbell
@bnsjanecampbell
Cross Bench Member of the House of Lords. Founder of Not Dead Yet UK. Long term campaigner on disability equality and human rights. Still alive!
Willow Dene School
@willowdenesch
We are a special school for children aged 2-19 and part of the Compass Partnership of Schools
Richard Kramer ๐บ๐ฆ
@richardkramer_
Ex Chief Exec @sensecharity @SenseInternatl Proud Trustee of @CareTechFdn @en4ei and NED @RCHTWeCare Views my own. Cornwall ใใ
Official Luke Dixon
@lukedixonoxford
welcome to official Twitter for Luke Dixon and fansites for @gmb and @itvnews tinyurl.com/gmbfansite and newsroomuk.wordpress.com.
Rett University
@rettuniversity
#RettUniversity is an educational services org providing e-learning, support & training for the #RettSyndrome community. See also @girlpower2cure + @rettgirl
Raremark
@raremarkhealth
Helping you better understand, manage and talk about rare disease. Join us at raremark.com
Rick Thompson
@ricksthomp
Evolutionary biologist, turned CEO for Beacon: for rare diseases. All views my own.
Vic Hancock Fell - Fair Collective ๐
@vichancockfell
Iโm not active here. Iโm keeping my account open to access old posts and resources but Iโm not checking DMs or comments. Find me on LinkedIn ๐๐งก
BDFA
@battendiseaseuk
Our mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure.
NHSGGC Specialist Children's Services
@nhsggcscs
Specialist Children's Services, NHS Greater Glasgow & Clyde
Delichon Ltd
@delichonltd
Delichon Ltd - Innovative mobility solutions including Foam-Karve custom seating, Delta All-Terrain special needs buggies and Hippocampe Beach Wheelchairs
Neurogene Inc.
@neurogeneinc
Neurogene is focused on developing life-changing genetic medicines for patients and their families affected by rare, devastating neurological diseases.
Phil Drinkwater
@phillydinkers
Screenwriter, Filmmaker, Academic, Berk. Broadcast Signal Intrusion out now. Head of @philm_school. Raise ยฃ @reverserett in memory of my son @foundjude
Embracing Complexity
@embracecomplex
Coalition of leading UK charities working to facilitate evidence-based social inclusion of neurodivergent people. Managed by @Autistica. #EmbraceComplexity
Kirsten Lamb
@kirsten76159840
recently retired GP with interest in improving the physical health of people with a learning disability.
Rishi Sunak
@rishisunak
MP for Richmond and Northallerton. Former Prime Minister of the United Kingdom ๐ฌ๐ง Promoted by Sam Gibbs at Omega Business Village, Northallerton DL6 2NJ.
Rebecca Day
@beccastudies
ESRC Wales PhD: Bilingualism in Rett syndrome @BangorLingEL | RCC @RettUK | Neurodivergent researcher | Cymraes anrhydeddus | Dwi'n dal i ddysgu
Taysha Gene Therapies
@tayshagtx
Taysha Gene Therapies is focused on advancing AAV-based gene therapies for severe monogenic diseases of the central nervous system.
#right2home
@right2homeuk
Every person with a learning disability and autistic person has the right to a home. Campaigning for human rights and system change. For information, visit:
Pennyโs Fight
@rett_penny
Pennyโs fight against Rett Syndrome
Abigail
@abigail090510
Peter Just
@peterdjust
Views here my own. Work: external affairs & influencing @RCSLT (covering @RCSLTpolicy & @GivingVoiceUK). Travel: @romandespatches Research: @ExPremiers
Publer
@publer
Your ultimate social media management platform ๐ Plan, Schedule, Collaborate, Analyse & Report Explore Publer for free: publer.com
Neil Buckley
@neilbuckley46
Michelle Prendergast
@michelleprend20
Fun mummy to 3 beautiful gorgeous girls Cerys the youngest has Rett syndrome #walkAllOverRetts #SupportTheCauseWearPurple